posted
Hi, My doctor wants me to start provigil for my cognitive and fatgue. Has anyone had a good experience with this. I am in the process of getting my lyme disease tests back. Still do not have a confirmed diagnosis, but I am working with a LLMD now.
Would like to hear about others experiences.
Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Hopefully some people will respond, but if you don't get too many responses, just go to Search and type in "Provigil"
Then on the drop down thing where it says "Entire Message," switch it to "Subject Only" because it will narrow things down.
I have seen lots of threads about Provigil lately, so I'm worried you may not get a lot of replies because it has been discussed, but check the archives here! Good luck! Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I just searched it....maybe there weren't a lot of threads about it lately. Maybe it's just that I've seen it discussed randomly in other topics, so I guess don't do a "subject only" search. Sorry if I am confusing you.....I am confused myself.
I know I started a topic called something like "What drug helped your fatigue?" and I was planning on getting some suggestions for antibiotics, but a lot of people came back and said Provigil. So it must do something....I know there are members here that like it.
For me, it just felt like drinking a few shots of espresso........but not as good, because espresso or coffee will sometimes help my concentration, but Provigil didn't. It made me feel a small physical boost, but I still had the bad "brain fog" and "detached" feeling. So it wasn't really worth it for me to take it.
Don't let my experience, or anyone else's for that matter, turn you off it though. It is worth a try because it could work for you.
Posts: 4590 | From Midwest | Registered: Jun 2008
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my experience with Provigil has been great. I've taken it, when necessary, for ove 3 years. It was originally prescribed only for narcolepsy patients, so docs are hesitant to prescribe it for other reasons, but hopefully that's changing.
If you take it more than 2 or 3 days in a row, it stops working as well. I only take it a few times a month, when I really need it.
It's been a God send for me. If your doc will give it to you, I say try it. It can be expensive though, and insurance companies are sometimes hesitant to pay for it if it's prescribed for fatigue.
But I think it's wonderful drug that can really help people with severe chronic fatigue/Lyme.
Patti
Posts: 27 | From Utah | Registered: Jan 2008
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posted
Thanks for the replies. I did a search on Provigil and only got a few replies. I guess I can always try it and see what happens. I have a lot of anxiety so I am worried that it will make it worse.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
| IP: Logged |
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