posted
mo, thanks for your update. so glad dilly and all other suggestions are helping you.
best wishes today with the person helping you! praying it all goes WELL !!
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Mo-
the info about Clinton's constituency services was FYI, so you are prepared to counter staff telling you what can't be done for you.
You're right- you should definitely call. I'll work this AM on finding the appropriate staff member.
I'll PM that to you when I get it, as well as the research I've done on the rehab facility, some of which may be very pertinent to a conversation with Clinton's office.
dill
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Mo I am so sorry.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
checking it out now. i'm trying to be prepared for assistance, while at the same time not wanting to intimidate or **** off the facility we need help from.
i've learned fighting doesn't win, but phrasing a true plea for help with the subtle alert to the facility that we have legislative support for our son's needs, could.
thanks for the info, i'm sure i'll be able to do something with it.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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hospital has tackled an external appeal for us, and thank god still keeping him as per his need.
we have to keep our fingers crossed and with all the help and support received i feel hopeful despite the odds against him.
lithium was doubled today.. many tbd symptoms are present, he is on mino and rifampin and if (no, when) we get to the tbi/abi sub-acute care facility the next battle is keeping him on tbd treatment.
there was some movement in the direction toward the tbi program today, but not fully secured.
thanks for all of the help here, much of it has or will help somehow.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Aha....Irish whiskey with a beer chaser....you and dilly got my attention.
I wish I could help you with the legalese Mo but my expertise is in self treating and abx combos...though still amateur.
But If you need a shoulder I'm always here.
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Mo-
sorry,didn't see your PM til this am- just replied.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Up for more ideas and prayers for Mo and family. lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
up
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Mo-
unbelievable. i'm so sorry you're going to have to go through another round.
am PM'ing you Posts: 2507 | From lost in the maze | Registered: Aug 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Mo-
unbelievable. i'm so sorry you're going to have to go through another round.
am PM'ing you Posts: 2507 | From lost in the maze | Registered: Aug 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Dear Mo,
Your family is in my prayers.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
Dear Mo,
Your family is in my prayers.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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the external appeal was denied for insurance, so i'm sure our welcome at the hospital my son is in will be worn thin by monday.
at the same time, the brain rehab facility as issued a discriminatory, arbitrary and capricious denial of my son for admittance, after leading us around by the nose for a month.
this leaves us in the nightmarish position i was so afraid of. no more hospital stay, unless they keep him based purely on medical need and charity.. and no place lined up to go.
i have tried to fight the brain rehab denial with a letter documenting the outrageous verbal denial reasons given, and cc'd many local legislators, plus the heads of the company. that may or may not help.
meanwhile, we have to find some placement where he will be kept safe until stable.
lithium is unclear as to whether it's helping at all, it definitely has not made him stable enough to be safe at home or in the community.
i sit here wondering how this can happen. guess it's about time i rent the movie sicko, cuz we're living it.
still fighting, there must be a solution. please keep up any good thoughts you might send our way. i really appreciate them.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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bettyg
Unregistered
posted
mo,
i can't be their physically for you, but this as close as i can get to you right now!
i'm so sorry for you!! people weretossing out ideas like crazy; it's ridiculous nothing worked.
we have many LAWYERS on this board, and i have referred some to your post hoping they could give "general" info without jeopardising their licenses. i hope they may have PMed you with any ideas they have.
god, please help mo's family with their very ill son! please provide them a miracle by showing them the way. amen.
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posted
up, even tho you can't see what i wrote!
Posts: 8337 | From the other shore | Registered: Jul 2002
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bettyg
Unregistered
posted
MO, PROBLEM IS FINALLY FIXED!!!
page 3 now shows plus ALL of our invisible replies i think!!??
i'll check mine out as i go.
your pm box should be there? is it FULL??? ******************************************* that might be one of problems w/it too!!
copying this from COMPUTER QUESTIONS HERE
posted 27-09-2008 11:20 PM -------------------------------------------------------------------------------- Fixed it--found one file that tracks active topics that had some bad data inside;
I rebuilt the file and all is well now. Sorry for the inconvenience!
-Tom
--------------------
Thomas Brown LymeNet System Administrator and Founding Member
no, my pm box is not full, so anyone with ideas, fire away.
many have offered help that i'm following up on actively, but the situation remains dire.
dilly has given me allot about admission regs, the insurance went to external appeal already so i don't think we can fight that, just need to know how to fight hospital discharge.
without sub-acute neurobehavioral rehab care in place, he cannot safely be discharged. we'll figure out the horrific money situation later.
priority is medical necessity and safety.
...and, with our situation, they can't draw blood from a stone anyway. ugh.
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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P.S. Do have one question? Was the external appeal with the state insurance commission or who?
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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