posted
Hi this is kinda long but I feel I needed to
include all the info, and I really need some
help, so if your up to reading this please do.
So I've been sick for over a year now and was
clinicly diagnosed with Lyme about 6 months ago
by Dr.M in NYC. I never tested pos, but had all
symptoms plus a bite and bulleye rash 9 years
ago.I was on Doxy and ceftin, which seemed to
work for about 4 months. I would herx and
be a bit better month by month.
Then I went on a trip to London, at first, I
felt the best I had in ages, but by the end I
was very sick, This lasted much longer then a
normal herx, about a month.
Dr.M decided it might be something else besides
Lymes like Lupus, he took me off of the abx and
onto steriods to see how I would react. Needless
to say I became much much worse, I quit them
immediatly and slowly started my doxy again and
then those symptoms slowly went away.
The real problem began when I upped my doxy to
200 mg, I got really sick which I thought was a
herx it lasted for one week, the 8th day I was
better but the next day I was sick again. I was
miserable for 2 days and bedridden but then the
real bad stuff started. For the next 4 days
whenever I would eat, even the smallest or
healthiest thing, I would have a pain episode,
where the pain that I was already having would
triple, my head and stomach felt like they would
explode and sometimes I would vomit. I was taken
by the ambulance to the hospital, they didn't
want to admit me, but I made them for pain
management.
For the four days the episodes of pain would
last for about 4 hours but when they
finally went away I still felt horrible, the
worst. Then after day four the pain episodes
stopped happening with food and just became
continual. The hospital did many tests but
couldnt find anything, they kicked me out even
though Im in just as much pain and just as sick.
Dr.M had previously told me that the oral abx
werent working anymore because I needed to
do I.V., then he told the docs at the hospital
that the oral abx wasnt working anymore because
maybe it wasn't lyme. Now I cant seem to get
ahold of him to explain this to me!
I've been in extreme pain for the last year and
dealt with it, I never imagined it could get
this much worse. I also can barely eat now and
have already lost 10 lbs. Does anyone have any
ideas or had something similar happen? please...
Posts: 42 | From new york | Registered: Nov 2007
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I can't believe a doctor would take you off abx and put you on steroids! Are you sure this is an LLMD???
I would make an appt. with an LLMD. You still need treatment. Sorry you're feeling so bad.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
six goofy,
something odiferous about this kitty's litter box...
or whatever she called an llmd was not one!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Are you sure your dr is a llmd? Were coinfections considered?
maybe its time for another llmd opinion.
just so you know doxy caused lots of stomach problems including pain /nausea for me...
if you ask around lymenet i think you will see that alot of us have found it to be hard on the stomach.
Hope you find some answers that get you feeling better soon.
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