posted
I would like to know if anyone else has had seizures because of lymes. I had 3 alittle over 18 months ago and have been taking keppra because of them. My LLD told me that if I have not had another one in 6-12 months that I should stop the keppra. My neurologist says there is no way that the seizures were caused by lymes and even though he cannot tell me what caused them, he says to continue with the keppra. I beleive my LLD and my tests came back positive from igenix, so I know its lymes I'm fighting. I would like to know if anyone else has had to deal with anything similar. I could go on for quite some time, but you have all heard this story before. Thanks for any feed back.
Posts: 3 | From Minnesota | Registered: Sep 2008
| IP: Logged |
posted
I have small seizures. Basically I just fall down, but do not pass out. I used keppra for awhile, but then it stopped working and am now on klonopin. Now I just get bad muscle jerks, but do not fall down.
Seizures can be caused by lyme and I am hopeful treatment will help them go away.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10198 | From Illinois | Registered: Aug 2004
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Original post spaced for easier reading:
---
I would like to know if anyone else has had seizures because of lymes. I had 3 alittle over 18 months ago and have been taking keppra because of them.
My LLD told me that if I have not had another one in 6-12 months that I should stop the keppra.
My neurologist says there is no way that the seizures were caused by lymes and even though he cannot tell me what caused them, he says to continue with the keppra.
I beleive my LLD and my tests came back positive from igenix, so I know its lymes I'm fighting. I would like to know if anyone else has had to deal with anything similar. I could go on for quite some time, but you have all heard this story before.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
You wrote: " . . .My neurologist says there is no way that the seizures were caused by lymes . . . "
-
Did your neurologist actually say "lymes" with an "s" on it? While often people new to this will add the "s" any doctor who has read much on it at all would not.
But, the bottom line, is that your neurologist is wrong. Wrong. Wrong. Wrong.
I deal with seizures from lyme - but I also have an inner ear problem (and that can often go with lyme).
Any sudden sound, motion or flash can trigger one for me.
Adrenal exhaustion can also play a part (and that, too, if frequent with lyme).
I have a few articles and I know there are many more out there.
I have to just leave it with: YES, lyme can cause seizures. ANY infection, ANY overload of toxins can cause seizures.
Many of the seizure drugs can be toxic to the liver and that can hamper lyme treatment. On the other hand, seizures need to be controlled and minimized as best they can.
But, there are many ways to do that.
Your LLMD should know the best about this.
in the meantime, you might want to search in the articles at www.vrp.com for "seizures" - There is a fabulous article there about what you can do from a nutritional and supplement standpoint.
I assume both your doctors have suggested a gluten-free diet as gluten can be a trigger for many who have seizures. For myself, it is clearly a connection and if I get even a bit of gluten by mistake, within three days, I'm on the floor.
This may sound like a lot, but many of the self-care (uh, word??) things - are also what most lyme patients incorporate to help the treatment have a better chance.
The liver support measures are the most important.
AND - be sure to check all your foods, mints, etc. to avoid totally even a trace of aspartame/Nutrasweet/Equal. That alone can cause seizures. Also avoid MSG (in all its names - see google). And, of course, alcohol, but that you already know as it doesn't go with the lyme treatment.
I may come back and share of the research I've collected over time, but - later.
Most of those who have lyme and seizure activity are delighted that, with successful treatment for lyme and coinfections (and liver support and heavy metal detox), that seizures become history.
So there's a lot of hope for you.
Good luck.
==========
Magnesium can be the #1 best seizure preventative. Low magnesium (as if often the case with lyme) can be a single cause of seizures. PubMed backs this up.
Regular cat's claw tincture (from Herb Pharm) also really helps me.
---
-
[ 14. September 2008, 04:21 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic