cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
Has anyone had success with low doses of antibiotics?
my LLMD believes in treating bacteriostatically, rather than killing with beacteriocidal doses.
After four months I am feeling only a little better, and that came about when we added bactrim for bartonella; bactrim is the only drug that i am taking a "normal" dose of.
Here's what I take:
zith 300 mg every other day mino 100 mg every other day bactrim DS 2x day mepron 1 tsp 2x day (just started) modafilan (seaweed) for toxins
any ideas on this? I know that four months isn't very long.
I have noticed some improvement in my "asthma," which i think might be the mino.
I had huge improvement in sleep with bactrim. Minor improvements in mental stamina with bactrim.
i noticed improvement in my knees and hips recently.
cant think of any other improvements off hand -- ideas, anyone??
Posts: 1173 | From USA | Registered: Nov 2007
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Hmmm...interesting thought process...I can sort of understand his thinking.....bacteriostatic=less herxing/misery and the immune system can take over. Kinda like it.
Anyone else doing this?
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
posted
I am on low doses of minocycline. I have just been able to build up to 100 mg (2 50mg tablets once day) from January. Next week I move up to 1 in the am. and 2 in the p.m. I had to start and stop a lot before I could build up to that because of herxing. . . . I actually started out taking 1 pill every other day for several weeks before I could take one every day.
A
Posts: 26 | From Tuscaloosa, AL | Registered: Aug 2007
| IP: Logged |
ByronSBell 2007
Unregistered
posted
Only bad thing is it will take you alot longer to get well, if you do....
IP: Logged |
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
I am on low dose doxycylcine, 100mg MWF. This is a rheumatoid protocol developed at Georgetown University. It has a high success ratio to keep mycoplasmas at bay. mycoplasmas are one known cause of RA. Lyme is another and strep another.
In Dr Thomas M Brown's book "The Road Back" he says that lyme and strep take a more aggressive therapy. So he doesn't advocate low dose for lyme. Well, he didn't. He died in 1989. He was a rheumatologist and was highly respected. His research is recognized today although most rheumatologists think the minocycline acts as an immune suppressant rather than an antibiotic where RA is concerned.
I was diagnosed with lyme first, then RA. So, I opted this treatment rather than methotrexate or Enbrel. I felt it at least would not conflict with my lyme bacteria.
My current rheumatologist is an LLMD member of ILADS. She still has me take the low dose doxy (I did mino initially but had a drug induced lupus flare)but she also has me doing so much more than just that.
Her testing has revealed Babs ducani, mycoplasmas, c. pneumoniae, h. pylori, EBV, QFever and lyme. I test positive with ease. I must be a bacteria factory.
Additionally, I am toxic and have a very poor ability to detox. So, she is not just pumping me full of abx. She is working hard to detox me too and to keep the RA at bay, she has had me on plaquenil all along and has recently added Enbrel.
After fighting to stay away from those drugs for 2 yrs, she has finally convinced me I need them. I'm only on Enbrel though, not the MTX.
I have recently stumbled on reports that they are discovering the biologics like Enbrel actually stop the disease of RA and in some instances are repairing the damage done.
This drug is still new (15 yrs) and there is much to be learned yet but they are excited at what the drug is doing to fight RA.
Research is focused on stopping the immune response. My doctor is focused on getting rid of the bugs. I feel I am in very good hands.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
| IP: Logged |
cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
thanks for the replies, everyone.
Luvs, how long have you been on the RA protocol? Do you know if it has helped with your other LYme symptoms,
or are they so overlapping with RA that it is hard to distinguish?
Posts: 1173 | From USA | Registered: Nov 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic