posted
somebody feel better with nightfall? can be by melatonin? taking melatonin somebody feel better in symptoms? greetings, ant
Posts: 108 | From spain eur | Registered: Apr 2005
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
no not melatonin for me but im the same way..
its another lyme mystery
derek
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Since you are suffering from a form of sub-acute enchephalitous at varying times...this means that the signal of light can irritate your optic nerve and the occiputal lobe of the brain.....
This becomes more irritating in the 'dusk to dawn'....'dawn to dusk' times of the day.
Long shadows and contrasting light will cause things to worsen also.
WHen the sun is down.....your optic nerve relaxes...and so do YOU.
Trout
Not an MD...just Lymie.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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posted
I also feel better at night then during the day
-------------------- Christina Posts: 102 | From Lacey Washington | Registered: Jul 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I have POTs and NMH.
I usually do better in afternoon as well as evenings.
Unless I am herxing.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I start feeling better at night too, around 7:30 or so.
Trout, thank you for that optic nerve info, makes sense.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I, too, feel better in the afternoon and evening. Since there are so many with this issue, thought I'd share this recent experience:
My partner recently saw Dr B give a lecture, and Dr B mentioned this pattern. Until then, I had not mentioned it to my LLMD, just chalked it up to part of the Lyme experience.
Once I mentioned it, LLMD ordered an adrenal panel (saliva test) and called recently with the results.
LLMD summed it up this way, "I can see that you feel terrible in the morning, start to pick up a bit around noon, feel fairly well in the late afternoon, and then can't sleep at night."
My morning cortisol is extremely low (morning is when it should be highest), it begins to climb around noon, but does not reach anything like a normal "morning" level until 9 pm. At that point, our cortisol level should be fairly low, so we can go to sleep.
If that pattern seems to fit any of you, you might consider looking into cortisol testing. Taking just a tiny amount in the morning seems to be helping me tremendously.
Hope this helps.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Tracy, since Ant is in Spain, it's the wee hours when we start at 8! I was guessing you had insomnia Ant!
I was like that. My LLMD prescribed sleep medications so that I could get adequate sleep.
It's hard to go to bed when you know you will feel worse in the morning.
Mine is getting better with treatment. Also since I got rid of that Select Comfort bed that was moldy! I have slept well every night since then. So, maybe also check your room for mold or other toxins.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by cactus: LLMD ordered an adrenal panel (saliva test)
LLMD summed it up this way, "I can see that you feel terrible in the morning, start to pick up a bit around noon, feel fairly well in the late afternoon, and then can't sleep at night."
My morning cortisol is extremely low (morning is when it should be highest), it begins to climb around noon, but does not reach anything like a normal "morning" level until 9 pm. At that point, our cortisol level should be fairly low, so we can go to sleep.
That is exactly my problem, too. I also had the spit test. But I haven't tried yet to take a bit of cortisol in the mornings. Thank you for mentioning it.
I had another test done which found that I'm extremely low in many minerals, vitamins and amino acids. Since I'm supplementing what I'm lacking, the difference between morning and evening isn't so big anymore.
I think it's the lack of nutrients which is causing this hormonal imbalance.
Gabrielle
Posts: 767 | From Germany | Registered: Feb 2004
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Gabrielle, what test did you use to find out what you're lacking?
I would love to try it.
Since supplementing with the cortisol, I am amazed at the difference - and anything that might enhance that would be such a gift!
Supplementing Vit D has helped, too, as well as B-12 injections, by the way.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
yup. Crappy in morning... then usually switch over to somewhat "human" feeling sometime from mid-afternoon to evening. Sometimes it's a very distinct switchover. Boom and I feel better.
Posts: 386 | From Southeastern PA | Registered: Oct 2007
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The full nitrostress profile was far more comprehensive (vitamins and fatty acids, gut flora profile, etc.) but my doc (not my LLMD) wasn't willing to do everything He said: you don't have that!
When he saw my bad results he went: "But if you are lacking so many nutrients you must feel very ill".
Hello???? I didn't see him because of his nice blue eyes!
Gabrielle
Posts: 767 | From Germany | Registered: Feb 2004
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posted
I always feel worse in the morning and better at night.
Posts: 59 | From CONNECTICUT | Registered: Sep 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Gabrielle, thanks for the test info! I wonder if we'd all have results similar to yours...
Will do some checking around to see if it's possible to get a similar test done here.
Anything to feel well in the mornings...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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