posted
I was Dx. with fibromyalgia in 2003. I am 48 years old and retired due to an on the job injury. About 53 difference meds in different combinations later I continue believe there has got to be a better answer. Maybe I am wrong. 3 or 4 times tested for lymes, one was positive but never treated for Lyme.
Are these two misdiagnosed for one another often?
Can someone give me some direction on physicians in my area? Loudoun County Virginia.
Thank you for your time. Mary C.
Posts: 2 | From Loudoun County, VA | Registered: Sep 2008
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
I was also diagnosed with Fibro right around the same time and I finally got my Lyme Diagnosis in 2006. I was positve on a Quest test (which is rare) and Igenex.
If you really want an accurate test you need to use a reliable lab like Igenex, Stoneybrook. You also need a doctor that is able to read the tests.
You may want to get copies of all of your Lyme tests that you've already had. The pres of our state Lyme association later found out she had EIGHT positive Lyme tests before a doctor diagnosed her with Lyme.
I hope you can sort this out!
Posts: 1761 | From USA | Registered: May 2006
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posted
I was also diagnosed with FM first. It took my daughter getting sick with Lyme and encouraging me to see her LLMD that led to the Lyme diagnosis. The syptoms are very, very simalar.
Find a lyme literage MD quickly.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
My lyme doc said that lyme causes fibromyalgia. He used to have fibro and treated many fibro patients. Then, he started testing them for lyme and 100% of them were positive for lyme, as was he.
He now treats fibro patients for lyme and they get rid of their fibro. I have sent a number of fibro patients to lyme docs and they all got rid of their fibro, including one on Social Security disability for fibro.
Good for you for not settling for a fibro diagnosis which is really just a description of symptoms, NOT a diagnosis.
Get a good lyme doc who will send your blood to Igenex (a tick speciality lab in California) to REALLY test you for lyme and the co-infections that come with it.
Then, you will find out what diseases you really have.
Also suggest you read the Dr. Joseph Burrascano lyme treatment guidelines and become more educated on this disease so that you will know what good lyme treatment looks like. They are here:
posted
I wasdiagnosed with fibro before Lyme.
Posts: 72 | From Southeastern PA | Registered: Aug 2008
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bettyg
Unregistered
posted
yes, i was diagnosed 1st with cfs and later fibro, and finally 34 yrs. later with correct dx of chronic lyme !!!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
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Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
lots of detailed info on western blot igm/igg blood test and igenex details in my above newbie package link!! check out table of contents on finding it! glad you found us.
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