LymeNet Flash: pcp said; you need to get back on CPAP to eliminate fatigue!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » pcp said; you need to get back on CPAP to eliminate fatigue!

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Topic: pcp said; you need to get back on CPAP to eliminate fatigue!

bettyg
Unregistered

posted

it's been 3-4 months since seeing my pcp; so he had 6 blood tests done on me this week.

A1C, 3 mo. diabetes check down to 6.9 from 7.2!! he's still NOT thrilled, but it's down again finally!

chloresterol still up...bad especially.
triglicerides 200....were 300 at one time so i remarked i have improved tremendously.

10 lb. weight loss only since he started around 1 yr. ago.

Betty, "are you sleeping?" NOPE, my days/nights for 2 solid years have been turned around.

any new sleep meds out there; yes, but they will make you worse especially since you have SLEEP APNEA!!

are you using cpap? no; i tried it for several months on several different machines. did NOT help me at all feel refreshed.

kept me more awake due to NOISE, and i have such high noise sensitivity too.

mask keeps seeping air out, and that makes louder noise.

so i need to pursue wearing cpap; have another sleep study done....no thanks; last one was $10,500 covered by insurance; or if worse comes to worse ... SURGERY!

i did talk to him about my adrenal glands; on other blood tests he ran on me....they were shown normal.

he ordered cortef or something like that; so had that done yesterday.

i can just hear my ALLERGY specialist, he wanted to see LESS OF ME...weightwise!! [cussing]

[ 18. August 2008, 03:10 PM: Message edited by: bettyg ]

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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396

posted

betty, I think the mask is important if you have sleep apnea. Mine finally works. You must find a mask that fits properly and is comfortable. The noise of my machine dies down as soon as I get a good seal.

I have had it for years and the machine is getting ready to burn itself up so will have to soon go in the hole and order a replacement or figure out how to have this one repaired. Get some ear plugs.

Good luck. lmt

Posts: 2360 | From SE PA | Registered: Mar 2004 | IP: Logged |

bettyg
Unregistered

posted

LMT,

thanks for your own expertise in this area! i'm going to go to supplier this week and see what can be done! [confused]

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sonicbmx
LymeNet Contributor
Member # 12949

posted

betty,

i said it before and i'll say it again.. CPAP has played a significant role in my recovery. i certainly would not be where i am without it.

i use it 95-98% of the time. i don't leave home w/o it.. and i don't care who sees me sleeping with it.

one friend called me Snuffalufagus, call me what you want but i'm getting MUCH needed rest so my body has the ability to heal.

i'm using a Respironics Remstar Auto M Series (A-Flex) machine and a Fisher & Paykel HC405 Mask. very quiet and comfy set-up.

test several masks at a durable medical equipment facility to get a feel of what might be comfy before purchasing.

i tried the Pillow type at first but tossed it out 90 days later. also, train yourself to sleep on your back to reduce leaks.

good luck..
--
sonicbmx

--------------------
"The hell with Drs.. we have each other!"
My story began here:

http://forums.wrongdiagnosis.com/showthread.php?t=16210
http://forums.wrongdiagnosis.com/showthread.php?t=7833
http://forums.wrongdiagnosis.com/showthread.php?t=6873

Posts: 127 | From Van Nuys, CA | Registered: Aug 2007 | IP: Logged |

hiker53
Moderator
Member # 6046

posted

Betty,

If you adrenals are normal, why cortef? Just curious? Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 10173 | From Illinois | Registered: Aug 2004 | IP: Logged |

bettyg
Unregistered

posted

sonic,

thanks for your suggestions and what has worked for you; i'll print off these suggestions since i forget so bad!

hiker, i'll let you know more when I KNOW MORE! [Smile]

betty

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Bugg
Frequent Contributor (1K+ posts)
Member # 8095

posted

BettyG--

As you're probably aware, an undertreated thyroid issue can cause an elevation in cholesterol. Have you had a full endocrine panel run on your pituitary, thyroid, and adrenals?

I've cut and pasted four links below which discuss high cholesterol and low thyroid function. If you need med/journal abstracts to show your physician, then I'm sure I can find those for you..

I really feel that getting to a very good endocrinologist would be beneficial for you....

Take Care, BettyG....

Here ya go:

http://74.125.45.104/search?q=cache:Flewg6PriucJ:www.thyroid.org/professionals/publications/news/03_09_17_thyroidfailure.htm+elevated+cholesterol+thyroid&hl=en&ct=clnk&cd=3&gl=us

http://74.125.45.104/search?q=cache:Kth3x6510KMJ:www.medicaledge.org/newspaper/n-2005may29.html+elevated+cholesterol+thyroid&hl=en&ct=clnk&cd=8&gl=us

http://74.125.45.104/search?q=cache:fGUBUhJTMF8J:thyroid.about.com/cs/symptomsproblems/a/cholesterol.htm+elevated+cholesterol+thyroid&hl=en&ct=clnk&cd=1&gl=us

http://thyroid.about.com/cs/hypothyroidism/a/notwell.htm

Posts: 1155 | From Southeast | Registered: Oct 2005 | IP: Logged |

bettyg
Unregistered

posted

bugg,

thank you for the 4 thyroid links you attached above! i read them all...

i've had UNDERACTIVE/hypothyroid i believe since 1980; 1 yr. after hubby was dx with OVERACTIVE/HYPERthyroid.

so have been on synthroid or levothyroxine since...

pcp said my thyroid blood tests were ok this time.

i'll get copies of all my blood work and medical dictation after it's done.

i'm now paying local clinic $15/yr. for ALL medical documentation, labs, xrays, etc.

also in case SSDI notifies me ... i have it as it accrues!!

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Bugg
Frequent Contributor (1K+ posts)
Member # 8095

posted

BettyG--

Have you been to the two sites which are often mentioned here on lymenet....www.stopthethyroidmadness.com and www.thyroid.about.com .....

You may just want to read there about adrenals and thyroid and pituitary...very easy reading...

I'm not sure what your current symptoms are and I hope you have a great doc who is "on top" of understanding thyroid-adrenal-pituitary issues...

I was told by a couple of docs that my thyroid was fine because I was in the normal range after starting thyroid treatment and IT WASN'T....

Also, the fact that I was low in other hormones should have been a clue to me that I needed to examine possible pituitary issues as well...

I seem to recall that you said you were thirsty alot...Do you know if you're low in aldesterone???

This may be info you already know but I just wanted to make sure....

..Just want you to feel better...

Posts: 1155 | From Southeast | Registered: Oct 2005 | IP: Logged |

bettyg
Unregistered

posted

bugg,

thanks for your additional info; whenever i get my copies of all labs, etc.; i'll check them against what you showed above!! big thanks! xox

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bettyg
Unregistered

posted

up for myself, to pursue some of this i put off before.

bugg,

my CORTISOL WAS NORMAL; so adrenals are functioning correctly new pcp stated lately!!

all other blood tests were normal too for this TYPE of problem.

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