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» LymeNet Flash » Questions and Discussion » Medical Questions » ear problems

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Author Topic: ear problems
Cadames62008
LymeNet Contributor
Member # 16275

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I was wondering if anyone else had these problems and if they are related to the lyme.

I always have pain behind my ears where I guess the glands are.

I always hear a crackling like i can open and close my est. tubes cause i can make the crackling happen.

I feel like there is fluid in there even though the ent told me there is not.

they feel like cotton balls are in them or someting. And always feel alot of drainage.

This was my first systom when I got sick. And has not gotten any better.

if anyone has this has anything helped to make it better cause it drives me nuts lol

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Christina

Posts: 102 | From Lacey Washington | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Geet3721
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WOW you sound exactly like me, same exact feeling and that also was my first symptom and it also radiates through my throat and neck sometimes.


I am seeing a new LLMD in two weeks and this is one of the questions I am going to ask him about. I will let you know what he says.


Are you congested at all especially in the mornings?

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When the going gets tough. . . I'll keep fighting!
Ms. Geet3721

New LLMD, New abx, New life coming right up!!!!

Posts: 714 | From La La Lyme Land | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
webmeg
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Lyme definitely goes after the ears - crackling, fluid, all the stuff you described. Classic early symptom.

You can also get forms of tinnitus. Probably 18 months before my lyme exploded I did have this mild "buzzing" in my right ear - can only hear it at night when it's very quiet. Had no idea that was the start of lyme.

Some people experience much louder ear noises and hearing loss. There is quite a bit on this forum if you search on Tinnitus.

Keep fighting the lyme. After 10 months of abx my ear noise is reduced to almost nothing so I always think that's a good sign. Of course the ear crackling still continues....

~webmeg

Posts: 257 | From Connecticut | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
tickled1
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I also had/have the exact same symptoms. The full feeling in my ears has gotten better w/treatment but I still have the crackling in the right ear and tinnitus occasionally.

Also like you, I feel like there's fluid but ENT said no. Must be something deeper, in inner ear they can't see.

Posts: 2541 | From Northeast | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Keebler
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Christina,

First, If that is your real name that you have in your signature line, I'd suggest dropping the last name for security reasons.

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Are you being treated by a LLMD ?

Yes, what you describe is common with lyme.

Massage may help. Cranial-sacral therapy, especially. They may also reach inside your mouth to release the tubes, so to speak. This can be wonderful. See if you can find someone trained in UPLEDGER INSTITUTE techniques.

A good neck pillow may help.

Magnesium may help.

Allicin capsules really helps my ears "open up"

Going dairy, gluten, soy and corn-free is often advised to see if phlegm will diminish. After a few weeks off all this, you can slowly add back in one thing at a time and see if you get phlegm. Phlegm is just a wonderful hotel for infections, so you want to decrease that if you can.


Also, it is very helpful for your ears (and your liver and your brain) to try going scent-free for a while with all your shampoos, soaps and house-hold products. Then, you can add back in some gentle natural essential oils, perhaps. A lot of the "air fresheners" on the market are actually highly toxic and the ears detect that first.


But, ultimately, I hope you have been properly assessed for TBD and are on a good treatment protocol. If infections are involved, you MUST address that.


The thread below describes a variety of vestibular effects (inner/middle ear) and offers suggestions similar to those listed above.


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Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801


==========================


VESTIBULAR DISORDERS ASSOCIATION

www.vestibular.org


==========================


This book, by an ILADS member LLMD, hold great information about pharmaceutical and complementary treatments:


http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)


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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Cadames62008
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Yes I have started to see my llmd and just started my treatments. Well actually I will in the morning.

I have a history of possible allerigc reactions to antibiotics, so just in case I want him there.

I didn't have reactions to antibiotics till i started being sick. My llmd thinks they were just herx's

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Christina

Posts: 102 | From Lacey Washington | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Keebler
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Christina,

So glad to hear that you have a LLMD (especially as they are very rare in the Pacific NW).

True, the herx can be very distinct. AND liver support can help diminish that, too. Your doctor should be able to tell you about that and it's discussed at length in the Singleton book.


I think you are on the right path. Yippee!


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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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