seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
After being on Abx for 5-6 weeks now (Zith) and now Malarone, the herxes didn't hold a candle to what 2 fl oz of Nature's Alive Mangosteen juice did to me last night.
Within 30 minutes, my body flushed up so bad I was on fire. My legs got weak. My arms felt like lead. My jaw cramped. Very scary.
This is some potent stuff. I shudder to think of what a 32 oz bottle would do. I'd probably be dead.
Is this farfetched? It seemed real as can be.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Seek,
What is your diagnosis?
I'm considering this for my son.
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Lyme / Babesia. PLEASE be careful with it. I didn't even take the Xango stuff. Hopefully, it works.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
I'm learning it's an antinflamatory. By what mechanism does it do that? Is that due to the die off of bacteria?
How long does one need to stay on it? What determines when you stop taking it? Do symptoms return if you stop it so it pretty much becomes a lifetime daily drink? I guess that relates back to the mechanism for which it works in the first paragragh.
I just want a plan here if I go this route.
Anyone...Lymetoo......
Thanks
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
It's a COX 2 inhibitor... hence the anti-inflammatory effect.
For me, it's a daily long term drink... which I gladly ingest. I am much older than your son, so I probably have old-age inflammation he would not necessarily have!
I've had arthritis pain for more than 30 yrs....so unless we find a cure for Lyme, I'll be taking it forever... and why not? It's a great immune booster and preventative.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
I can't tell a difference one way or the other...Maybe it doesn't reach crainial blood vessel inflamation?
I do drink this daily though, as TuTu said, "what can it hurt"
Unless of course one reacts like Seek! Did you give it another go today?
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Cranial nerve inflammation is a tough one! I do know it helps when I have sciatic nerve pain. It's better than the best pain meds.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Not Xango TuTu. Costco's brand.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Alv
Unregistered
posted
Before I knew I had lyme and company ( was very sick ) I took a parasite cleansing and finished a bottle of XANGO in within the day ( was tasty ) .I ended up in ER with tachocardia.
I had LYME , babs , bart , ehrlichia , muc fementas and viruses...all activated...NO WONDER.
Be careful as it is very powerful if you are loaded in BUGS.
I was taking it for a year 3 onz at morning and was giving me releif for the body pain ...
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I will be there tomorrow (cheapest Fluconazole) and wondering if I should pick some up but I have been disappointed with their brand of other supplements...
Not sure what I have either. Plus, money is tight.
Thanks, Sam
Posts: 68 | From Pittsburgh | Registered: Aug 2008
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
very interesting...
does anyone here have migraines, and does the mango hurt or help?
anyone with neuropathies? hurt or help?
Posts: 1173 | From USA | Registered: Nov 2007
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posted
I know we all drink different mangosteen versions. I drink the Ultra mangosteen version with 70 minerals in it. It mineralizes my nails - ie, turns them hard instead of soft. I get it online from vitacost.
For me, stops all Lyme eye symptoms, keeps my intestines regular and stops my gums from bleeding. I drink a little bit every day.
Posts: 13117 | From San Francisco | Registered: May 2006
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Angelica
Unregistered
posted
Thanks Robin because I have had gum problems lately and will have to try some. How much do you think you drink a day?
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
It kicked your octathorp?
Posts: 2905 | From New England | Registered: Sep 2004
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posted
I've been drinking mangosteen for a few years-- But I drink XanGo. Xango has some patents on its formula, and from all the research I did when first starting it, a lot of the knock-off brands do not use the whole fruit (including the pericarp/rind), or may use an extract etc.
General amt to take is starting with 1oz 2x day, for people with more acute probs 3-4oz a day, more severe issues 5-6 oz a day, etc. It does have great anti-inflammatory properties. I think you definitely need to start slowly on it to see how your body will respond.
At some point I was up to 2 bottles a week, which is a lot. This was before I knew I actually had Lyme, and was just trying to help control my FMS symptoms. It has helped me with some issues like bursitis in my shoulder, stiff painful hands in the morning, but never with my overall pains.
Lately, I haven't been taking it regularly, but its interesting to know that many of you are taking it, and getting some help with it.
Yes, as someone said, its really important to drink a lot of water to flush out your system.
Also, spreading out your doses 2-3x a day is helpful to keep it in your body.
