posted
I'm new here and have never been diagnosed. It's almost as if I had a lightbulb moment today. After reading a recent article in Self magazine, I remember thinking...oh great another possible thing I might have. Is it chronic fatigue, lupus, etc. etc. and now lyme disease. After doing a lot of research online it seems so eerie and possible.
But are there really a lot of you who have gone undiagnosed for years and years and have only had seemingly mild symptoms???
I remember being about seven years old. I woke up one morning and literally could not get out of bed. My muscles just wouldn't work, I felt tired and flu-y. My mom had to carry me into the doctor's office, and they said I didn't have the flu, that I had a virus and they couldn't give me any medicine. I had a fever and I slept all day. Well it went away after a day or so. It was like a fluke, I've never ever had the flu since. It still haunts me when I think about it...why was I seemingly paralyzed for one day?
Mostly I feel fatigue and brain fog, some ringing in the ears, my joints (like my knees, knuckles and shoulders feel weak and pop sometimes). I forget things, and space out, and I am very sensitive emotionally. Also sometimes I'm agrivated with noise and touch, although not to the degree of some people ive read about on here.
The main thing is, Lately I've been feeling a lot of muscle fatigue. I've been working out about 3 times a week pretty hard for about 5 months now and haven't lost a pound! I am gaining some muscle, but I know my body and when I could bounce back before, it seems like it's fighting me. I have to take ibuprofen every day, even on the days I don't work out and on the days I do work out I feel like I've been hit by a truck. I have to take a nap to recover sometimes. This really bothers me and doesn't seem normal.
But then again, I go back to feeling like it isn't anything major (like some people's symptoms), and maybe comes with age (though I'm only 28) so I begin to wonder if i've been making it up. But I know something's wrong, when I remember always needing to nap when I was younger when my friends would have boundless energy. I always thought it was because I have an introspective personality.
Does anyone else remember feeling this way, and is it possible to have this after 20 years (I'm 28) and for it not to be at the advanced stages? To only have seemingly mild symptoms? I'm eager to hear what you have to say.
Posts: 3 | From South TX | Registered: Jul 2008
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Most of your symptoms are classic of Lyme and or other tick borne co-infections. Please search on this board or google; lyme disease co-infections.
For most people Lyme disease is asymptomatic, or they show little or no symptoms.
The manifestations are anywhere from a slow onset of on and off symptoms to WHAM one day they are sick and dont know what happened. The symptoms can change or vary over time.
You are too young to be fatigued, brain fog, aches and pains etc. Thats what I though too for a long time. Lyme Denial, even for those with positive blood tests is not uncommon.
Q- do you live in an endemic area where there is Lyme disease.
If you suspect Lyme disease I would get a copy of Pam Weintraub's new book CURE UNKNOWN and find a Lyme Literate Medical Doctor to do a proper evaluation for Lyme Disease. Most main stream Dr's will be no help to you.
Take care
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Your mind can play tricks on you. I use to from time to time wonder if I was just crazy; but in my heart of hearts I knew I was ill. Your gut feeling is ususally right. Your symptoms do sound like possible Lyme. It can't hurt to seek out a LLMD just to make sure.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
My very first alarming symptom was neck pain. Extreme neck pain. Not the bones. The nerves/muscles/skin. To the point where I couldn't and still can't function.
I've never had "vague" pain. It came on like a storm and never stopped, not for a minute, not for a day. And it only gets worse.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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Once you find out you have it, definitvely have it, your mind (atleast mine) starts to go through your past and look for hints that you didnt pay attention to.
Was a tremor in my hand.. followed a few months later by a case of vertigo followed by a 6 month headache.
However, looking into my childhood, i remember having muscle spasms when i used to lay down that would literally make me inadvertently punch the person i was lying next too.
Not sure if that was a lyme symptom.. but it sure was weird.
And those were the good old days. Posts: 47 | From Denver | Registered: Jul 2006
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bettyg
Unregistered
posted
welcome, so glad you found us.
post in SEEKING DR. FORUM and show largest city closest to you plus your state in SUBJECT LINE.
copy this entire post, and paste it to the NEW one you start over there...helpful info above.
make sure you go to lower left corner and mark box to receive all replies....
