Topic: Anyone hear of or think Tourette's could actually be Lyme?
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
My husband and I are watching this episode tonight about children who have Tourette Syndrome. And I got really curious and looked up how it's diagnosed.
They really don't have a test for it. All it says is it "may be diagnosed when a person exhibits both multiple motor and one or more vocal tics (although these do not need to be concurrent) over the period of a year, with no more than three consecutive tic-free months."
and
"The onset must have occurred before the age of 18, and cannot be attributed to the "direct physiological effects of a substance or a general medical condition."
It also says that if the doctor feels it necessary, s/he will order tests such as hypothyroid or an MRI. I wonder if any of them think to test for lyme?!
We're just sitting here watching it and my husband brought up the fact that it could probably be lyme and wondered if their tics would get better, or worse from a herx, etc.?
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
Angelica
Unregistered
posted
I have heard that theory mentioned before. It could easily be Lyme in my opinion.
IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
I also think Tourette can be a form of seizure.
And seizures can be triggered by too many toxins, infections, adrenal overload or underload - or brain injury (which can come from toxins, infections, etc. as well as trauma).
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
| IP: Logged |
posted
One of my early childhood Lyme symptoms was Tourette's like spasms of my neck
I 1st got bitten as a little girl in the 70's but did not get diagnosed until I was 34
So now it all makes sense. I tried to hide the spasms from everyone and eventually they resolved after a while
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by hcconn22: What the **** you talkin about you **** **** **** this post **** hell
Okay, I was just about to say "Ummm???" but right before I sent it I realized it was supposed to be a joke.
You're lucky I got it. I was kind of upset at first when I thought you really meant it!!!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
bettyg
Unregistered
posted
disturbed,
i did NOT think kindly of this post either from hrconn ... not like this person's post from before!
i'm glad YOU GOT IT; I didn't, and was ready to report it....
actually, there is PROOF about lyme/tourette's ... i remember reading it oonce in ART DOUGHERTY'S ... 300 other illnesses mimic lyme disease.
art's links are found in TREEPATROL'S POST FOR NEWBIES.... some major things art took down, but his other OUTSTANDING RESEARCH REMAINS THERE TO BE REDISCOVERED! try looking for yourselves.
IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Yes, it is clear that Lyme Disease causes a portion of cases of Tourette's Syndrome. Unfortunately it's not the only cause, but it is one, especially if you know a lot of Lyme patients.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I have a sister with Tourrets, and it's not a seizure. It's a cross between ADD and a nerve problem. I forgot how the Dr described it (she was Dx'ed when she was 5 and she is almost 19 now).
Today, I am being tested for Lymes Disease. I think this is a bit curious because although my sister and I have no blood relation, we might have something related to Lymes? Does anyone know for a fact that Torrets is caused by Lymes Disease?
I am going from Neurologist to Specialist for the last 14 years with symptoms that have been going undiagnosed, and finally a Dr is taking me seriously. He said he was going to test me for Lymes. However, after reading about Lymes, I don't see how it could be that, but then again, I don't even claim to be a Dr, let alone play one on T.V.
I am confused and more than confused, I am scared. If I have had Lymes for the last 14 years that has gone untreated, wouldn't I be dead by now? Or so far gone someone would have noticed something by now?
People who live with me, and know me on an everyday basis, and through my own research says it is MS, but Dr. says he has to go through the ruling out phase.
Posts: 1 | From West Virginia | Registered: Jul 2008
| IP: Logged |
northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
WVjaded said:
quote: If I have had Lymes for the last 14 years that has gone untreated, wouldn't I be dead by now? Or so far gone someone would have noticed something by now?
Actually some people with lyme just had a gradual decline in health, or intermittent symptoms that puzzled physicians....or led them to think the problem was mental, aging, stress, or some vague syndrome with no cause.
Tick borne diseases are commonly overlooked by drs. because of disinformation.
quote:People who live with me, and know me on an everyday basis, and through my own research says it is MS,
Lyme can be misdiagnosed as MS.
