Topic: hve other dr's "dropped" you because of lyme?
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
ok, maybe i'm paranoid, but this is not like my primary.
i went to see him about two weeks ago because i was due for a cholesterol check. i told him about my sore knees also.
he asked what prescriptions i was taking and i told him. he asked why and i said i have lyme and i'm being treated. he didn't say anything but looked a little funny.
so two weeks go by and nothing, not a word. so in finally call for cholesterol check and his nurse returns my call and says all bloodwork is normal, bad cholesterol is 157 and good is 47 i think. or maybe i have it backwards, but anyway
she says no problem, everything normal, no need for medication, just go on as usual.
i checked and my levels are borderline high. well he put my husband on meds and mine was higher than his.
i can't put my finger on it, but his attitude was funny and his nurse's tone of voice was kind of like, "you're bothering me, just get on with it".
i feel like he was po'd because i told him i was getting treated for lyme and he said "there is no lyme in texas". i definitely got the impression that he thought "well why am i treating you if you're going somewhere else."
so has anyone experienced a doctor, either primary, ob/gyn, or anything, that has treated you differently because you told them you were getting lyme addressed...
i've been going to him for probably 15 years.
i hate to find a new primary as there aren't that many good ones.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
id bet nearly all of us here have experienced this.
its why we come HERE
sorry about it... you have a llmd, he will take care of you.
alot of us end up getting all our rxs from our llmds as our former primarys think were nuts..
welcome to lyme.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I've been dropped by many doctors and treated cooly by others due to the complexity of my case. Believe me, they can be very clear when they don't want your business.
This doctor may not be Dr. Warmth, but it does not sound like he's dropping you. Even for regular patients with easy cases, they are not overly cheery in the process of giving test results.
He may knows you would not do well with statins anyway, they have their risks. It's easy to control cholestral of modest highs with diet. You really don't want what he'd give you anyway.
And, high cholesterol is also a result of an overwhelmed liver, so there are better ways to work with it than statins.
A man's normal and a woman's normal test scores may not be the same thing. It's the ratio of good to bad that matters most, not so much the numbers. You can get a copy of the test sent to you.
If you find the ratio, you can probably search at the site of the American Heart Association for the women's chart and ratio normal figures.
See how the Heart Association charts compare with yours and go from there.
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[ 08. August 2008, 09:20 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yes, I had a bad experience with my GP this week. I am having some either "relapse" or "herx" issues, but it feels like when I first got sick before diagnosis.
It just totally sucks to live in OK where you have to travel 6 hours to see an LLMD in another state. My head had been hurting for 2&1/2 weeks and I felt sick and wanted to be seen, and I was told that "I look good, and many more look a lot worse"......
He's the same doctor that ordered the MRI that showed numerous brain lesions, and actually ordered the IgeneX western blot (by my request) that was CDC positive!
I didn't even tell him about the facial and arm numbness, and my that my feet are vibrating again. I guess running a temp and showing signs of a sinus infection were just a waste of his time (AND MINE)....Sometimes I get neurological pain in ears, head and throat, I was mainly trying to find out if there were actual signs of infection.
I realize that no doctor in my state even comes close to understanding all of this. It's sad that some of us have to put up with this arrogant condescending attitude from doctors that know a lot less about the disease than we do.
posted
I have a hard time finding and keeping doctors.
I was released from the hospital in March with bilateral pulmonary embolisms, and a referral for a hematologist. It would have been the fourth for me... For whatever reason, they're all incredibly scared to take on my case.
Hoping that now that I am off of the blood thinners I can find someone willing to help. I know it was a bit much for a nurse to hear "hi, I need to schedule an appointment with Dr. _____. I was just released from the hospital with bilateral pulmonary embolisms, encephalitis secondary to Lyme Disease, oh, and I'm only 26."
I do really need a hematologist that's not afraid of me. Grrr...
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
Randibear, isn't this the same doc that told you your entire system is sterilized and he was concerned about you taking anything?
Maybe he thinks the meds are riskier for you in your current state than the borderline high cholesterol.
Posts: 21 | From Texas | Registered: Jun 2008
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posted
My primary totally dumped me after I got Lyme. For months before he dumped me, his tone changed and he was definitely treating me like I was crazy. After he dumped me, I requested my files with all of his notes, and he had written derogatory comments and he also REMOVED MY POSITIVE IGENEX TEST FROM THE FILE!! (there was a negative test still in there with positive bands).
So yeah, they get weird.
What about looking into cholestyramine for cholesterol but also to remove the Lyme neurotoxins?
Posts: 929 | From Massachusetts | Registered: Oct 2007
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