posted
So I've been thinking of other ways to help my neck pain. So today I took 2 Neurontin like the bottle says and I took a Norco with it. I feel like my neck pain has minimized quite a bit, however, I feel like I am going to vomit, my vision is blurry, and I feel really unsteady.
I don't know what is worse? I don't like feeling dizzy and nauseated. I did a drug interaction checker and it didn't flag it, it just said don't drive (which I wouldn't because I can barely type!).
I don't like feeling messed up or weird or different but I walk around in tears because of my neck pain.
Maybe if I could just lay in bed but I have a 2 year old. It's almost like I am damned if I do or damned if I don't.
Does Neurontin make you feel weird or is it the Norco? I've taken them both at different times and didn't feel that bad. They both make me sick to my tummy, bad. But right now I'm REALLY sick to my tummy but my neck isn't hurting near as bad.
Should I try and vomit it up or should I just wait for it to pass? I don't know what to do. I just want to be healthy. That's all. No more pills, anything. I just want to play with my kids and for me and my husband to get along. I am so sick of me being sick and hubby being a total jerk to me to the fact that I have to go to my mom's house.
My life is nothing like I thought it would be. I feel like I am a smart girl but I guess I married the wrong person and then we had a child together, and we are stuck. Now, I am sick and he thinks I will be completely cured in 6 weeks. He just keeps saying that and saying that. When I say that I hope so or tell him it might take longer, he thinks I'm being negative and starts yelling...in front of our kids.
I don't want my kids to look at me as a sick person. I'm slowly getting sicker and it's getting harder for me to do the things that make me feel like I do as much as my husband does because he's the one that goes to work.
He says "I take and take and take" and give nothing back. I still cook probably 5 nights out of the week, I don't vacuum as much, the clothes are always clean, but I just do things slower now.
He throws that in my face. He even told my mom he wishes someone ELSE could pay for my treatment. He told me that he was running out of money, he's not rich, and if I don't get better, then I'm SOL.
What can I do then? Stay sick? I can't stay sick. I can't. What do people do?
I have a feeling that because I'm talking about my personal life which to ME is TOTALLY related to Lyme, but it might be "Taiilz-ish" and I'll be banned. I don't have psychiatric issues, this is my life. Almost everyone has had marriage issues at some point I'm sure. And at some point I think friend and family think if you don't get better quickly then you have issues.
Before this disease, I was a vibrant young mother and wife. Spotless house, running errands, out shopping with my mom, playing with my kids, and going out with my husband. We didn't even celebrate our anniversary because I was too sick to go out. We haven't acted like a young married couple in ages. All we do is scream and fight and it makes my symptoms flare up.
I had to go to my mom's house and I took my pulse with her blood pressure machine and it was 161.
Too much fighting, too much pain, I had a semi normal life before. Now it's just a wreck. The only thing that keeps me going is my son and my mom.
Sorry but I had to get some of this out.
Ban me if you wish. This is my life, not some psychotic episode and I'm pretty good at putting stuff "in the box" and dealing with it.
I'm positive that I will get better, but my husband doesn't understand that for some, and actually most people don't get cured in 6 weeks.
Does anyone else here have a spouse, friends, or family, who just don't get it. Hubby knows I'm in pain, sometimes he seems like he gets it but I think he's going to divorce me or something if I don't.
It's hard to "pretend" that you aren't sick. What do you guys do during the day? What do you do all day? Please share. I feel like laying in bed and doing my protocol and that's it. But I'm a mom and I can't. And my little Gavin is in his "terrible twos" that means lots of fits, and me having to get up every .5 seconds to see "what's the matter now". lol.
Okay I'm done. Love you guys, sorry for the rant. I don't have friends down here. My hubby wanted to move down here to be close to HIS family, my mom and brother did end up down here but "who would have guessed", my mom is doing a protocol of her own, kinda like chemo for Hep C and my brother has a mental illness, so I can't dump on them too much.
I used to be the rock of the family, mine and my married family, now I just feel like a liability. That's what my husband calls me.
Thanks for letting me get it out. Yes, I have talked to a councilor...but had to stop because Lyme treatment is more important than that. It's really expensive but I did learn a lot when I went. Hubby really needs to go. I went to the councilor before I knew I had Lyme because every doctor told me it was in my head.
Now, of course, I know there's probably bacteria in my head but my pain isn't just in my head. Ugh.
And to think most of the world doesn't even know about how terrible and complex this illness is.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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posted
I hear ya on the neck pain. One of my biggest problems. However, I do not treat it with drugs, but with PT. I go once a week, and also have stretches/exercises that I do at home. It gives me quite a lot of relief. My PT has always said that my head is screwed on too tighly and she does what she can to loosen it. Release the knots.
You haven't said exactly what kind of neck pain, but a good PT can do wonders. Is it just the neck or neck and shoulders?
Doing nothing or basically lying around only aggravates the situation. Use it or lose it. Just doing nods, etc. loosens up the muscles. I take plain old asprin for the inflamation.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Sending you big hugs!!
The neck pain is horrible, I know.
But the other pain you are experiencing - the loss of normalcy - that's worse, in a lot of ways. I'm sorry you're hurting, I've been there, too.
One suggestion, straight from my super-supportive, very cool guy, is this book for your hubby: "Beyond Chaos: One Man's Journey Alongside His Chronically Ill Wife" by Gregg Piburn.
