posted
I just can't figure it out. I've never felt so uneasy and abnormal for a long period of time due to anxiety, worry, and panic; just an overall feeling of unwellness mentally even.
I keep fearing that I'm going to pass out w/ something due to the heart or something I don't even know about. I have these insane fears since I've been sick w/ lyme. Or I'll be laying down on my back and I feel like I can't breath. Or I'll be mid sentence and out of breath or get stuck on a word due to what seems to be anxiety?
It has to be the lyme. There's no way I'm really this crazy. Why does lyme cause this stuff? I feel like at any moment I could drop dead and by all indications I'm a healty 25 year old guy. If I sit and think for a minute about things my heart rate could literally get going rapidly and I've got these strange chest symptoms that just feel like its not right. The lyme started in my chest (left breast and rip area). not sure if that had anything to do with it.
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
It gets into the brain. You may want to be tested or treated for Bartonella.
Posts: 2903 | From AZ | Registered: Feb 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey Clint...
So sorry you have to endure this situation. I know it is awful. I've been there myself.. as have many here. It sucks!
First let me say... it DOES get better.
Did you catch that?
It DOES get better.
Now.. why does it happen?
Not sure I can say exactly... but my though is... the brain is involved. It controls the hormones, juices and stuff your body needs to make the organs and things work in sync.
When it is being attacked.. spirochetes and/or toxins... it isn't going to like it.... and would react weirdly.
I use the example of a rabid raccoon when describing what Lyme can do to the brain. Normally a raccoon will not be seen during the day. It will shy away from people. It will be mild mannered unless attacked. But..
When it has a brain infection (rabies for example)...
It does the opposite. It will come walking down the road or through a parking lot in the middle of the day. It will not be scared off easily by humans. It may attack or be aggressive.
It flip-flops its normal way of being... just like you and I are doing when our brains are affected.
Luckily, we aren't rabid racoons.. and there is treatment that can help. Of course it is never soon enough to make us happy... because one day of anxiety and/or panic attacks is WAY too much.
If you haven't gotten help from your doctor for this symptom.. please let them know you need help. There are meds that may be able to help.
Once the Lyme treatment is working.. you should be a lot better... but it will seem like a LONG time in misery before you do. Sorry about that.
You might want to search out "passive muscle relaxation" techniques.. an audio tape. They helped me BIG time.
First thing, I want to assure you, if you're receiving medical help from an LLMD and you have Lyme or Bartonella, you're NOT going to die!
About your anxiety, missed-breaths while speaking etc...I can fully relate to this and I've had these sx's for at least several years without ANY treatment and I'm alive and mostly well!
I just started tx (7 weeks ago) and expect better days ahead.
I will say that the breathing patterns you mentions may have NOTHING to do with the heart, but rather the autonomic nervous system which partly controls breathing, blood pressure etc. Lyme and Bartonella are notorious for disrupting this. Disruption of this also creates the anxiety respsonse etc. Should get better with treatment!
Please take care, you'll be alright. MBB3
Posts: 247 | From The Country | Registered: Oct 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Another note...
Hope you don't mind the simple explanation I used above. I'm not into the scientific stuff right now... sorry.
posted
Clint it does affect the brain and when it does unexplained emotions, feelings accure.
Sorry, can't give you the scientific version, but I can tell you that I have been there. Panic attacks, paranoia, tht feeling of doom - yes I understand. It was so bad that I could barely leave my house.
It does get better. Hang in there.
I also thought Bartonella when reading your post.
Have you been tested for this coinfection?
Are you being treated right now for lyme?
Is your dr an LLMD?
Best wishes.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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quote:Originally posted by njlymemom: Clint it does affect the brain and when it does unexplained emotions, feelings accure.
Sorry, can't give you the scientific version, but I can tell you that I have been there. Panic attacks, paranoia, tht feeling of doom - yes I understand. It was so bad that I could barely leave my house.
It does get better. Hang in there.
I also thought Bartonella when reading your post.
Have you been tested for this coinfection?
Are you being treated right now for lyme?
Is your dr an LLMD?
