posted
please could someone tell if they are ligit lymes? IFA positive WB IGG: 31 and 41 positive WB IGM:41 positive. i have all the neuro symptoms listed. thank you all so much, chris
Posts: 22 | From utah | Registered: Sep 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Band 31 is Lyme specific. Since you have symptoms, I would say you have Lyme. Please find an LLMD (Lyme-literate MD).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Band 31 is Lyme specific and usually shows later in infection if at all.
Hopefully you have a LLMD and can begin treatment.
Best, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Sorry you find yourself here now. But, welcome and we'll all do our best to help you find what you need.
First, I assume you have various symptoms or you would not have been tested.
Did you EVER have a bulls eye rash or other unexplained rash (especially after a tick attachment)?
A rash does not present in all cases and there are many ways it may look, but a bulls eye is ALWAYS lyme. If not treated, or undertreated, it can return.
Other kinds of rashes can indicate bartonella or RMSF (Rocky Mountain Spotted Fever - and it is not just in the Rockies).
The information below explains that tests are not the sole criteria for diagnosis. It also explains why specific labs are required and specific doctors who are either ILADS members or very familiar with the research by those who are.
Lyme Literate Medical Doctors (LLMD) are what patients call doctors who know enough to treat lyme and associated tick-borne disease (TBD).
Doctor who follow the IDSA guidelines (see Savely article below) have (most often) rejected the severity of patients' condition as well as much of the research.
A LLMD can help to determine if you have lyme - nor not. A LLMD will also assess for other TBD and, hopefully, other chronic stealth infections (Cpn, HHV-6) that cause similar symptoms.
A LLMD who has seen hundreds and thousand of TBD patients can distinguish one set of symptoms from another, although many TBD can be affected a person and a good LLMD would know just how to proceed.
There are at least two excellent books on alternative paths (that also can incorporate abx (antibiotics) but first you need to know what you are dealing with and then go from there. Most LLMDs incorporate complementary methods, especially for liver and adrenal support.
I hope this works out well for you and that you are soon on a path to success with this.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
- FULL ARTICLE AT LINK ABOVE.
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed in the Savely article due to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
- 2/3 down the page, you can download Guidelines for the management of Lyme disease
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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See my response in Seeking a Doctor.
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