posted
I would like to know, if anyone wants to share with me, how long have they been treating and how long have you been sick with symptoms?
I myself have only been treating (aside from the doxy and amoxy which I don't count) for 5 weeks. Sick with symptoms since March of this year.
Anyone else care to share?
Edited to add: Let's add our improvements and then remaining symptoms we are trying to treat.
If my neck pain would let up, I would consider it a huge step in the right direction. No improvements yet, I know it's early, but it still worries me. Makes me wonder if I'm on the right track.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Started going downhill a little less than five years ago. Diagnosed Jan 2007. Been in treatment since then.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Been very ill and in active treatment for four years.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794
posted
Diagnosed 2000. Treated for 3 weeks
Sick on and off until 2/08. Retested and was treated from 2/08 through end of July 08.
Posts: 1129 | From Maine | Registered: Feb 2008
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posted
Also, for you long timers out there, do you mind me asking what your main symptoms are still?
Would there ever be a point where you would just chalk this up to something you would have to live with? I can't imagine treating that long, unless I saw some kind of improvement. I admire your tenacity, however.
What improvements have you made and what symptoms remain?
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Didn't get debilitatingly sick until January of 2007. I was sick before that (I was bit when I was 14... Of course, I could have been bit again, who knows!), but it wasn't as obvious and I was still pretty functional. I wasn't diagnosed until July of 2007 (and started tx), so I waited nearly half a year to find out what was wrong with me, thinking I was dying the entire time. For a long time I thought it was my recently diagnosed hypothyroidism making me so ill... except hypothyroidism doesn't make a person have tachycardia and palps and many of the other symptoms I was having/and still do have.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Had lyme and co's 20+ years. Treated for nine months until 2 months symptom free. Recurrance of symptoms which lasted three weeks. Continuing homeopathic and alternative treatments while symptom free, to stay that way. I think I've been really lucky.
The treatment was harder than the disease, but life after lyme disease is better than it ever has been.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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