Best wishes.
have not been tested for bartonella, treating it anyways. Yes I'm being treated for lyme.
I am taking ziphromax also doxycycline. this is my third week of doxy. first week on ziphro. My doc is not an llmd.
my fiance is from jersey, spring lake. if you know where that is.
posted
Yes , lyme causes it but when is mixed with BARTONELLA is even worst.
The heart skip[ping , feeling like you are under atakc and do not trust yourself ...is so common to bart.
I used to chock while drinking my cup of coffe and was gasping for air.It lasted almost 4 years very severe befor I found out I had lyme and BART.
My heart would skip and I would feel like I was going to pass out.
TREAT BART -and you will feel SO MUCH better.I say BART as bart exarbats it even more in a scary level.FOCUS on BART and LYME treatment and not vice versa.I have seen results.
It takes time.YES it messes up with your brain , mostly when you found out late after you had an active LYME and BART!!
I DID not die and I am way better...and never thought I would make it alive.
ALSO check your hypercoalgulation.....that can increase your symtoms more ..
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posted
JUST hang in there.I could not walk or talk or think that I would be alive the next morning.
YOU are OK.
Just treat your body as a whole , do not stop treatment what ever you feel is keeping the bugs under control and keep your blood thin, moving not clotted.
MINE was clotted ...as I caught it too late..and I am lucky to be alive.But now I take daily enzymes...to make sure my blood is thin that is IMPERATIVE.Back than I neede heparin into my beins direclty as it was very clogged from the inflamation .MY LLMD would give them to me every 3 days.
My heart would be squising from hypercoagulation and my anxiety was into the roof and I was crying as I felt I was dying .( ACTUALLY I would have been ).
Just do not let your self get scary.Make sure you have covered all your coinfections and treat them.I would suggest you find somebody with muscle testing eksperience.
You seem to have many things going on like me last year.It could be adreanalines, or viruses ( mine were active and chocking me to death -could not breath) ..every thing at the same time and hypercoagulation on top.
It should take a strong aproach from diferent anckels to address them.Just doing blood test is hard to figure it out.
MY doctor with muslce testing would find out each time ...which problem was causing bloackages and open up my paths in the mean time keep my organs suported.Also MY llmd will find which pathogens were more CRAZY going at the time and try to hit them.
BINDERS are very important also, the ones for metals and the one for toxins...WHILE I was killing to much , I was releasing to much of MERCURY and metals in the blood and even my left kidney shut down .
That is the only way out.You need to cover them all otherwise is like shooting in the dark and suffer and not having success.I am glad I reached and had the help of those people at the same time.
Otherwise I doubt I would have made it.TOO MUCH inflamation and my BODY ( had lost so much weight ) was not able to make it without their help .
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I've been there Clint - you'll be ok. I know its easy to say now, but some days the anxiety is through the roof. It's not fair that you should think like this. It took me years, but I
found someone professional to deal with this. Hormones and body makeup have a lot to do with this as well as the disease. I was diagnosed in 2003 and there were times, I can't begin to
count I felt the same way that you did and still feel. Body chemistry plus disease = this mess. Anything to calm you down, do. It's just another day. Be well - you could pm me if you want. I've been there.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Tracy9
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Member # 7521
posted
Lyme Disease can get into and effect the neurotransmitters in your brain; and as such disrupt normal brain waves.
The ending result can be anxiety, depression and other issues.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Hang in there Clint, I've had the same experiences going on for almost 2 years now, the IV Rocephin calmed the anxiety the best for me. Also, while you're fighting the Lyme and Bart, have your doctor prescribe you Ativan. ONLY take it when really needed. It has worked well for me in those very anxious times that last for hours. It really works, so don't be afraid to try it. It's kind of like valium. You need to try and relax (easier said than done, I know)...Hang tough man. This sucks, but you'll live........Rich
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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posted
It sounds as though you have only been on abx for a few weeks.
Have your symptoms increased since on abx?
If yes, it is actually a good sign. It is called a herxheimer reaction. Symptoms increase when the infection is being killed off. Do a search for a more scientific explanation.
If it is a herx, you will see improvement soon.
I hope that you will find an LLMD for yourself.