It is not specific to Lyme (although his wife may very well have Lyme), and it is not written for or about the sick spouse. It is for the well spouse, and it gave my husband a freedom to voice and articulate his feelings in a healthy, sane way.
And reading it gave me a better understanding of his feelings, too.
Overall, it helped us to learn to communicate about how this illness is impacting each of us, our family, and to support each other better.
My LLMD now recommends this book to spouses of her patients.
Not sure if this would be helpful for you, but wanted to offer the suggestion...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
What is "Norco" ?
ohhh... I found it:
Norco
Generic Name: acetaminophen and hydrocodone (a SEET a MIN oh fen and hye droe KOE done)
Once in a while this may be okay, but it's best to ask a doctor.
Acetaminophen is VERY hard on the liver. And the hydrocodone can upset the lining of the stomach. Be sure to eat some bland food - that might help.
Also, driving should be avoided while on this as it can slow decision time.
I hope you find what helps. I hope you feel like you can ask your doctor.
Mixing any meds such as Vicodin and Neurontin can be risky, even if they don't show up under drug interactions - as with the abx also in the mix, it would be hard to say.
If you have questions, please ask your doctor for a better way to address the pain. He needs to know what is going on so as to better address it.
--
The book Cactus recommends sounds very good. Chaos. Yeah . . . Nessa, you've been thrown into another whole new world.
This will get better. You will find a normalcy. In the meantime, breathe. It's good you are searching for answers.
As for managing all this, I hope you can find LL counselor to help you put this in order - your thoughts and feelings - as it is a lot to get together.
I'm curious, though, is the magnesium and B-6 no longer working? You can take magnesium to bowel tolerance and then back down a bit. It takes a lot, far more than the normal daily requirement.
I am so sorry for all that you are going through. Especially the family problems. I can't see the banned thing. You need a hug! I hope we can be some comfort to you- you deserve it.
kpa
Posts: 56 | From Virginia | Registered: Jun 2007
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posted
Thanks everyone, my hubby takes about an hour when he has to do his "business" in the bathroom, so maybe when we get money I will get it and put in in the pretty magazine box/rack. Thank you so much for the suggestions and hugs. I ran into ANOTHER crappy situation and I was in tears. I'll probably post about it later.
It seems that nothing ever gets good. However, I do start my IV for sure with a very cool girl, she talked to me on the phone and I wanted to start Thursday and she said that she could already tell that we would have a good vibe and we would get along so please start Friday, I had the same good feeling about her.
So, let's pray this Rocephin takes this pain away, baby!!!!!!!!!!! I'm ready!
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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posted
I am so sorry that everything seems to be falling apart. The good news is that you WILL get better because now you know what you are fighting.
I think this whole thing is stressful on the best of marriages, especially when there are young children involved. SORRY MEN for the following comments, but:
Men are easily spoiled by us taking care of everything around the house including the children. All these things are easily taken for granted and aren't truly appreciated until, for instance, there are no clean socks or underwear.(although it sounds to me like you were still doing all that)
My husband tried to be supportive, but all of it would wear on him. It wasn't until he started having his own symptoms that he really "GOT IT". I just felt too bad to care if my floor needed to be mopped. Plus, I was spending a lot of time going from doctor to doctor and working and taking care of my son...something had to give and yes,,,it was the housework for me!
I truly think that your situation is not unique (w/lyme) and we can all relate to it. He can't understand what you are going through and just sees that he is probably having to spend more money and do more around the house. Maybe he doesn't handle stress well also??
It is a good idea to use this forum to vent and talk about symptoms, etc. I have said that my whole experience has taught me more about the people around me than it did about myself. It surprised me who supported me and who "disappeared".
Stay strong and know that you are doing all you can do to be healthy again. Take one day at a time and don't try to solve everything all at once or you will become overwhelmed.
I'm sorry you are having such a rough time. I just wanted to mention that my LLMD says it's not good to start IV meds on Fridays. If you have a problem, it may be hard to contact your LLMD on the weekend.
I hope the IV works for you!
Peggy
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Nuerontin should be started in small doses and over time slowly work up. You likely took too much, unless you have been on them awhile.
Tell your husband this is a "disease" not strep throat and have him read BASIC INFO at: www.ilads.org time for a chronic lymie takes 1-5 years.
I have been at this 2 years, with so much pain in my entire body most would have jumped off a bridge by now...but I believe I will be well and hope keeps me going.
Hope you have a break soon for awhile, this is not an easy disease to deal with and we all spill plenty of tears.
posted
Gosh Nessa I'm so sorry your husband is acting that way. My husband acted about like that also until he saw the Under Our Skin video. He is a LOT more understanding now. I think you both should see a councelor together if that is at all possible. *hugs*
Wish I could help on the drugs part..but I've never taken either. Hopefully some of these others have helped your fears with that Dawn
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Nessa, Do NOT worry about being banned, nothing about your post was "Tailzish" at all. It was from the heart, sincere, and you opened up a lot. I'm sorry you aren't able to see a counselor and do that on a regular basis.
Please have your husband watch "Under Our Skin" with you. Do you have it? If not, pm me, if money is an issue maybe I can loan you our copy.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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![[Frown]](frown.gif)
I just want to be healthy. That's all. No more pills, anything. I just want to play with my kids and for me and my husband to get along. I am so sick of me being sick and hubby being a total jerk to me to the fact that I have to go to my mom's house. 
![[Smile]](smile.gif)
Thank you so much for the suggestions and hugs. I ran into ANOTHER crappy situation and I was in tears. I'll probably post about it later. 
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