posted
Could cranial sacral therapy have made my daughter worse?
I took her about 2 weeks ago for the first time. Ever since then, she has been laying in her bed with her head hurting worse than before.
At first, I thought it was just coincidence but now I'm wondering if it is possibly from the cranial sacral therapy.
We haven't been back because the therapist was going out of town and I haven't scheduled anything new since I'm afraid my daughter feels too bad to go.
The therapist called me wanting to schedule another appointment and I mentioned that she was probably too sick to go. The therapist said sometimes people get worse before they get better.
If this is true, I guess it must be doing something and hopefully, in the end, it would make her feel better.
I admit to being a little skeptical that this will help her but I want to try whatever I can.
Has anyone else gotten worse before they got better from this?
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The harder you work the luckier you get! Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
I am not sure what this really is but if it is gentle manipulation to help regulate fluid flow throughout the head, neck and spinal column...it can re-activate psych things.
The dr my daughter goes to for this, and not sure it is the same thing...did not initially even want to touch her as a patient. He was worried it would put her in a worse depression and since she is suicidal, he did not want to risk it.
He was convinced by one of her drs to give it a try. So far no major issues. lmt
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Hoosiers51
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posted
I would say it's possible that this therapy loosened a lot of pathogens that are now circulating through her system.
Is she on some good strong treatment with antibiotics, etc?
You really want to make sure you are killing all these buggers!
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Hoosiers51
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posted
I would say it's possible that this therapy loosened a lot of pathogens that are now circulating through her system.
Is she on some good strong treatment with antibiotics, possibly anti-malarials, etc?
You really want to make sure you are killing all these buggers!
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I have had wonderful symptom improvement w/ CST.
It can create a healing crisis in some, but with continued tx it is said to clear. I have had enormous relief with this therapy with my daily headaches.
As Steelbone stated, the treatment is only as good as the therapist practicing it.
Go to www.upledger.com and plug in your State and city for practitioners near you. The practitioner will be listed as well as the classes that they have taken in CST.
Some are even PT's and if you have ins. they will cover it with a PCP rx.
For me, this therapy has made me functional again, whereas the last 10 months I spent mostly in bed with killer headaches and dizzines.
Best, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I took her to 2 different therapists that I got from the Upledger site so I think they are good.
The two have talked and think it would be good to have a joint session so they can work together on my daughter.
At the time, she was on biaxin/placquenil. We've switched her back to doxy because that has seemed to help the most in the past.
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bejoy
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posted
Sometimes a beneficial side effect of good CST is detoxing and lymph drainage.
When these toxins get mobilized into the system, it can feel pretty bad, and can include headaches and fatigue.
Unfortunately, that's part of lyme treatment. You have to mobilize and clear out the toxins.
I'd look up some good detox protocols on lymenet, and make sure to drink lots of water with lemon juice.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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feelfit
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posted
Jk mom,
The two therapists at once working on your daughter may be of benefit. I ahve read Upledgers book "the inner physician" and he has treated patients with multiple practitioners w/ increased success.
Praying for improvemnet for your daughter.
Feelfit
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kelmo
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Member # 8797
posted
I took my daughter to get that done. It was VERY expensive, and I question the qualifications of the woman who did it.
My daughter hurt for DAYS. I mean pain.
Though others may benefit from it. This was our one time experience.
I got my money back.
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Kelmo,
CST is a very gentle therapy, the pressure applied is usually less than the weight of a nickel.
If an individual has had insult or injury to a certain part of the body, in my case, my lower skull back of the neck area, this pressure though minimal, can feel very painful.
My last session w/CST produced this reaction in me. It is a healing response. 1 1/2 days after this session I began to feel significantly better and have held the improvemnet for 6 days.
I am starting to experience increased sx again. Hoping that my next session holds for a longer period.
Sorry to hear of your daughters experience. My CSt is 40.00 for a one hour session. I guess that where you live affects price range.
Feelfit
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Keebler
Honored Contributor (25K+ posts)
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posted
-
jkmom,
Did you see the therapy session? Was it gentle and did it last at least 30 minutes and cover the entire skeleton by more time on the skull?
that's the way my UPLEDGER CST go.