Getting the correct treatment, not just any treatment is key. Get copies of all your lab results.
An LLMD will follow the standard of care written by ILADS (International Lyme and Assoc. Disease Society) www.ILADS.org
Yes, I know very well where Spring Lake is. A very beautiful community. As a child we spent summers in Belmar 2 blocks from Spring Lake.
I don't live anywhere near the ocean. I use to love the sound of the sea, but I am so sound sensitive thanks to lyme that I cannot sit on a beach. The roar of the ocean is just too much.
I live many hours north of there. A stone's throw from NY State. Near a forest....go figure.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Clint, check stuff out with a cardiologist just to be sure, but I have had similar scary events.
I went to the ER once with heart pain/palps and they found nothing wrong.
The heart stuff can be scary at times but it comes and goes and I seem to be a lot more stable lately.
Lyme is an antagonist to multiple body systems. Trying to pinpoint what's happening most of the time is like chasing phantoms....
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Lyme is one of the most toxic infections known to man. It's just short of botulism in that regard.
If toxins are added to our bodies, we have reactions. Our bodies are put into the alarm state to alert us to the danger, our livers/kidney - the whole body - put on overdrive to rid the toxin -- and the toxin can cause death of cells and dysfunction of systems.
BIOCHEMISTRY OF LYME DISEASE: BORRELIA BURGDORFERI SPIROCHETE / CYST
by Prof. Robert W. Bradford and Henry W. Allen
EXCERPT:
A discovery of great importance relating to a toxin produced by the causative agent of Lyme disease, Borrelia burgdorferi, has been linked to a similar toxin produced by the organism Clostridium botulinum.
- Full article and great photos at link above.
-----------------------------------
NOTE OF CAUTION: While this is an excellent article regarding the information about the spirochete/cyst, there is one serious caution with one of the treatments suggested: Bismuth.
Bismuth, in various forms or methods of use, can (and has been) fatal. So, cross that off your list. If you download the article, please copy and paste this note to top your page.
Reading - and learning - about the nature of this infection is invaluable. The authors offer much in that regard.
From Wikipedia, (just one place to begin your research)
Excitotoxicity is the pathological process by which nerve cells are damaged and killed by glutamate and similar substances.
This occurs when receptors for the excitatory neurotransmitter glutamate such as the NMDA receptor and AMPA receptor are overactivated.
Excitotoxins like NMDA and kainic acid which bind to these receptors, as well as pathologically high levels of glutamate, can cause excitotoxicity by allowing high levels of calcium ions[1] (Ca2+) to enter the cell. Ca2+ influx into cells activates a number of enzymes, including phospholipases, endonucleases, and proteases such as calpain.
These enzymes go on to damage cell structures such as components of the cytoskeleton, membrane, and DNA.
Excitotoxicity may be involved in spinal cord injury, stroke, traumatic brain injury and neurodegenerative diseases of the central nervous system (CNS) such as Multiple sclerosis, Alzheimer's disease, Amyotrophic lateral sclerosis (ALS), Parkinson's disease, and Huntington's disease.[2]
Other common conditions that cause excessive glutamate concentrations around neurons are hypoglycemia[3] and status epilepticus.[4]
History
The negative effects of glutamate were first observed in 1954 by T. Hayashi, a Japanese scientist who noted that direct application of glutamate to the CNS caused seizure activity, though this report went unnoticed for several years.
The toxicity of glutamate was then observed by D. R. Lucas and J. P. Newhouse in 1957 when the feeding of monosodium glutamate to newborn mice destroyed the neurons in the inner layers of the retina.[5]
Later, in 1969, John Olney discovered the phenomenon wasn't restricted to the retina but occurred throughout the brain and coined the term excitotoxicity.
He also assessed that cell death was restricted to postsynaptic neurons, that glutamate agonists were as neurotoxic as their efficiency to activate glutamate receptors, and that glutamate antagonists could stop the neurotoxicity.[6]
. . . .
Excitotoxins in food additives:
The most well-known (to the general public) excitotoxic concern is the current debate over aspartame, also known as NutraSweet, and monosodium glutamate (MSG).
