I am at a cross roads and feeling very down. I have done various abx (including 6 months of IV abx) for 2 years with no lasting improvement. The last abx I took was levaquin which over the course of 7 weeks on the drug I eventually had a toxic reaction to and it has taken me 6 months to recover from (tendonitis and a bunch of cns issues like insomnia, neuropathies, ear ringing, etc.). I was floxed. I think the levaquin may have done enough damage to my system that I can't take further abx, though I'm willing to try. I could still try Bicillin and maybe zithro but ear ringing has been such an issue for me that I'm not sure I'll be able to tolerate either. I just don't know what to do next. I feel like I can't go on any longer....do people with neuro lyme ever get better without abx or will I just get worse?
Posts: 90 | From massachusetts | Registered: Aug 2006
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hey Scottie,
Sorry that you are in this position. May I ask what your main sx are?
How do the other abx affect you? There are lots of combos to try......don't lose hope. IM Bicillin works great for some, it just is a SLOW worker.
What about alternatives in the mix?
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I know how you feel. Have had severe and frequent headaches and nerve pain in the head and upper tooth since being diagnosed with Lyme three years ago. Have been on many courses of abx, but not intravenous bc am not impressed with the outcome compared with the side effects.
Have you read "The Top Ten Lyme Disease Treatments" by Royser? At this point you may want to look into a rife machine. At first I thought it was nonsense, but there are thousands of testimonials in favor of it online and this author thinks it is one of the best treatments. I'm thinking of buying one myself but want to do more research first.
Posts: 144 | From Connecticut | Registered: Sep 2006
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Alv
Unregistered
posted
Scottie I wrote you a LONG PM and your mailbox was full ...
Have you tried treating any of the co-infections? I've been on abx and would improve then relapse, improve then relapse, and then all over again.
after treating Borrelia for almost a year, we added treatment for Bartonella. I started feeling pretty good then suddenly started relapsing again. Then we started treating Babesia. Now I'm getting better again and I think I'm starting to feel the best ever.
I have to add that I never tested positive for either Bart or babs.
Patti
Posts: 975 | From California | Registered: Apr 2007
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