I hope this post finds everone getting better with time.
I have a question for everyone using or have used IV Rocephin.
What types of reactions can be expected and when do they typically take place? Also what are any side effects if any?
I have noticed after my first day, I have a bad headache in the rear of my head with all of my symptoms increase 2-fold. My anxiety, fogginess and irritability are also much worse.
Just began treatment after taking orals on and off for past several months. I have a later stage Lyme (no-coinfections) w/ mostly muscular/joint issues but some neuro stuff such as burning, stabbing, pin prick, twitching, vibrations etc. Vision and cognitiveness is all good but have some insomnia issues as well.
Any advice or comments are appreciated.
DG
Posts: 69 | From New York State | Registered: May 2008
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posted
Reactions can vary from person to person. Some experience die off symptoms immediately, some weeks or months down the road, and some never. It is highly variable. As for possible complications/side effects, a well documented adverse reaction is biliary sludging leading to possible cholecystitis.
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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I forgot to mention, I do not have my gall bladder so I do not anticipate any issues in the abdomen. However I often think about my liver fuction without it.
Thanks again
DG
Posts: 69 | From New York State | Registered: May 2008
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posted
Your gallbladder does not play any role in liver function. You are not at higher risk of liver damage without your gallbladder. Don't worry about that!
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I'm on IV rocephin and as Jesse said, from all I've read as well, no two people will react the same and the symptoms will also come at various times.
I'm on many other meds as well, so it's hard to say which ones are from which med, but since I STARTED with the IV Rocephin before adding in others, I found for me personally it was a lot of head pain, nausea and confusion.
People say MOST of the time I'm making sense, although in MY brain, it feels like a complete and total fog and that I'm just not all the way connected.
The thing I have noticed extremely different from the 20 months I was just doing orals to the time I've swapped to orals and IV's is that I do seem to go through my symptoms faster.
Meaning I use to herx 24/7 for LONG periods of time on the orals and now I'm having herxes that may be more intense SOME of the time, but they aren't lasting nearly as long before something else hits.
Lots of fatigue and wanting to sleep a lot, but if this is going to get me on the road to recovery, this is totally worth it. Good luck to you.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Have you had problems with your liver function in the past?
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
I am on I.V. Rocephin. This is my 5th week. The first 2-3 weeks were absolute hell. I think I experienced my first herx ever after my 4th dose. I woke up and the right side of my face was completely numb, I felt like my skin was on fire (nerves), I felt like someone took a baseball bat to my teeth/gums, horrible ear pain, basically everything I had before but x10.
The nausea is something I still fight on this stuff. I actually spent yesterday vomiting. I haven't felt like I've "herxed" since then, but I'm new at the herx thing. The only thing that I've noticed is when I'm doing my treatment for the 4 days out of the week is when my breastbone or the cartilage in it (I don't know if I have cartilage there, but it feels that way) feels like it's SOOOOOO INFLAMED and on fire.
I'm still looking for another herx though.
-------------------- "~*~My smile hides my bite~*~." Posts: 506 | From N/A | Registered: Jun 2008
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posted
Thanks guys for the input. I have run through the mill with misdiagnosis and doctors telling me all is normal or that I have fibromyalgia, or that the anesthesia from gall bladder surgery takes time etc.
The fact is that Lyme was detected later on and I hurt like many others here.
Your support is appreciated, I check on the board from time to time but try not to live here. I am the type that suffers from overstressing on matters and anxiety. I have a feeling that the IV will either "make me" or "break me", hopefully the first.
Nessa, I feel some of the things you describe, especially the burning. And after a few days, my symptoms also feel 10-fold. I pray that it is beginning of herx and should go away with time.
Thanks again,
DG
Posts: 69 | From New York State | Registered: May 2008
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