posted
I was hoping that somebody might be able to help me. For 3 years now I have had severe chronic leg pain that is now in my arms as well.
In 2005 I saw a neuro and they found a B12 def. Had continuing B12 shots with no relief.
Then refer. to a Rheumotologist, they found Vit. D def.and Raynaud's phennom. Was on mega dose replacement (50,000 IU for 2 weeks and now maitnenance of 1000IU per day)
I was then ref. to a endocrinologist - they found Hasimotos and osteoporosis (I'm 32) but still no answers.
I was ref. to a neuro in Houston and found a spot on my brain and ordered a spinal tap. The spinal tap was normal. I have had several MRI's and nothing showed up.
I am at my wits end and feel absolutely defeated! It is too the point that I can not walk up stairs, cannot stand for long periods of time (my feet swell) and I if I sit for a period of time I get very stiff.
Is there anyway to have Lyme disease and have a normal spinal tap? I don't know what to do and I just want my life back. Thank you in advance for any advice!
[ 09. August 2008, 03:44 PM: Message edited by: picassogirl303 ]
Posts: 7 | From Pflugerville,TX | Registered: Aug 2008
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
HI picassogirl303
I live in Austin and got infected with Lyme and Babs 21 years ago at the location of 183 and Breaker Lane -(Stone Lake)
This is about 5 miles from you --
If you want I will send you my phone number and we can talk -I type slow so the phone is better for me-- Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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adamm
Unregistered
posted
I think something like 90% of Lyme patients have normal spinal taps.
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posted
Groovy2 - I would like to talk over the phone. After 3 years of everything being "normal" it is getting harder and harder to pick myself back up every time. I recently lost it during my EMG and Nerve Conduction test...again it was normal. Please email me and thank you for the help!
Posts: 7 | From Pflugerville,TX | Registered: Aug 2008
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi picassogirl303
I am sending you my phone number in a Priviate Message -
At the top right of screen will be a red flashing private message link
Click on it to get message--
I am headed to the pool at the moment but you can call at 430 or so and I will be home--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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bettyg
Unregistered
posted
picasso, thanks so much for breaking up your post; i can read it now.
boy, you've gotten the typical runaround! white matter on the brain can be lyme and/or MS.
have you had a western blot igm and igg blood test done and sent to our no. 1 lyme diagnostic lab, IGENEX IN CALIF?
also, have you had any co-infection testing done? we recommend FRY LABS, ARIZONA for that as it is cheaper than igenex and quality is as good.
click on my link below...newbie's package;
copy it so ms word, and then use EDIT, FIND, and type in IGENEX
hit enter until you come to very detailed info. and read or PRINT IT OFF..
also, do an EDIT, FIND, and type in symptoms list
print off the lyme, and CO-INFECTION LISTS OF bartonella, babsiosa, and erlichia .... circle or check mark all the symptoms you have!
let us know how many symptoms you have of each to get more member input.
best wishes! i was jerked around for 34 years MISDIAGNOSED by 40-50 drs. in my 38.5 yrs. of lyme.
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