Been treating my Lyme dx for 7 weeks (IV Rocephin/Orals) without improvement...I know 7 weeks is NOT very long, but cannot afford more IV. I have a clinical lyme/bart dx...Igenex Lyme test had 12 bands showing IND or +.
Is there anyone else with a truly positive (Igenex/Labcorp etc) Lyme test that currently has ONLY neurological sx's?
Mine are only neuro (nerve pain, tinnitus, insomnia, minor brain fog)...but all of this came on a few years after sx's others describe here.
Just truly confused as to what is causing my sx's since I am otherwise pretty healthy, I am NOT sick, just something has caused problems in either my central or peripheral nervous system and still not improving.
Thanks for any thoughts, experiences? Take Care, MBB3
Posts: 247 | From The Country | Registered: Oct 2007
| IP: Logged |
adamm
Unregistered
posted
I was like that for awhile, and nothing's helped
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
U r right 7 weeks isnt that long. Just so you know it took me 7 weeks (of rocephin)before i started to see any improvement at all.
I think at least most of my symptoms now (probaly all of them - there is quite a list) are some part of my nervous system not working right.
I have lyme/babs. Some things I can definetely say are the babs for me (particularly the stuff that seems to come from my autonomic nervous system misbehaving).
I havent had any expereince dealing with trying to get rid of bart but if you ask others with it i think i have heard it can be stubborn.
I hope you find someting that helps. If you can't do iv anymore there are still orals or bicillin injections.
posted
What abx have your tried for the Bart? Many people say Levaquin has helped w/ their Bart issues, but has some side effects.
Have you been tested or treated for babesia? I have had a lot of neuro issues from babs.
Plus, like you said seven weeks is not long. I have been at it for almost two years! Not to scare you, but it takes a while to start feeling better.
Posts: 323 | From Michigan | Registered: Sep 2006
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
9 months, slight improvement, all neuro. Well, not all, but the rest of the stuff is easy compared to the neuro.
Still looking for my magic bullet....I;ll find it, you too.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Hubby's main issue is also neuro...major brain fog.
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Yep, most of my symptoms after the initial acute infection have been neuro, not arthritic. Doxy helped the brain fog.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
Lyme and Bart. 95% neuro. 10 months of treatment. Neuro stuff 95% gone! Lesions on brain also resolving per MRI...
Posts: 43 | From Chicago | Registered: Mar 2008
| IP: Logged |
posted
My lyme symptoms have been probably 80% neuro, and 20% rest of body system wide. I have some occasional arthritis, and rotating shifts of gerd, chest, etc.. but most of my crud has been brain related..
Posts: 514 | From . | Registered: Apr 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic