LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » paranoia-anyone dealing with this symptom?

 - UBBFriend: Email this page to someone!    
Author Topic: paranoia-anyone dealing with this symptom?
abc
Junior Member
Member # 17059

Icon 1 posted      Profile for abc     Send New Private Message       Edit/Delete Post   Reply With Quote 
my brother is getting treatment for his lyme disese-but i see him getting more and more paranoid about things not related to his health

does this go with lyme?

i'm not sure how to help him-he dwells on what he is afraid of and it stops him from doing things he is supposed to do to get well

Posts: 3 | From usa | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
SmurfyMom
LymeNet Contributor
Member # 13688

Icon 1 posted      Profile for SmurfyMom     Send New Private Message       Edit/Delete Post   Reply With Quote 
YES!!! I have dealt with paranoia about specific things/situations for years. LONG before discovering I had Lyme.

I just had an appt with my LLMD yesterday, and my mom went with. She told the dr the name of the game for me was paranoia and that I was scared to tell him anything for fear he'd quit treating me.

That is just one of my paranoias. I have several.

I had actually warned my mom NOT to say anything to doc because I was afraid she'd get me in trouble, but she didn't listen to me.

I'm just glad I *didn't* get in trouble.

I'm starting new meds now. Nothing for the paranoia specifically (I don't think), but 2 of my new meds are anti-depressants and I got the impression he thought they would help.

Chris

Posts: 155 | From Texas | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
feelfit
Frequent Contributor (1K+ posts)
Member # 12770

Icon 1 posted      Profile for feelfit     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yep,

paranoia for me too. About the meds. about my head=stroke, heart=failure, legs/arms=paralized.

Bruising=lukemia....the list goes on. I think it goes hand in hand w/ the bizzare sx and anxiety.

I'm way better now than I was several months ago.

U R not alone!

Feelfit [Eek!]

Posts: 3975 | From usa | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
abc
Junior Member
Member # 17059

Icon 1 posted      Profile for abc     Send New Private Message       Edit/Delete Post   Reply With Quote 
thank you. so lyme tx helped the paranoia symptoms and psyc drugs also helped?

i wondered if counseling was something to look into

Posts: 3 | From usa | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Counseling would be great too if you can afford it!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-

It would be great to find a LL counselor who could work in conjunction with a protocol from a LLMD.


-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 10 posted            Edit/Delete Post   Reply With Quote 
thanks for trying to be there for your brother and helping him.


yes, paranoia is bad the longer you hve chronic lyme!


GO ONLY TO A LYME LITERATE PSYCHOLOGIST!! post in SEEKING DR. FORUM and give us more info on your brother please
!!

start a NEW POST IN BLACK/WHITE SMALL BOXES at top/bottom of page.


how long has he been sick and length of time on lyme treatment


subject line: show STATE HE LIVES IN PLUS LL psychologist need


please tell us about your brother next.


then go to bottom left corner and mark box to receive all replies to your post; click send!


here are some posting guidelines and my newbie package link at bottom! check it out.


Welcome; so glad you found us!!

Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY!
*************************************************************

Also, please be VERY SPECIFIC in subject line what you will be discussing.

Example:

PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!

IGM ... do same thing for IGG below IGM
*******************************************

18 +
41 +/-
78 IND


When you post or reply, please break up your solid, continuous block text [Smile]
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.

NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.


IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.

specifically, delete the first 4 characters of 2ND LINE of a ""


[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. [Frown]


LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!
-----------------------------------------------------------------------------------


also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=029917

******************************
suggest you discuss with your doctor continuing treatment until you are symptom free for 2 months.


Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
http://www.ilads.org/burrascano_0905.html


Making the most of your LLMD visit
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005


see my newbie package info; click on link at bottom of my package.
@ http://tinyurl.com/58eyou
****************************************

IP: Logged | Report this post to a Moderator
rhymylymey
Junior Member
Member # 17049

Icon 1 posted      Profile for rhymylymey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, lotsss of paranoia. I'm constantly awake at night always fearing someone is going to break into my house. If hear the slightest thump or sound I freak out and go into high alert. I also get very nervous when I hear planes flying overhead. I fear it might be some type of UFO or god knows what..

I know this is lyme related because it never happened prior to getting sick. Often time life seems dreamlike, like I'm watching things happen from the outside. The best medicine for me was learning to just live the dream, to focus myself in as best as possible.

Posts: 7 | From USA | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
Radha
LymeNet Contributor
Member # 8464

Icon 1 posted      Profile for Radha     Send New Private Message       Edit/Delete Post   Reply With Quote 
yes i have terrible paranoia, always feeling like

people dont really beleive fully what i say, like

how sick i am, i always feel like i have to keep

convincing everyone even though i know everyone

already believes me, its very stressful with all

the terrible anxiety i have too, always so jumpy

and nervous, thank God i have such an

understanding and patient mom!