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you! ******************************
we recommend 6-12 WEEKS of doxycycline antibiotics; 2 months symptom FREE before stopping antibiotics.
so glad you found dr. burrascano's 05 lyme guidelines!
call your dr. and DEMAND MORE! you are now in the LYME WAR CONTROVERSY ... another thing you didn't ask for!
please see BELOW LINK about ACTION ALERTS....CALLING 4 WASH. DC PHONE NOS. GIVING THEM YOUR FULL NAME/COMPLETE MAILING ADDRESS AND TO "PUT LYME DISEASE ON THEIR AGENDA!"!!!!
IDSA, infectious disease society of america, are infectious drs. who:
.. do NOT believe in CHRONIC LYME;
.. treat from 1 day to 3 weeks MAX ANTITIOBICS, AND YOU ARE "CURED"! HOG WASH!!
ILADS, intl lyme associated disease society, are our LLMDS, LYME LITERATE MDS, and they:
... believe in chronic lyme AND TREAT US AS LONG AS NECESSARY!!!
... another controversy; various STATE HEALTH DEPTS. FILING CHARGES on our llmds for treating antibiotics longer than 4 weeks!!!
example: see activism; read about DR. CHARLES RAY JONES, KIDS NO. 1 LLMD IN CONN! starting his 3rd year of charges trying to take away his license!!!
*********************
Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.
We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!
Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.
we ask that all new members post in SEEKING DR. area and show cities/state in subject line.
please tell us a little about yourself; it helps in directing you the best way we know how! read 1 of top posts, and then answer the questions i've asked ok; WE THANK YOU!
also by posting on board, your STATE will reach out and give you the MOST CURRENT INFO that we with nationwide lists just do NOT get promptly!!
NO POSTING DRS. LAST NAMES; USE LAST INITIAL ONLY; NO PHONE NOS, COMPLETE MAILING ADDRESS, NO WEB SITES ALLOWED!!
We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!
So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there! Betty *******************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing. Examples: on doxy and biaxin; need feedback: My western blot igm/igg blood tests from ....lab; list them going DOWNWARD not across.
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY!
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
please go to dr. burrascano's 05 lyme treatment guidelines and print out pages 17-18 ,,, where it talks about dosages for KIDS and adults!!
p.17: Antibiotic Choices & Doses From CBB: Amoxicillin-Children: 50 mg/kg/day divided into q8h doses. My pharmacist did the math for me, & it means: 35 lb child - 800 mg per day 70 lb child - 1,600 mg per day [1 kg=2.2046 lbs]
p.19: Treatment Categories Early Localized - single erythema migrans rash with no constitutional symptoms. Children: oral therapy for 6+ weeks.
According to Dr B's recommendation, your son did not have an adequate amt per day or long enough treatment to eliminate the bacteria. Take a copy to your Dr and see if (s)he will treat according to these Guidelines. Do whatever it takes - beg, plead, throw yourself on the floor and cry if necessary. *************************************************
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. ***************
I want to make sure we have whoever on our NATIONWIDE LLMD list, which I have also with 12 other folks.
If you call any of the names where we do NOT have complete info, please ask the following and furnish me when you are done so we can add it to our nationwide llmd lists!! THANK YOU!
if you end up calling any above WITHOUT COMPLETE INFO, would you get the following IF possible from them??
we need full name SPECIALTY street addy city, state
phone no. fax no. web site or email if possible
cost per hour for 1st visit cost for followups
do they take insurance? what kind? treat by IV or ORAL?
thanks for helping us add to our drs. of around 300 nationwide who are LLMD! ************************************** ********************************************* checks--not paypal--for Dr Jones jblral Frequent Contributor Member # 8836 posted 09-07-2008 11:33 AM ________________________________________ I've been informed that Dr Jones defense is asking for CHECKS not paypal, at the following address:
HOW TO DONATE TO THE LEGAL DEFENSE FUND:
Make Donations payable to: "Pullman & Comley Trust Account-for Dr. Charles Jones" Mail to: Elliott B. Pollack c/o Pullman & Comley, LLC 90 State House Square Hartford, CT 06103-3702
Note "gift" in the memo field
Apparently, the person with access to the paypal account is away on vacation, and the money can't be used until that person returns with the code. For immediate use of the money, they need it in checks to above address. ________________________________________ Posts: 294 | From: California | Registered: Feb 2006 | IP: Logged
Dr Jones on YouTube--watch & donate jblral Frequent Contributor Member # 8836 posted 09-07-2008 12:32 AM ________________________________________ This YouTube site, featuring Dr. Jones in an excerpt from "Under Our Skin," was created by Andy Abrahams Wilson (creator of the documentary itself) - in an effort to help Dr. Jones meet a critical, imminent fundraising deadline to retain his legal defense team. This is a wonderfully generous act on the part of Andy and Open Eye Productions!
