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» LymeNet Flash » Questions and Discussion » Medical Questions » IS Lyme disease disceptive?

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Author Topic: IS Lyme disease disceptive?
chewy1958
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For about 6 weeks now, I have been doctoring due to symptoms of chest pains, feet tingle, hands sleep, severe fatigue, light headedness, and nausea. I've had blood work done, an egd, a nuclear stress test, and yesterday an angiogram. All normal results. Does anybody have any suggestions? Could it possibly be lyme disease, and what is the most effective way to find out? Are symptoms of Lyme disease this deceptive?
Posts: 1 | From Wisconsin | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
hokie
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Yes, it could be Lyme (and/or other common coinfections) but it is not certain.

The most effective way to rule it out is to go the "seeking a doctor" section of this website and ask for an ILADS trained physician, who are also referred to as Lyme literate medical doctors (LLMD).

Good luck.

P.S. There is Lyme in Wisconsin.

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed here do to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.


http://tinyurl.com/2dmvs2


From the May 2007 issue of Clinical Advisor (home page: www.clinicaladvisor.com )

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"
By Virginia Savely, RN, FNP-C

*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.

Excerpts:


" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."

`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.


"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."

. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.


- FULL ARTICLE AT LINK ABOVE.


-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

This is just one reason why most doctors don't know about lyme.


http://www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Connecticut Attorney General's Office

Press Release

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter

May 1, 2008

Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.


- cont'd at link.

Printable version: www.ct.gov/ag/cwp/view.asp?a=2795&q=414284&pp=12&n=1


-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

And here are some reasons that educated doctors want to be sure patients get early and adequate care when possible and treatment, still, for chronic stealth infections:

-


This excellent article explains a lot about what chronic neuroborreliosis can do. It also details other chronic stealth infections, such as Cpn - and others - that should also be assessed in all chronic patients, especially those with neurological symptoms.

-----------------------------------------------


http://tinyurl.com/preview.php?num=64y3rv

(then clink "PROCEED TO THIS SITE")


May 2008 Volume 39 Number 5 LABMEDICINE
www.labmedicine.com - American Society for Clinical Pathology

CHRONIC BACTERIAL AND VIRAL INFECTIONS IN NEURODEGENERATIVE AND NEUROBEHAVIORAL DISEASES

- by Garth Nicolson, Ph.D.


=======================================

That author's site is:

The Institute for Molecular Medicine

A nonprofit institute dedicated to discovering new diagnostic and therapeutic solutions for chronic mycoplasma infections.

www.immed.org

www.immed.org/illness/clinical_testing.html

Patient Clinical Tests

=======================================


for more about Cpn: www.cpnhelp.org

- see top tabs all across the top for research, handbook, etc.


=====================================


www.chlamydieos.cz/studie01en.html

LATENT CHLAMDIAL INFECTIONS: THE PROBABLE CAUSE OF A WIDE SPECTRUM OF HUMAN DISEASES

Authors: Bazala, Renda from the Czech Republic - Oct. 2007


- Twelve page article at link.


-

[ 24. July 2008, 02:47 AM: Message edited by: Keebler ]

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

Be sure to see the ILADS site: www.ilads.org

Treatment guidelines can be downloaded and there are many other articles there.

=====================================


http://tinyurl.com/6lq3pb (through Amazon)

The Lyme Disease Solution (Paperback)
by Kenneth B. Singleton (Author), James A. Duke (Foreword)

You can read more about it here and see customer reviews.


==================================


Then do something enjoyable.


-

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-

Now, after all that you might check out the current threads about the Bionic 880.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069156

It would be great if you could get this other sort of treatment somehow.

Best of luck - NOW - I hope you can divert your attention and enjoy a cool summer evening. I went to college in Wisconsin and have such fond memories of your state.


-

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bettyg
Unregistered


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WELCOME; glad you found us.


check my newbie package below; i have symptoms lists there for:

lyme, bartonnella, babsisosa, erlichia, etc.
***********************************************


use table of contents to see what is there, and it to find things using EDIT, FIND, and type in the name of what you found in TABLE OF CONTENTS!


you've got some really good llmds in your state!

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tory2457
LymeNet Contributor
Member # 10384

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Hi Chewy,

There's some really good reading for you. Don't forget to look at the Newbie links Betty provided.

Lots and lots to understand. We all go through this process, and it can be overwhelming.

Ask questions but finding a doctor is important.
Post on Seeking a Doctor.

Thanks to all for giving Chewy information. [kiss]

Best to you,
tory

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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359

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Chewy-

One of the first manifestations I had was strange chest pain. However, tests revealed a healthy heart. I suspect the presence of Lyme can perturb the normal operation of the heart...probably through toxin release and bacteria colonies in close proximity to the heart muscle.

--------------------
"Whatever can go wrong will go wrong."

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adamm
Unregistered


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Even the best tests for Lyme are only something

like 50% sensitive. I'll send you a PM.

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