posted
I just got done my 3 weeks of Doxy 100mg twice a day. I made an appointment to see a Lyme doctor for next week. I dont have any muscle twitches or pain, or much joint pain, but I am constantly tired, and feel like I have ADD. I am also dizzy a lot. If you were me, would you wait to see a doctor? I know I am no where near as bad as some of you are out there. I dont want to make more of my case more then it is. Here are my results from when i first got diagnosed.
Lyme IgG/IgM Ab 3.19 IgG - P41 - Postive IgM - P41, 39, 23 - Postive What would you do??? Posts: 28 | From Elkton, MD | Registered: Sep 2008
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posted
Any of those bands "IND" ? You have been under-treated at 100mg. a day for 3 weeks. I think you should see a LLMD. You have Lyme symptoms and should be tested for co-infections. Dirty ticks don't just pass Lyme to people - there are a host of other things possible. Good Luck and get well soon Peedie
Posts: 641 | From So. CA | Registered: May 2008
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adamm
Unregistered
posted
For early Lyme , it's gotta be 400 mg/day for at least 2-3 months.
Anything less and you could very well be looking at eternal
damnation.
Check out lymecryme.com and lymeinfo.net for pretty much all you
could want to know about the disease.
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I would get to an LLMD ASAP. You are not blowing this out of proportion. You are not better and need more treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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You need 400mg per day minimum for 6-8 wks...minimum.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
You have Lyme Disease and require much more aggressive treatment. 100mg is under treatment and can make the infection much more difficult to treat if it's not solved quickly.
See a specialist quickly.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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First, welcome. Sorry you had to find this site, but I hope you find helpful suggestions.
I know this is a great to take in, but you can always just read a bit now and come back to it.
You say: " . . .I know I am no where near as bad as some of you are out there . . ." end quote.
And we want to keep you from that.
Proper Lyme treatment is never just with one medicine as the spirochete has various cycles and forms and doxycycline will not address the cyst form.
This is not meant to scare you, really. However, as you are having symptoms, it is vital that you see a lyme literate MD (LLMD) for further evaluation, assessment of other tick-borne disease (TBD) and advice on liver and endocrine support measures.
Your current doctor likely followed old information or the IDSA guidelines. The IDSA (Infectious Disease Society of America), sadly, is seriously uninformed about lyme and other TBD.
The information below is not meant to scare you . . . it may . . . but this infection demands a heathy respect and attention so that you can achieve success during this brief window of opportunity.
The sooner you get complete treatment the better chance you have.
Be sure the doctor you are to see is ILADS educated. It would be great if s/he is a member of ILADS, too.
Best of luck. Soon this will all come together. Take care.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- FULL ARTICLE AT LINK ABOVE.
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
=====================
`` . . . the immune system does not begin to repair itself until the beginning of the fourth month of antibiotic treatment. . . . ``
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
- 2/3 down the page, you can download Guidelines for the management of Lyme disease
You can also find Dr. Burrascano's treatment guidelines here or at the LDA site. Dr. B's set is more expansive especially about patient self-care guidelines. Very important.
- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)
You can read more about it here and see customer reviews.
-
[ 16. September 2008, 11:31 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Oh, as for help with symptoms right now, be sure to avoid anything that is meant to boost your energy. You may feel tired, but gentle support is the key.
Avoid alcohol and sugar. Green tea during the day may be good to help with energy.
Ginger capsules (or a ginger tea from a tea bag or your kitchen spice rack ginger) can help the vertigo.
Rest as much as you feel the need, but also try to get gentle (not aerobic) exercise. Light walking, etc.
For a while yet after doxy, you may still be sensitive to the sun, so be aware of that.
Fish oil, a good multivitamin and probiotics will be helpful as will milk thistle and maybe the supplement cordyceps to help support your adrenal function and offer some energy, gently.
Drink lots of water and, if you can, full body massage can help a lot to get some of the toxins out. Lyme is a very toxic illness and treatment is no picnic either. The milk thistle is for your liver support, too.
The FISH OIL will help your brain.
Gotu Kola is a supplement (not a kola) that can also help you think more clearly but it is not stimulating. Still, I would not take it too late in the day.
This is not at all a book about lyme, however, you can read more about some of the supplements at:
Sarsaparilla (the only reference to lyme in this book) - this helps get toxins out of the body
Fish oil (I think it's in this book somewhere)
Liver (this is great at explaining liver support)
Scullcap can be helpful for deeper sleep and to help the nervous system heal. Just a drop or two to begin, though, until you see how you feel the next day.
=================
Perhaps of interest, too, are two other books, specifically about lyme listed below.
And I balance the certainly of overloading you with your right to have all the information you need to make a decision. So, I add one more link to a thread about a treatment being done in Germany that some have found successful with the Bionic 880 (without drugs).
You never know, you might just have a friend or neighbor or be ready for a trip to Germany. Currently, I am not aware of any doctor here doing this. Although a frequent poster, GiGi might know.
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The
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