Dear Folks,
We've created a YouTube site with an excerpt from UNDER OUR SKIN featuring Dr. Jones. There is information at the end of the clip and in the description on YouTube about how to donate. Please feel free to distribute widely! The site can be accessed at www.YouTube.com/DefendLymeDoctors
Hope this helps! Andy
URGENT LETTER FROM DR. JONES 7/8 ellenluba Frequent Contributor Member # 1707 posted 09-07-2008 02:35 AM ________________________________________ CHARLES RAY JONES, M.D. Madison Towers 111 Park Street , 1st Floor New Haven , Connecticut 06511 Tel (203) 772-1123 Fax (203) 772-0682
July 7, 2008
Dear Friends,
Urgent! I must raise $90,000 by July 14, 2008 and an additional $110,000 by August 10 in order to retain the legal team which has been representing me. If these sums are not raised, I will not be able to continue defending the charges brought against me by the Connecticut Department of Public Health for my treatment of children with Lyme disease, and I fear that I will be forced by the Connecticut Medical Examining Board to resign my license to practice medicine and to retire. This must not happen!
I understand all too well the considerable hardship that Lyme disease has imposed on too many families, and regret the need to appeal to you yet again for donations to my legal defense fund. Yet the prospect of surrendering this critical fight is more daunting: If I do not continue to oppose these charges, how many more physicians will be left vulnerable to similar charges for their treatment of Lyme disease? How many more sick children will be abandoned?
I recognize that the figure of $200,000 appears overwhelming. However:
* If 10,000 families contribute $20, we will be able to meet our goal; * If 4,000 give $50, we will be able to meet our goal; * If 2,000 give $100, we will be able to meet our goal; * If every member of the Lyme community gives something, we will reach this goal!!!
I am confident that we can succeed, but I need the help of each and every one of you. Time is of the essence and you must respond today. In return, I pledge to you that I will not give up this fight.
With my greatest appreciation,
Dr. Jones
Charles Ray Jones, M.D.
HOW TO DONATE TO THE LEGAL DEFENSE FUND:
Make Donations payable to: "Pullman & Comley Trust Account-for Dr. Charles Jones" Mail to: Elliott B. Pollack c/o Pullman & Comley, LLC 90 State House Square Hartford, CT 06103-3702
Note "gift" in the memo field --------------------
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adamm
Unregistered
posted
headache and mental fogginess--I went neuro at 3 weeks out.
IP: Logged |
posted
My symptoms developed slowly over the years.
Starting with muscle twitching,calf pain and foot pain.
Years later light aand sound sensitivity. Flushing fogginess, on and off muscle and joint pain.
Posts: 115 | From warwick, new york | Registered: Mar 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Yes, many, many, many of us here were bit while we were young but didn't get REALLY ill until years and years later.
I was bit when I was 14 (except don't remember the exact date), the tick was stuck in my arm and I remember pulling it out and going about my business and eventually forgot about it because back then I had no idea ticks could carry any diseases, etc.
During sometime in middle school I'd get really painful arthritis in my hands. It would be so bad I'd tell my friend to massage/rub my hands for me because they hurt so much. I remember thinking it was weird that I had arthritis in my hands at that age, but didn't think much of it. So the arthritis in my hands was probably the very first symptom I ever had.
Then during high school, every single day I'd have a headache. ALWAYS. It was always in the same exact spot too - my right temple area - and even now when I get headaches, they are STILL on that side of the head. It got to the point where I started believing I had a brain tumor (especially because the headaches would always be centered on that side of the head only) And I've since had an MRI and it was clear.
I also had problems with dizziness and vertigo and almost blacking out in high school. I had workups and everything always came back normal (except for my chronic low white blood cell count which is STILL low, but we have not yet found a reason for).
