posted
I am going to be starting on IV Rocephin. I barely made it to my LLMD today thats how sick I am... I needed help walking in and felt so bad I wanted to be admitted right then... Things are starting to get really bad and REALLY scary for me.
I am getting put on a new regime and they are going to be talking with my insurance for a picc line... WHich I am not too happy about Especially the rocephin part that has a HIGH relapse rate... ugh!
What else am I going to do..
SO I am starting/adding
Septra malarone (suspected babs) Zith Plaquenil samento gluthione artemesiae Than adding IV rocephin....
I am really nervous, disapointed and frustatrted with the state of my health... I can barely talk, I am slurring words... my head is so full of pressure and pain,I am off balance and feel like I am constantly in motion... I am NOT doing well
Does anyone have any positive experiences with Rocephin? I ahvent really found anything positive about it...
It was a cruel wake up call today when i was told... "you will NOT be cured" this is a treatment to try and get you back on your feet... Talk about crying my eyes out all day... I am just a big mess...
I look at my kids and wonder if they will ever know me...
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Shandy,
Not everyones experience w/ IV Rocephin has been bad. I had some positive things happen, just not to the symptoms that bothered me the most.
You should search and read CaliforniaLymes very encouraging posts about the wellness that she achieved on IV Rocephin.
Or Catskillmamala and Mountaingirl.
Unfortunately it is all a crap shoot, we all have different experiences.
Try this: Tell yourself that IV Roceph is going to be your magic bullet, that It is going to get you up and going again. Your fear (which is understandable)and doubt is already winning before the process even begins. BELIEVE it's gonna work and I bet that it just might!
Now, after that, I gotta tell you that I was scared too, but from experience, I wish that I would have viewed the situation as I portrayed it above.
Hope you start feeling better sooner than later, Feelfit Posts: 3975 | From usa | Registered: Aug 2007
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posted
I did 4 years of orals with little improvement.I then was put on IV rocephin for 8 momths and that is what got me over the hump.I am far from being healthy but because of the IV I now am more functional and can tolerate this better.It wasnt until months after the IV that I started to feel better.I couldnt handle all the meds you are on,IV was enough for me.IV was easier than taking orals.
Posts: 308 | From new bedford,Ma. | Registered: Dec 2004
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posted
My husband did a year and a few months on orals and didn't really make any progress. He is making great progress on IV Rocephin and IV Flagyl. It's also been a nice break for his digestive system.
We had to hop through some hoops to make the central line happen but I saw it as the opportunity that it was. Don't close your mind to it as it might be the best thing you could have done.
Posts: 984 | From San Diego | Registered: Nov 2006
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posted
I spent one year on orals. I did really well with them and got to 60% back. I just finished 11 full months of Rocephin IV and it got me to 90%.
I am now at the gym six days a week swimming and working out on the elliptical.
Two years ago this time I was being tested in ALS clinics here in San Francisco.
There is hope. Relapses with Rocephin happen but I personally only know of one woman it happened to. She was not on any other antibiotics with the Rocephin IV.
I was always taking either flagyl/tindamax or azithromyacin while on it. I think that might be the difference.
While I'm only one month off Rocephin IV I am hopeful that a relapse is not what I have to look forward too.
I found it easier than taking orals.
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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![[Frown]](frown.gif)
Especially the rocephin part that has a HIGH relapse rate... ugh!
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