However, I've had other D.O.s or LMT or even NDs that have done quick "snap, crackle and pop" techniques from which my brain felt injured.
Upledger is not the only gentle technique, but is is a very good one. Can you find out the method your doctor uses and ask more about it.
If gentle, still, yes, it could have still moved through some lymph stuff or toxins, but I've had CST done for years on and off and it has not landed me in bed more than for the two day afterward - but that is mostly to get over a perilous taxi ride with awful "air freshener" exposure.
Maybe gentle massage would be good for now. Even work on just feet and hands can do wonders.
In any case, the therapist should know of the reaction. AND, if your daughter has inner/middle ear issues such as vertigo, I can see where she may need to take it very easy.
Good luck. - and, hey, I see that your are in Texas. Let's hope you don't go to OZ here in the next couple of days.
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Regular CST and a rigid diet are the main things that kept me alive and functional for ten years prior to lyme diagnosis. It did wonders for me, but there is no one-size-fits-all.
I hope she feels better soon. Two handed therapy is wonderful, if they are willing to give you a price reduction, or work for the experience alone. It never hurts to ask for such things, by the way, if you are in need.
CST is not a lyme cure, just a very good supportive therapy, so of course you have to figure out what the best use of your money is going to be.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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posted
I was there for the whole session and it was gentle. Neither one of them did too much with the head. They worked on her legs and feet and stomach.
Even though they knew her main symptom was a headache, they said they needed to follow what her body was telling them.
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posted
Upledger trained therapists do not necessarily have a medical license, A good CST person is a DO or MD with at least 10 years of experience doing that type of therapy daily. The Texas College of Osteopathic Medicine might be a resource for you to try to find someone of that skill level.
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Or a physical therapist, who is also licensed.
Mom, the therapists weren't speaking voodoo when they said tha the body was responding and telling them where to go.
But, if your daughters main symptoms are headaches, they should spend a significant time on the head.
Dr. Upledger by the way is a medical doctor and was a medical researcher at Michigan State University. There were many peer reviewed studies on this process.
And as Bejoy has said, CST does not hav ANY affect on Lyme or TBI's it simply helps as whole body support...
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
The chiropractor that did my first cranial treatment (with amazing results) mentioned to me that he has on occassion been called upon to "fix" the heads of those who are just starting out practicing and working on each other.
These new practitioners would leave class with terrible headaches after practicing cranial sacral techniques on each other.
Cranial sacral therapy can be avery powerful tool-in the right hands.
Diana
Posts: 202 | From vancouver, canada | Registered: Jun 2005
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posted
These two were both massage therapists and both had taken many courses at Upledger. They might have even been certified to teach.
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Angelica
Unregistered
posted
Before I was diagnosed but while I was sick with LD babs and bart I received a lymphatic massage that brought out anxiety or more likely was clearing or un-caging some bart symptoms. It seemed to happen after my spleen stomach area was worked on.
I also received a chiropractic adjustment that seemed to do the same thing. Because I was not diagnosed at the time I asked the chiropractor why an adjustment would bring out days of anxiety and he said maybe I had a "static spine". I have the feeling that the adjustment brought my bart out of hiding too.
I hope your daughter feels better soon.
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kelmo
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posted
The charge was $80.
The woman used her finger tips under the base of the skull. My daughter had significant pain during the session. Said the woman's fingers felt like spikes. The pain increased up to five days afterward.
She thought that's what was supposed to happen.
It was enough not to try it again. But, since then, the pain has gone to the thoracic area of her spine. Her disks are bulding now.
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Oh Kelmo,
So sorry to hear about your daughter! Boy, you just never know how the body is going to react, even to the most gentelest manipulation.
I must say that at my last session, my therapists fingertips also felt like spike at the back of my head....I even mentioned how much it was hurting.....
Fortunately, after a day and a half I felt better and much relief.....I wish that this could have been your daughters experience too.
Headaches everyday for months on end are not a picnic....
feelfit
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