Then I started having IBS and GI tract trouble.
Then started having shortness of breath, tachycardia, palpitations and muscle cramps. The palpitations got so bad that I've had many workups from different cardiologists who all found nothing and everything always back normal. I even wore a halter monitor that showed sinus tachycardia of up to 149 at times, but they could not find a reason for it.
My muscle cramps (which I still have but it has gotten much better with antibiotic treatment) used to be sooooo bad that even driving the car, holding the stearing wheel, I'd get very painful, achey cramps in my arms. Or, if I touched my leg or arm even lightly it would cause the muscles to cramp up. It was ridiculous but we couldn't find a cause for that either. At one point we thought that my slightly low potassium was causing it, but even after I got on prescribed potassium and was at normal levels, it never helped. The only thing that has helped is lyme and co-infection treatment. Even though I still have muscle cramps, they are very few and far between when they do happen.
So in the beginning, I had symptoms that most people would attribute to the wear and tear of life and stress, etc. But then one day last year, BAM!! All the symptoms and extra came out and I felt like I was dying. Ended up in the ER where they had no idea what was wrong with me and told me that I had a sinus infection (I really don't know why they came to that conclusion). I ended up back in the ER that night after taking Levaquin for the sinus infection. I realize now that the Levaquin made me sicker because of a herx reaction to it. I ended up back in the ER and they did lots of heart tests, CT scans, etc. and that was all normal as well.
Only YOU know your body as well as you do. You know what is right and wrong with it. Listen to it and be your own advocate! If you're sick, you're sick. Don't let them tell you it's all in your head, etc.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
I don't think I currently live in an area known for cases of lyme disease. I could be wrong, it's the southern most part of texas. However, At the time of said incident (when I was 7 years old or so) I was living in San Antonio. I used to trapse around this one tall grassy area. It's always humid in Texas. I was taught to be wary of poison ivy, but not ticks. I've heard they latch on at various stages, even the larva stage. Something like that. My family was also camping a lot, and I went to summer camp every year in central Texas. But I remember that little clearing we used to play in.
Anyway, I've also heard that hives is another symptom, but I'm not sure if it happens right after the bite, or at some later stage. I broke out in hives when I was twelve, inexplicably. I'm not allergic to anything that I know of. I do have other family members with sensitivities but I'm the only one who has ever broken out, despite not having any allergies.
Don't know if that's pertinent.
Posts: 3 | From South TX | Registered: Jul 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
At this point, I don't think it matters what area is supposedly "endemic" or an active area or known area and which are not. I believe all areas have ticks, especially nowadays. I bet you could go anywhere and you'd find at least a few ticks, if not many.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Yes, I agree with disturbedme...I am NOT in an endemic area. After a few years of horrible, undiagnosed symptoms, I tested + for Lyme plus 3 co-infections. I am certain my infection occurred here. My Dad, on the same hike 4 years ago, is also positive.
Anyway...looking back, first symptom for me was night sweats. It was not until about a year later that nagging neck pain started, after about 4 months of that my cervical disc herniated.
It took about 6 months from the time of the disc herniation that the rest of the numerous neurological symptoms hit, like a brick wall. Then another 2 years of doctors, doctors, doctors. I basically figured it out for myself online and found an LLMD, which confirmed my hunch. Even though Lyme kept popping up, I probably waited almost a year to seek out an LLMD as I couldn't imagine how I could have LD...I don't live in an endemic area...which is what all the docs would tell me when I brought it up to them.
I would seek out an LLMD, get tested and not waste any time...better to rule it out or in than waste precious time IMO. Good luck.
Posts: 566 | From West Coast | Registered: May 2008
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
When I first moved into the apartment I'm living in now (11 years ago) - I got a very bad flu in August. I thought it was odd to get the flu in the summer but it went away. I thought it was due to stress from moving.
6 months later I started having achy pains in my neck & back & pain in my vagina during sex. I also felt fatigued. I thought I was having a relapse of chronic fatigue syndrome since I had that about 10 years, prior.
10 years later, a negative Western Blot & several negative ELISA tests... I have a clinical diagnosis of Lyme.
