posted
I was infected with Lyme since 1987 and first treated in 1989, two months of IV Rocephrin. I have just gone into remission about a year and a half ago after my fourth relapse ( treated with Rocphrin for a year, followed by oral meds). I think I might be going into another recurrence and I am trying to decide if I should go for some input, second opinion, whatever to Dr. Fallon's Clinic for Chronic, Long term LD. I have a LLD which I am 75% sure of. Has anybody gone for a work up at Columbia? It would be really helpful to hear about your experience and if it is something you would recommed. Thanks
Posts: 28 | From Weston, Florida | Registered: Oct 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
broken up for those with neurolyme to be able to read:
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I was infected with Lyme since 1987 and first treated in 1989, two months of IV Rocephrin.
I have just gone into remission about a year and a half ago after my fourth relapse ( treated with Rocphrin for a year, followed by oral meds).
I think I might be going into another recurrence and I am trying to decide if I should go for some input, second opinion, whatever to Dr. Fallon's Clinic for Chronic, Long term LD.
I have a LLD which I am 75% sure of. Has anybody gone for a work up at Columbia?
It would be really helpful to hear about your experience and if it is something you would recommed.
posted
I know at least one person who went there and they were disappointed.
Do a search here for old discussions on this.
See the little word "search" next to "Lymenet Flash" above.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
definitely search here .
i went, and going was very much worth my while. NOT for a dx of Lyme- I already had that, but for proof for SSDI and for the objective evidence about what Lyme had done to my brain.
the folks there are compassionate, and the tests are less arduous than they sound.
good luck! dill
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I also heard of a person who went and got the brain scan.
Good news is it helped her with SSDI
Bad news is it hurt her to see how lyme had affected her brain.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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