posted
My third test for lyme came up negative. Blood was tested at Mayo clinic. doc says I dont have lyme but maybe arthritis or auto immune disease. Elisa was pos. western blot was pos with igg 66 igm 23 and 41. I dont know what to think now. I still have swollen knee, muscle twitching, sore upper arms and stiff shoulders and range of motion problem with arms, panic attacks, losing breath sometimes when trying to go to sleep and mild aches all over.Was bitten for sure in 93 and maybe since. any suggestions?
Posts: 3 | From scottsboro,al | Registered: Jun 2008
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
suggestion: Find a LLMD.
Just curious, not that the WB test could be considered reliable (because it can't), were there no IGM bands?
You should also be tested for co-infections.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
You have a history of tick bites, symptoms highly suggestive of Borrelia infection, two positive serological tests (one with a high degree of diagnostic specificity: the Western Blot), and you've been told that you don't have Lyme by a doctor from a notoriously Lyme-ignorant institution.
All things considered, it seems very, very likely to me that you do indeed have Lyme. Find an LLMD right away.
Posts: 20 | From Portland, Oregon | Registered: Feb 2008
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-------------------- I was diagnosed with and treated for late stage Lyme in 1991 with 6 weeks of doxycycline. Initially felt better, but then developed health problems that last until today. Posts: 83 | From New Jersey | Registered: May 2008
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posted
I do think you have it. Check your PM.
Posts: 581 | From CT | Registered: May 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm confused why you say your third test came back negative, yet your Elisa was positive and your WB was positive?
It doesn't matter how many tests you have after the first, if you have had a positive Elisa, then you definitely have lyme. Most people don't even get a positive Elisa, so you're lucky you did!
You NEED to find an LLMD or you'll continue to go from doctor to doctor who end up telling you that you don't have lyme even though you had a positive Elisa!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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