I guess I will go ahead and ask if you tested positive for Bart, what are you symptoms?
I hope my LLMD is on the right track...
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Tomorrow is my first appt with a LLMD. It'll be interesting to get their outlook on possible co-infections.
It's definitely a hard leap of faith to make to take powerful medications with zero findings on test results due to a "clinical Dx."
I guess all you can do it hope they are right!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I also have a clinical diagnosis. Have been in treatment for 10 weeks.
I feel very confident with the clinical diagnosis. I have all the symptoms, have been ill for over 2 years and my LLMD says I present with "classic Lyme".
I have no doubt of the diagnosis. It just can't be anything else, since everything else has been ruled out over the last 2 years.
If you trust you LLMD and have faith in his knowledge, then you will feel much better about your clinical diagnosis.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Does anyone know where I can find a list of symptoms of chronic babesia and chronic ehrlichia?
-------------------- Just because it' s not nice doesn' t mean it' s not miraculous. --Terry Pratchett Posts: 121 | From Nazareth, PA | Registered: May 2008
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posted
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue Arthralgias Myalgia Drenching sweats Headaches Emotional lability Depression Dark urine Splenomegaly Dizziness Nausea and vomiting Cough Dyspnea Fever Chills Hepatosplenomegaly Jaundice Malaise Shortness of breath Bleeding tendencies, bruising Thrombocytopenia Hemoglobinuria Hyperesthesia Pulmonary edema Encephalopathy Low to normal range leukocyte counts Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Thank you for posting symptoms of babesiosis!! It helped me too. I just found out today that my 7 yr old has a coinfection with this nasty protozoa.
And now I know why she has been complaining of several of those symptoms. I just assumed that it was either from Lyme or all of the meds.
THANK YOU Lymetutu!!!!
Melissa
Posts: 12 | From Northern Jersey | Registered: Jun 2008
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"Even though I posted this information quite awhile ago, I'm posting it again to be included here.
I got these from an LLMD and thought they might be helpful to some. These symptom check-lists do not necessarily list all of the known symptoms associated with Bartonella and Babesia."
Bartonella/Babesia Symptom Questionnaire
Bartonellosis
Common symptoms of bartonellosis include:
___Fatigue (often with agitation, unlike Lyme disease, which is more exhaustion)
___Low grade fevers, especially morning and/or late afternoon, often associated with feelings of "coming down with the flu or a virus"
___Sweats, often morning or late afternoon (sometimes at night) - often described as "thick" or "sticky" in nature
___Headaches, especially frontal (often confused with sinus) or on top of head
___Eye symptoms including episodes of blurred vision, red eyes, dry eyes
___Ringing in the ears (tinnitus) and sometimes hearing problems (decreased or even increased sensitivity - so-called hyperacusis)
___Sore throats (recurring)
___Swollen glands, especially neck and under arms
___Anxiety and worry attacks; others perceive as "very anxious"
___Episodes of confusion and disorientation that are usually transient (and very scary); often can be seizure-like in nature
___Joint pain and stiffness (often both Left and Right sides as opposed to Lyme which is often on one side only with pain and stiffness that changes locations)
___Muscle pains especially the calves; may be twitching and cramping also
___Foot pain, more in the morning involving the heels or soles of the feet (sometimes misdiagnosed as plantar fasciitis)
___Nerve irritation symptoms which can be described as burning, vibrating, numb, shooting, etc.
___Tremors and/or muscle twitching
___Heart palpitations and strange chest pains
___Episodes of breathlessness
___Strange rashes recurring on the body often, red stretch marks, and peculiar tender lumps and nodules along the sides of the legs or arms, spider veins
___Gastrointestinal symptoms, abdominal pain and acid reflux
___Shin bone pain and tenderness
Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called "Cat Scratch Fever."
Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats).
Bartonella can also be transmitted by ticks that transmit Lyme Disease. In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms.
It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is "Bartonella-Like Organism" (BLO) that is yet to be fully identified.
While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families.
_________________
Babesiosis
As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:
___Chills
___Fatigue and often excessive sleepiness
___High fever at onset of illness
___Night sweats that are often drenching and profuse
___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)
___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"
___Depression
___Episodes of breathlessness, "air hunger", and/or cough
___Decreased appetite and/or nausea
___Spleen and/or liver enlargement
___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)
___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
___Joint pain (more common with Lyme and Bartonella)
___anxiety/panic (more common with Bartonella)
___Lymph gland swelling (more common with Bartonella and Lyme)
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I hear a lot of people say their foot pain went away after Babs treatment but I see no symptoms listed for Babs that talk about feet!
I hear a lot about drenching sweats. I never had those. I also hear a lot about sore feet in the morning with Bart but mine are sore all the time, not just morning.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm very surprised my LLMD didn't clinically Dx me with Bartonella after reviewing this symptom list. I have 80%+ of them!
Someone on this forum suggested this is a possibility. I tested negative through Quest. I'm confused why any doc tests through Quest if no one in the world ever shows a positive. lol.
Sensitivity of these tests is very confusing to me. I don't understand how a reputable firm like Quest would or could produce tests so unreliable considering their resources.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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