Approximately 40% of aspartame (by mass) is broken down into the amino acid aspartic acid (also known as aspartate), an excitotoxin.
Because aspartame is metabolized and absorbed very quickly (unlike aspartic acid-containing proteins in foods)[citation needed], it is known that aspartame could spike blood plasma levels of aspartate.[11]
Glutamate does not normally cross the blood-brain barrier in most parts of the brain without active uptake by transporters.[12]
Glutamate concentrations in the blood are normally higher than those in the extracellular space around brain cells.[12]
Neurotoxicity occurs when the exposure to natural or artifical toxic substances, which are called neurotoxins, alters the normal activity of the nervous system in such a way as to cause damage to nervous tissue.
This can eventually disrupt or even kill neurons, key cells that transmit and process signals in the brain and other parts of the nervous system.
Neurotoxicity can result from exposure to substances used in chemotherapy, radiation treatment, drug therapies, certain drug abuse, and organ transplants,
as well as exposure to heavy metals such as lead and mercury, certain foods and food additives, pesticides, industrial and/or cleaning solvents, cosmetics, and some naturally occurring substances.
Symptoms may appear immediately after exposure or be delayed. They may include limb weakness or numbness, loss of memory, vision, and/or intellect, headache, cognitive and behavioral problems and sexual dysfunction. Individuals with certain disorders may be especially vulnerable to neurotoxins.
The name implies the role of a neurotoxin although the term 'neurotoxic' may be used more loosely to describe states that are known to cause physical brain damage but where no obvious neurotoxin has been identified.
The term neurotoxic is used to describe a substance, condition or state that damages the nervous system and/or brain, usually by killing neurons.
The term is generally used to describe a condition or substance that has been shown to result in observable physical damage.
The presence of neurocognitive deficits alone is not usually considered sufficient evidence of neurotoxicity, as many substances exist which may impair neurocognitive performance without resulting in the death of neurons.
This may be due to the direct action of the substance, with the impairment and neurocognitive deficits being temporary, and resolving when the substance is metabolised from the body.
In some cases the level or exposure-time may be critical, with some substances only becoming neurotoxic in certain doses or time periods.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
After all that, remember that there are things to reduce the toxic effect.
One: treating the infection. (And PROBIOTICS are a must with this.)
Two: liver and adrenal support such as milk thistle, etc.
Magnesium and calcium are also vital and very helpful.
In the Biochemistry of Lyme article, way above, he mentions that licorice can neutralize the toxin. Just learn all about licorice first. It can actually increase the heart rate but, if used in a formula with balancing herbs, that effect can be minimized.
There is also a form of licorice called DGL that does not increase heart rate - and not everyone has increased heart rate from licorice. You can read more in the One Earth book noted below.
Also, licorice is not the only thing to help block toxicity. Elderberry is said to be another . . . and magnesium, especially.
Adrenal support, too, and will help the body handle the stress of all this better. Just some of the supplements that can help:
B-complex; especially Vitamin B-5 and B-6; Vitamin C; good EFA's/oils.
Ashwagandha; Cordyceps; Siberian Ginseng (this is not a true Ginseng as that is too stimulating); and Rhodiola (but, with caution in depleted patients as it can also be a bit too stimulating).
- uppper right of page, see search feature and choose from articles. You can search key words such as anxiety, adrenal, etc.
Although they do sell products at this site and, IMO, the have excellent research articles packed with good information and backed up with solid citations.
-
And, still in the vein of how to minimize anxiety and help support liver and adrenal function, you can read more about that and each of the herbs listed above at:
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed here do to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
mamam - oh, I am sorry if this touched a tender vein. So many patients are just dropped after short term and pronounced "done."
I am glad you do know to pursue this.
In the meantime, I wonder if Olive Leaf Extract (OLE) might fit into your budget ? I have just had a sharp decline in funds and am trying to figure out, if I could take only one, what would that be.
I'm thinking OLE.
However, as you are doing homeopathics, that might not mix and I hope your plan helps.
There are many ways to address this, I just wanted to be sure that if you still have symptoms, that you weren't told to forget it.