I've been to alot of doctors who had no clue of Lyme or how to diagnose it properly - & I live in NJ, ground zero for Lyme.
Lyme has been found in all 50 states & throughout the world despite what the media says.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
To original poster....
My current symptoms are similar to yours.
I am 24 right now. I believe I was infected when I was 5 or 6. I remember being hot to the touch and when my temperature was taken at school it was over 103. This was right around the same time we found a tick on me. I was never tested for Lyme or given antibiotics. (I have considered suing the doctor).
Anyways, I also remember later when getting my annual physical, telling the doctor I hurt everywhere, and pointing to every muscle and joint in my body, one by one. Then I remember my mom and the doctor laughing, like I was joking.
I also remember telling my mom that my teacher at my day care was giving me headaches because she shouted too much. I remember these intense headaches, and they were like migraines. Looking back, maybe it was sound sensitivity.
But after that I remember being a normal child for the most part. The only other problem I remember having was difficulty reading, despite getting very good grades because I was a good learner.
All this never stopped me from being a happy, functional, (over-achieving) child.
I then got very very ill, BAM! when I was 17. I was playing lacrosse, so it is possible I got bit and never noticed, but I believe it was infections from years ago coming back, because when I was finally diagnosed with Lyme at 18 after being ill for 9 months, I remembered the ticks from childhood and my headaches.
My point is, I believe you can live a normal life after being bitten and have it come back years later. And, mine doesn't look like typical Lyme right now.
I did have some joint pain in the beginning when I was 17, but none now that I have gotten some treatment. Though I am still very ill with fatigue and brain fog. (trust me, you will get better....i just think my doctor is sucking right now).
Be sure to get tested for coinfections through Igenex too, though if you see a good doctor, he or she should take care of that for you.
I want to say though, that just because you remember this one incident from childhood doesn't necessarily mean you have Lyme. You would have to have a Lyme-literate doctor evaluate those childhood symptoms to see if they are in line with Lyme; I am not sure if there are viruses that can cause the semi-paralysis you describe or not.
I would be inclined to think there is a good possibility for Lyme. I am just saying, check it out. But the blood tests can't always be trusted, they say, so believe your gut too.
Best of luck to you; wishing you all the healing vibes out there!!!!
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
When I was a teenager, I woke up one morning and tried to get out of bed. When I swung my legs over the side of the bed and tried to stand up, I fell down.
I had no feeling in my legs. I pounded on them with my fists, until the feeling finally came back. I was fine after that, except for hyperhydrosis, which I figured was just bad genes.
I figured that this incident was just some kind of weird thing that happened from sleeping the wrong way. I never told anyone.
I developed very occasional heart palpitations during my pregnancy with my son. Then, 10 years ago, I got the lyme vaccine (which has been blamed for activation of dormant lyme) and was working as an archaeologist. 1 year later, I became ill with lyme disease.
My first symptoms were arthritis in my hands/wrists-it felt hard to squeeze my hands. Then rib pain and knee pain. My joints started popping like crazy.
Heart palpitations increased, and right-sided headaches and facial numbness started. Within the next 6 months, I developed most of the listed lyme symptoms.
So, I think that it is very possible that this could be what is going on with you.
Posts: 418 | From NJ | Registered: Sep 2007
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Alv
Unregistered
posted
Yes you can have it for more...How about I was 28 when I felt like you and all the symtoms you included and 10 years later I went to the death sentence...and crawling and fighitng to live.
Every body was saying we all feel like it...That is ok .What do you think are you getting any younger ?
I tried my best but none was helping.
I hope you Do an IGENEX test..and also ( think if you can do a muscle testing with a good practitioner do some reading about it)..
You could have coinfections...as well and not labs are good at it.
Oh my ! You are lucky you are reading and there is so much out there so you can link it with your symtoms...there was no chance to know about it 10 years ago.
I had that since FOR SURE in 8 th grade.Sometimes I feel like I have been born with it.But b/c I have been 3 times hospitalized and on IV ( do not know the reason ) was little than probably put lyme in remission.
I was reinfected with diferent coinfections... and that is what made my lyme active.
If you read his book you will se how hard it is to loose weight when you have LYME , BABS , AND bart and his patient here had it for 30 years...YEP...NO KIDDING.And I recall my headaches since in 3 rd grade....
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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