posted
Hi everyone, I posted last week that I recieved a
positive test from IGENIX. I spoke to the Doctor at Igenix and he said based on my results
that the Infection was at least 1 year old or more.
I assume it may be from being in the woods in FIRE ISLAND ny last summer, but then again
I grew up spending summers and Weekends in the
Country, and wonder what If i got bit as a kid??
AND i realize I have more symptoms than I
origianlly thought, I have MUScle pains, twitches, lack of sleep, (BUT NOW CAN SLEEP SINCE PREGNANT...befor that almost No
SLEEP...and sometimes nght sweats... ANYway i have an APPOINTMENT in 2 weeks with DR. R in NYc
he is supposed to be a top lyme doc, but VERY expensive 900 just the first VISIT....I am going
into DEBT quickly with all these tests....MY quest tests Western BLot igg and IGm came back
negative...but IGENix was positive so I am
really concerned.......so anyway does anyone have any thoughts on this, could I have had this for many years??? I know about 4 years ago I had terrible episodes of chostrocondritis ...scary thought i was having a heart attack.... I AM SO CONFUSED AND SCARED>>........
And if the doc puts me on ANtibiotics will it even get rid of the infection..if I HAve one???? and does anyone have any personal experience with this doc.
I never found the tick..so now I am worried if I have lYme ..for HOw long have I had it?????
Posts: 21 | From queens, new york | Registered: Jul 2008
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posted
How long? I believe my husband has had LD for about 45 years, and he was only just diagnosed this January.
Joyce/cypriane
-------------------- Dallas caregiver for husband Steve who has Bb, Cpn, Mpn, EBV, CMV, other Herpes family viruses Posts: 51 | From Dallas, TX | Registered: May 2008
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posted
Dr. R is awesome, and worth the cost, at least as far as I believe. I was shocked too, but I thought, "why run around for years and years to different doctors? Just do it right to begin with."
Plus, in the long run, it may save you money. I think he really sticks his neck out for his patients, gets insurance coverage for all kinds of things.
Good luck!
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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The important thing is, especially since you are pregnant, getting treatment NOW.
Be sure to make a "bulleted" timeline for your appt. so your doctor can breeze through unexplained periods of fatigue or month-long sore throats, rashes, etc.
Let the doctor evaluate from all of it.
Don't worry that you might have had it a long time as that may give you a feeling of hopelessness - and you don't know for sure. The key is getting the RIGHT treatment now.
Something so seemingly simple as a wheat or dairy allergy could have caused some of the problems. Whatever all is going on now, help and guidance should come from a good LLMD (hopefully, who has had ob. patients before).
In the NEWBIE tread by Treepatrol, you can find a thread something like: making the most of your LLMD appointment.
I am very glad to hear you have an appointment. I hope your trust is confirmed by other prospective moms who have sought treatment.
Be sure to talk to the leader of the local support groups.
One of my first symptoms was chostocondritis also. I've had it for over 20 years, along with other lyme symptoms, but was just diagnosed.
I believe a Fire Island tick got me too! I spent all of my younger years either hanging out or working there.
I know lyme treatment is expensive, but I would have done anything to get better if I had been diagnosed at an earlier age, like you. You will probably have great success if you stick with a good llmd.
Good luck!
Jeanne
Posts: 345 | From East Coast | Registered: Apr 2008
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posted
thank you everyone for your replies.
Posts: 21 | From queens, new york | Registered: Jul 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Since my dx over two years ago I have become aware of symptoms that go back a lot further than I originally thought.
As long as I can remember I have had off and on problems with IBS.
I recall having bad headaches in junior high school, and going to several doctors about them, only to learn the word "psychosomatic." Eventually they went away.
In high school I had frequent strep throat. Back then the tx was a penicillin shot in the butt. They hurt so much I sometimes wanted to pretend there was nothing wrong with me. I was also afraid I would have to have my tonsils out.
I also know I have never been a morning person. Even in high school I needed a good 8 hours of sleep. I didn't understand how people could get by on less.
I was always the first to go to sleep at slumber parties. Back then we actually did sleep, eventually.
By college I couldn't stay out as late as our dorm hours were without falling asleep. I had one all nighter and felt so bad I vowed never again.
I have been exposed to ticks most of my life. My parents had a 25 acre farm with an orchard, vegetable garden, and beef cattle.
We used to chase the cows and I remember walking around the big pond where they drank. I'm sure there were ticks there.
We also had dogs all my life. It was not uncommon to pull ticks off them.
My dad took me fishing a lot. Usually it was at lakes and we would walk around to find just the right spot.
I also went horse back riding, camped, hiked, swam in lakes, so there were many opportunities to be exposed to ticks and Lyme, even though it hadn't even been named at that time.
It doesn't matter how long you have been ill. What matters is that you get treatment when you test positive, especially since you are pregnant.
I have three adult children. They were all exposed to Lyme in utero and through breast milk. Now I can see symptoms in them.
I didn't' know any better back in the 70's and early 80's. Now we do, so please get the treatment you need and don't question your dx.
A timeline is a good idea. I had one when I was first dx'd and I know it helped my doctor see that I was chronic, not just recently ill.
Good luck!
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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I developed neurolyme 5 years ago, and that is when I got diagnosed (at age 34)
but looking back I have had symptoms of this mess since I was about 4 or 5 years old!
It explains a lot.
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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adamm
Unregistered
posted
Doesn't really matter. The important thing is that you're treating it.
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