Also, since you work with a homepathic doctor, I'm sure you know about liver support, etc.
- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)
You can read more about it here and see customer reviews. He discusses anxiety - and everything else, too. This is one of the best books I've seen. He is very thorough. I feel empowered (rather than beaten down) by this book.
IMO, every home should have a copy for if they don't need it now, they may and it could offer prevention. So, if you want others to understand this, you might suggest they get a copy for themselves.
I guess for me the symptoms are weird, like I have a sudden hard feeling of like it's tough to breath. That my breath is really efforted or forced. That gets my mind going a bit and start thinking about dropping dead, heart attacks; etc.
Then I start checking pulse and timing it to see what my BPM is. If it's over 100 I begin to get nervous. Then i sometimes experience rapid heart beat and things start to go downhill fast because i start to get worried. Also within all this I can out of nowhere begin to have feelings of dread that I'm going to drop dead that second.
Often times there's feeling of nausea in there too
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Clint,
I would highly recommend getting on some anti-anxieties while you're treating the Bart/Lyme.
Bart herxes make you FEEL like it's the end of the world but it's just the antibiotics attacking the Bart. The Bart punishes you with die-off toxins that create tremendous anxiety.
The benzo family of meds helps hit the Bart the best. I took xanax during my Bart treatment and it helped that horrible panicky doom feeling while I was herxing.
There is no reason why you should be extra tortured mentally during this great time of suffering. You are not going to die, it just FEELS like it in your mind and heart that you are.
The xanax takes that feeling away. Please ask your doctor for a prescription and you will find the treatment to be a much smoother one.
I've had these symptoms. I let my Lyme literate doc
know about them and my cardiologist (who I see
every so often just to check on things. My Lyme doc
give me the antidepressant and anxiety meds just so
I can function. Still, two of my fingernails are
down to the naibed, oh my!
-------------------- RV Posts: 249 | From Healing in USA | Registered: Mar 2005
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Alv,
"BINDERS are very important also, the ones for metals and the one for toxins...WHILE I was killing to much , I was releasing to much of MERCURY and metals in the blood and even my left kidney shut down"
I am soooooooo proud of you!!!!!! Not adhering to this is a big problem holding people back and delaying getting well, if ever.
Best wishes to you and your Family.
Posts: 9834 | From Washington State | Registered: Oct 2000
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
up--I did a word search on impending doom and this thread came up.
My daughter is being treated for CSD (bart) and she has impending doom when she lies down to go to sleep. Is there something else I should be giving her besides the Bactrim? She had the anxiety prior to the meds, it came out a few weeks after the cat scratch, but first doc put her on amoxy which 2nd dr said wouldn't touch bart. Help! She sneaks into my room and sleeps on the floor and is so tired.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Medical Answer which I truly believe is the cause of many of our symptoms: Taken from Wikipedia
The limbic system is the set of brain structures that forms the inner border of the cortex. In an abstract topological sense, each cortical hemisphere can be thought of as a sphere of gray matter, with a hole punched through it in the area where nerve fibers connect it to the subcortical structures of the basal forebrain. The hole is surrounded by a ring of cortical and noncortical areas that combine to make up the limbic system. The cortical components generally have fewer layers than the classical 6-layered neocortex, and are often classified as allocortex or archicortex.
The limbic system includes many structures in the cerebral pre-cortex and sub-cortex of the brain. The term has been used within psychiatry and neurology, although its exact role and definition have been revised considerably since the term was introduced.[3] The following structures are, or have been considered to be, part of the limbic system:
* Amygdala:[4][5][6] Involved in signaling the cortex of motivationally significant stimuli such as those related to reward and fear in addition to social functions such as mating. * Hippocampus:[4][5][6] Required for the formation of long-term memories and implicated in maintenance of cognitive maps for navigation. * Parahippocampal gyrus:[5] Plays a role in the formation of spatial memory * Cingulate gyrus:[4][5][6] Autonomic functions regulating heart rate, blood pressure and cognitive and attentional processing * Fornix:[4][6] carries signals from the hippocampus to the mammillary bodies and septal nuclei. * Hypothalamus:[4][6] Regulates the autonomic nervous system via hormone production and release. Affects and regulates blood pressure, heart rate, hunger, thirst, sexual arousal, and the sleep/wake cycle * Thalamus:[4][6] The "relay station" to the cerebral cortex.
