posted
For those who have already read this, bear with me. This is a cross post from general and the success stories sticky.
My 5 year old daughter is probably going to come off of mepron/zith after 18 months of treatment after her next visit to her LLMD.
Yesterday, as she was keeping me company for my IV infusion she was chattering away about how much she is looking forward to turning 6 and 7 and 8 and 9 and 10 and 11 and 12 and 13, etc.
WOW. This is MUSIC to my ears. She is looking forward to life. Two years ago at this time, she wanted to die. At three years old she wished she was dead and said so every day. Her life has been saved.
Here is the list of RESOLVED symptoms: fatigue, headaches, joint pain, stabbing eye pain, chest pain, abdominal pain after every meal, burning urination for every pee, major constipation, OCD behaviors, bi-polar, depression, suicidal thoughts, self-hatred, anorexia, night sweats, unexplained fevers.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
That is so great to hear. I wish her continued good health (and you as well)!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
How wonderful for your daughter and your whole family! A saved life. God bless all of you.
Joyce
-------------------- Dallas caregiver for husband Steve who has Bb, Cpn, Mpn, EBV, CMV, other Herpes family viruses Posts: 51 | From Dallas, TX | Registered: May 2008
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Alv
Unregistered
posted
Wow ..I am so happy for you and your Daughter.
I am waiting to hear that ONE day for my 8 years old son.He keep saying I hope that I will be done with LYME and company at my 4 rth grade...while he was suacidial 1 year ago.
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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tickbattler
Unregistered
posted
Great job on healing your daughter! It is no snall feat considering the state of our medical community.
Thank you so much for sharing. Your post gives me hope for my children who are currently being treated. I may print this out and show it to my pediatrician. She listens to my stories about our family being treated but still does not buy into the lyme thing entirely. (We have an LLMD for the kids who is treating them.)
I hope we will be in your shoes in a year from now!
posted
Congratulations, I'm very happy to hear this!
Your post gives a lot of hope to us young ones. I'm a struggling 19 year old lymie.
Thank you for sharing and giving us something to actually celebrate, that doesn't happen often enough!
Posts: 710 | From West Coast | Registered: May 2008
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posted
Thank you all for your replies. I wrote this post because I want people to know that things really can get better.
Her progress has been absolutely amazing. And just for the record, many, many disbelieved she and I that anything was wrong. We went doctor to doctor. Her preschool teacher told me I should stage a call to a doctor saying we found the answer and then just feed her food coloring from an eye dropper. Her father told me I should just accept her blue personality.
She used to play a game with her dolls where the mommy doll took the baby doll to this doctor and that doctor trying to find out what was wrong. It broke my heart and I doubted my own sanity when everyone said she was fine.
BUT I KNEW SOMETHING WAS WRONG!!!!! TRUST YOURSELF. Someone asked me how do you recognize fatigue in a child. I say do the bakery test. Park 1 block from the bakery and offer your child a cookie if he/she walks there. If they can't do it or they can't do it without crying, they are sick.
After she started treatment, her teacher told me that she was like a different child and my husband said with tears in his eyes "I feel like I'm just getting to know my daughter".
Once I got her into treatment, I fell apart, became horribly ill and now I've been on orals 1 year and IV nine weeks. Her doc (dr. J) told me that he sees that happen alot--mommy or daddy is holding it together to help their kids, but finally admit their sick too.
Thank you lymenet posters, you have all been a tremendous resource through this difficult experience.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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