If you are going to investigate lyme, I would recommend posting on "seeking a doctor", to find a specialist who is more aware of the lesser known symptoms, and who is more aware of testing problems.
Regarding your sister, it would be a possibility that she, too, may actually have some tick borne disease.
Many people here have had lyme and other tick borne disease for 10-20 years undiagnosed, and have improved, once proper treatment was received.
You will need to activate your "pm" function, in your profile, to receive dr names.
As far as tourettes, I think it is a possible manifestation of neurolyme. Makes sense to me.
Tics and myoclonus are well known neurological lyme/tick borne disease symptoms. Also, physical adhesions in tendons/muscles can cause muscles to snag up, and result in a stronger release/jerk, once the adhesion is passed, by the muscle.
Some people have auditory or visual "hallucinations", so why not verbal. I dont like the term "hallucinations".....I think it is neurological misfiring within specific areas of the brain.
Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
| IP: Logged |
posted
Last fall my son was one doctor's appointment away from being diagnosed with Tourettes. Then we learned he still had Lyme (originally treated in 2002). We have been treating Lyme with herbs (mainly because he has lots of gut issues) and I have not heard a vocal tic in many months. There are still some OCD tendencies but they are manageable and seem to be decreasing a bit.
--Judy
Posts: 67 | From Maryland | Registered: Jun 2003
| IP: Logged |
posted
I just found this website and this thread in my search to try and figure out if my almost-five year old daughter's tics and joint pain could in fact be Lymes.
We went to see Dr. F in Kennett Square, PA last week and are awaiting test results. He said all three of us (dh,dd, and me) have Lymes based on the rash we have on the back of our necks and scalp--has anyone else heard about this diagnostic "tool"?
I am really interested to hear about other's experience with childre-tics-lymes...as well as about this neck rash.
Thanks!
Posts: 7 | From PA | Registered: Aug 2008
| IP: Logged |
lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Sheboo, your question will get more answers if you put it into a new post, rather than tag it on the bottom of this thread.
The Erythema Migrans rash is diagnostic of Lyme (no s) in and of itself. Nothing else is needed, so yes, he did it right.
I can't speak to your question about children with Lyme and Tourette's symptoms. I have taught a child with those symptoms, but that was over 15 years ago, long before I knew I had Lyme, and I did, even then.
Welcome to Lymenet.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
| IP: Logged |
Dawnee
Unregistered
posted
I think its possible.
And btw...I got the joke the first time around
IP: Logged |
Thank you for giving me the name of the rash! I was so overwhelmed w/info at the meeting that I failed to catch that and I've looked at everyone's neck that I know and seriously more than half have the rash, but they think I'm nuts! We do live in the second-highest reporting Lyme county in the country!
Posts: 7 | From PA | Registered: Aug 2008
| IP: Logged |
posted
there are allot of tourettes-like symptoms that can arise out of a number of infections that involve inflammation or encephalopathy of the brain. if the centers that controls movement, impulse control, thinking are affected it can look like any number of the "no cause, test or treatment syndromes".
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
posted
Thanks lymednva , I posted a new thread about tics and ticks.....
about the rash: I googled the term you used and saw that it refers to the bulls eye rash. This isn't what we have. Ours is like a stork bite birth mark kind of thing--just red-pink splotches in our lower scalp.
I've read in other threads that the doc we saw (Dr. F in Kennett Square, PA) uses this rash as a diagnostic tool and I was wondering what others experience was--has anyone else heard of this? It just seems a bit odd.
I guess Lyme is generally "bit odd"....
We do live in the second-highest recording county for Lyme in the country, and when I looked on everyone's neck I know, many have these markings--but they think I'm nuts!
sorry if I've hijacked the thread--didn't know how to pm--will try to figure that out.
Posts: 7 | From PA | Registered: Aug 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Roll Eyes]](rolleyes.gif)
![[Razz]](tongue.gif)
![[Frown]](frown.gif)
![[Wink]](wink.gif)
![[hi]](graemlins/hi.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic