posted
Tickbattler-that does seem like a lot of Mepron given his age plus I'm sure he's a little guy at 4.
I'm much, much older than he and take 1 teaspoon twice a day.
Posts: 9 | From Carpinteria, CA | Registered: Aug 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
It could be a Herx already, I would think. Where does his head hurt? Have him point or put his hand on it.
If it is back of the head, or where the head meets the top of the neck, that is a DEFINITE babesia Herx. (according to what i've heard)
If it is on top of the head......harder to tell at that point. Could be either Lyme, Bartonella, or Babesia.
Was he diagnosed with bartonella too? If so, the Zithromax could be giving him a Bartonella Herx. (or a lyme herx).
My point is you may not even know which infection he is killing at this very moment, though on that protocol the majority of the Herx symptoms may just be babesia symptoms.
I have taken Mepron twice now. First time, I think it took about 4 days before it hit me......really bad headaches (I think they were all over the head.....top, front, back, etc) and I also started getting nausea and vomiting at times. I believe it was because the infection was flaring so badly, not from the medicine itself. Eating ice cream with the Mepron helps the desire to vomit go away. Some people don't experience this....so I don't want to scare you.
I was really really fatigued and started having bizzare memory issues (if he forgets where something really common is always kept, like where the cereal is, he is being serious and not dramatic). But these things faded probably 2 months or so in and I went off at 3 months, then was able to see real differences. I would recommend treating at least 4 though; I think I went off too soon.
Hopefully his experiences won't be as bad as mine and he will just slowly heal, but know that if he has a rough time, I felt better once I went off it. BUT, maybe the best bet is going until you feel you have taken it as far as it can go......then stay on an extra month.
Keep in mind, he needs lots of fat with each dose, and no Vit E supplements, Alpha Lipoic Acid, or Milk Thistle (check labels of supplements).
These are all my personal opinions, so please keep that in mind. I may not have included everything or there may be errors. Hope it helped some though. Good luck!!!
Also, if he can tolerate it, and when he can tolerte it, some recommend the herb artemisiae........don't know if this is okay for children though. I take very small doses b/c it gives me ear ringing, so be cautious. Some swear it helps the babesia treatment though.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I felt like that when starting mepron in about 24 hours!
Then it lasted for five weeks straight.
Hope your little one gets past this soon.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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I agree, the mepron dose is mighty high for a little one. It's twice as much as what my son, age 6 was prescribed.
Also, if you child has trouble choking it down, try giving it with chocolate milk, or ice cream.
Best of luck, kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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tickbattler
Unregistered
posted
Thank you all so much for your replies. My son did feel a bit better today than yesterday. I have heard that day 3 of Mepron can be a bad herx day, so perhaps that's what it was.
I called the pharmacist to learn about the dose and he said in the human studies with Mepron, 3 month old babies were give the same dose that my son is on, so it appears to be in the middle range of the dosage. Besides, we go to Dr. J in CT, so he should know what he is doing!
This is all so scary. Thanks again for your info; it really helps.
posted
We did not notice a herx w/ our five year old dd. She also sees dr. J and he has her on 1/4 tsp twice per day. I think this means that he tailors dosage to each patient based on their symptoms and his clinical experience.
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I've learned that just about anything is possible with this disease.
I've been on mepron and can't recall how long it was before I started herxing but will be starting it again next week with my IV treatments, so it's hard to know what is doing what.
I do know that on many meds, I have been herxing within three days and some pretty severely so, yes, I surely wouldn't dismiss the possibility your son is herxing.
Hope it's a shorter herx. Try to hang in there and let him know you love him.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
I start herxing 1-3 hours after taking the dose.
Posts: 975 | From California | Registered: Apr 2007
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
I herxed on day 4, then again on week 4. Felt like I was hit by a car (and I've been hit by a car, so I know whereof I speak!).
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
I'm on day 3 of Zith/Mepron but I dont think I've had any herxes so I'm starting to worry. The only thing I've had was insomnia.
Posts: 103 | From New Jersey | Registered: Jun 2008
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