Radha

Posts: 392 | From New York | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
abc
Junior Member
Member # 17059

Icon 1 posted      Profile for abc     Send New Private Message       Edit/Delete Post   Reply With Quote 
thank you everyone. this is helping me.

his is the most like rhymylymey

he worries about his health and not being able to work...but to me that is normal and makes sense

it even makes sense to me to be worried others don't think he is sick...CUZ THEY DON'T!

when he goes off worrying about planes and others taking him away is what concerns me

it comes and goes-and sometimes he can self-talk himself through it and blame the lyme

thanks so much. i will try to read all that stuff...but i know he is with a good llmd and i have my own family to take care of

he is in ct-there's a lot of lyme but also a lot of llmds. others in my family have too. some are in denial-some are treating. he is the only one with the paranoia.

Posts: 3 | From usa | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
Clint31
LymeNet Contributor
Member # 16420

Icon 1 posted      Profile for Clint31     Send New Private Message       Edit/Delete Post   Reply With Quote 
I always have paranoia that i'm going to drop dead

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

Posts: 743 | From Columbus, Ohio | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Wimenin
LymeNet Contributor
Member # 15294

Icon 10 posted      Profile for Wimenin         Edit/Delete Post   Reply With Quote 
Paranoia?...Yes. Welcome to lyme, the great conspiracy...in our minds.
Posts: 514 | From . | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
SmurfyMom
LymeNet Contributor
Member # 13688

Icon 1 posted      Profile for SmurfyMom     Send New Private Message       Edit/Delete Post   Reply With Quote 
Radha- do you take anything for the anxiety and paranoia? And if so, does it help?? I swear, you described me to a T!

I have been this way for years and years (we supsect I am a congenital Lymie), but now that the Lyme is diagnosed it's even worse because now I'm freakin out over people...including my LLMD... believing it's Lyme!

I am such a mess! lol Neat thing is now I know there is a reason for it. I've lived this way most of my life and didn't know there was possibly a way to fix it.

Chris

Posts: 155 | From Texas | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
nwisser
LymeNet Contributor
Member # 15682

Icon 1 posted      Profile for nwisser     Send New Private Message       Edit/Delete Post   Reply With Quote 
I went through horrible paranoia, sometimes about my husband cheating on me, sometimes thinking I had infestations of strange insects in my house (did complete detailed cleanings, found nothing . . . ), thought everyone despised me and talked behind my back, etc., etc. Not fun, and very harmful to relationships.

--------------------
Just because it' s not nice doesn' t mean it' s not miraculous.
--Terry Pratchett

Posts: 121 | From Nazareth, PA | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Radha
LymeNet Contributor
Member # 8464

Icon 1 posted      Profile for Radha     Send New Private Message       Edit/Delete Post   Reply With Quote 
hi chris, unfortunately nothing helps the

paranoia, i am not able to handle taking any abx,

so maybe if you can treat the infection, maybe

the paranoia would get better by itself, i do

have some ativan with me when anxiety is very

bad, but it doesnt do much, this anxiety and

paranoia pretty much controls my whole life and

makes me just so miserable all the time! sorry i

didnt have any helpful suggestions, i just thank

God that my mom is there with me all the time to

listen to me and give me soothing answers to my

constant questions.


Radha

Posts: 392 | From New York | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
AliG
Frequent Contributor (1K+ posts)
Member # 9734

Icon 2 posted      Profile for AliG     Send New Private Message       Edit/Delete Post   Reply With Quote 
For a better understanding of some of the psychiatric manifestations of Lyme Disease, you can do some reading here: www.thehumansideoflyme.net

It can be a pretty frightening disease to live with at times. [Frown]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
Erica741
LymeNet Contributor
Member # 15186

Icon 1 posted      Profile for Erica741     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi ABC,

First, I want commend you for being so supportive of your brother and trying to help him with the emotional issues that often accompany Lyme disease

Since it sounds like your brother's fears extend beyond "realistic" worries about his health, his job, and how others perceive his illness, and into unrealistic fears like being abducted by UFOs or taken away by planes, he may have developed some serious mental health issues from the Lyme.

What does your brother's LLMD say about his paranoia?

My first thought is for your brother to see a neurologist (ideally one familiar with neuro-Lyme issues) to find out if there is any organic cause of his paranoia.

I also suggest he see a psychiatrist who is familiar with Lyme disease and its affects on the brain.

His LLMD will hopefully able to refer him to such specialists.

I also think your brother would benefit from counseling, regardless of what is causing his paranoia. If the psychiatrist does not do therapy, then ask him/her to refer your brother to a therapist familiar with Lyme.

Since your brother lives in an area where Lyme is common, hopefully it will be relatively easy to find specialists and therapists who are knowledgeable about Lyme disease.

Good luck to both you and your brother.

Erica

Posts: 408 | From California | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.