In addition, these structures are sometimes also considered to be part of the limbic system:
* Mammillary body:[4] Important for the formation of memory * Pituitary gland:[4] secretes hormones regulating homeostasis * Dentate gyrus:[5] thought to contribute to new memories and to regulate happiness. * Entorhinal cortex: Important memory and associative components. * Piriform cortex:[6] The function of which relates to the olfactory system. * Fornicate gyrus: Region encompassing the cingulate, hippocampus, and parahippocampal gyrus * Olfactory bulb: Olfactory sensory input * Nucleus accumbens: Involved in reward, pleasure, and addiction * Orbitofrontal cortex: Required for decision making.
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Did you hear that "swosh" sound? That all went right over my head. ;-)
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Inflammation in the brain, reduced blood flow, and possibly toxicity from the infection itself or the after-effects of killing it.
It's not the patient's fault, at all.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
I think it's probably a mixture between pro-inflammatory cytokines and toxicity.
Immune cells produce cytokines that act on CNS and immune cells respond to signals from the CNS. Can you say vicious cycke?
And then you have things like adrenal dysfunction and/or insufficiency or hypoglycemia that alert the CNS.
And on top of this, if you had very scary panic attacks, you may worry about the next one. This is counterproductive, and helps keeps the CNS in high alert mode.
I previously had no idea what anxiety/panic was before becoming ill. They used to last many hours or days (until sedation in ER). There was nothing more scary, and there was really nothing I could do about them.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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Remember to Smile
Unregistered
posted
Clint31, I read thru this long thread and am stunned others only discussed bartonellosis. Your symptoms are from a Babesia infection! Yup, the nausea too.
I'm NOT a doctor. I have LBb, Bart, and babesiosis and am in treatment with an experienced, successful, wise & kind LLMD.
Clint and others, you don't need to be scared to death; you need to be aware enough to take appropriate action, NOW. Get THE BEST ILADS-active LLMD you possibly can. Your life depends on it. You won't need any retirement money if you can't make it to 70.
Babesiosis can be fatal to the elderly or people without a spleen. Bartonellosis can be fatal. One of those causes heart failure (Bart, if I recall?). Babesiosis may be linked to esophageal cancer. Melanomas are linked to fibromyalgia, which is brought on by the sleep deficit created by untreated neuroborreliosis. The Lyme Bb spirochetes are found in the bladder of animals infected with Borrelia. Appears the spirochetes enjoy swimming in bladders...
In order to get into long-term remission from LD, we must first treat Babesia, then Bartonella, then Lyme. Sure, take some abx to slap the Lyme down, but if you've got uncontrolled babesiosis you won't be able to heal from bartonellosis or neuroborreliosis.
Other LymeNetters are very familiar with Dr K's protocols for treating the sickest of the sick. I'm not well-versed in Dr K's treatments, yet I heartily agree with his premise to clear out parasites and toxins first.
Babesia are protozoans. That's a "higher life form" than Bartonella species. Clint31 has multiple babesiosis symptoms, so that's a parasite to treat!
In the USA today, only LLMDs will intelligently evaluate your whole health situation and work to get all your symptoms resolved. "Infectious disease specialists" who aren't LLMDs remain unaware of the rising Babesia epidemic.
The Lyme spirochetes host house parties and welcome all kinds of unsavory pathogens, making sure all are comfortable and well-fed while the house (your body!) gets trashed. Yet the house may still look ok to busy neighbors glancing at the facade...
I urge people with Lyme-like symptoms to become educated about the spirochetes as well as the synergistic co-infections. We must be advocates for our own health.
Please do a search above for "babesiosis" and other terms. Many helpful threads exist already, and you can add in your questions &/or experience.
Wishing you all the very best for your individual situation, Remember to Smile
p.s. - I appreciated Tincup's rabid raccoon analogy for illustrating a point.
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