Posts: 19 | From Indianapolis | Registered: Jul 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
When I started Xango, I got the worst headache ever!
Seemed like a die off of something.
I take mine with fatty foods for better absorbtion.
I give my children about 1/2 an ounce a day too.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
I've been taking Xango for 3 years and love it! I think I posted on here that my husband was out-of-town the week I started it.
He was shocked when he came home and I was working in the garden. It did give me a real energy boost and still does.
PM Tutu, she can tell you where to get it. One of my son's friends gave me a bottle of that new stuff that is out - Monavie. It did nothing for me. I didn't even finish the bottle plus it didn't have the great taste of Xango.
posted
Isn't Xango MMS (multi media scheme)? I mean isn't it just a bunch of fruit concetrates (which are not very good for you)?
WHy can't you just eat all the fruits that are in xango and for much cheaper?
40$ for a bottle of fruit juice is ridiculous.... But if it helps than go for it!!!
I was going to try it until I read more into it and how it was MMS.
I hope it continues to work for you.
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
unexpectedills,
You mean MML? Multi-Level-Marketing?
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Yes your right feelfit!! My brain slipped away from me LOL
Lymetoo the proof is in the pudding and I havent tried it yet.... but I was just going by what I read....
If I could afford 25$ a bottle I would try it just to see for myself.
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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posted
Angelica, I drink 2-3 oz/day of the Ultra mangosteen juice. I order it online from Vitacost. It's pretty cheap there.
Unexpected Ills - you can't get what you need from the fruit - they grind up the rind to extract the anti-oxidant xanthones.
About the juice strengths: Xango is the strongest. The rest are blends. I personally can't handle Xango - gives me a headache.
I'm not as far along in Lyme treatment as Tutu is; that's my guess as to why I can't handle the heavy guns, so to speak.
So the Ultra with its other juices and 70 minerals added works for me.
Everyone has to try and see what they respond to.
Posts: 13117 | From San Francisco | Registered: May 2006
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
You can get powder of the rind here without all that sugar and all those other fruit juices. No matter what anybody says, sugar is not good for lyme or candida and adding fruit juices for "flavor" is really just adding to the profit, it's clear. And that means a LOT OF SUGAR.
posted
2.7 grams of natural fruit "sugar" is not too much! Way less than the sugar content of plain yogurt!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
It absolutely *is* too much for some of us and we've had this argument before. Moreover, natural is sort of meaningless, sugar cane is natural, too. Fructose is not well tolerated by some, anyway. And sugar is metabolized more slowly with fat and protein (ie yogurt). I definitely could not drink that much fruit juice without bladder burning, moreover those fruit juices are cheap and I do not believe they're added for flavor, it's for profit.
Here you get just the powdered rind, and it's pure.
I'm glad it helped you but since you profit from it yourself, you may not be objective.
Posts: 2276 | From united states | Registered: Jun 2004
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
O2
I get tired of people thinking that others profit SO much from the sale of a Product that they would LIE about the facts and figures.
What a shame that you would put that on Tutu's shoulders.
The fruits used are blended for synergistic value. Look at the ones they use...oh, and the fact that the company got rid of a preservetive and then had to add in the bottle pasteurizing to preserve the fruit in the bottle...oh, and lets not forget that the bottles that they switched were an increased expense....and the fact that they have proven to be one of the biggest Privately Funded charity givers in the USA when contributions are weighted against the net profits of the company.
No O2.....you are wrong in this case.
And by the way....I don't drink 'the juice'.
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
I said she may not be objective. That's fair.
Show me the science that shows the fruit juices have synergistic value and that justifies the cost.
Sorry, I don't see it. Xanthones are unique, and for many, the sugar in this product is too high.
That's my opinion and I'm sticking to it and I gave the URL of a reputable company offering the powdered rind. I have been backchanneled by people thanking me.
Posts: 2276 | From united states | Registered: Jun 2004
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The harder you work the luckier you get! Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Bryan Rosner also does not state the risks of the Marshall Protocol on which some people have gotten horribly ill, nor does he state the risks of the salt/c protocol which has damaged kidneys and hearts in some folks.
Bryan Rosner also claims with no evidence that hyperbaric oxygen drives borrelia into the cyst form.
I wouldn't count on Bryan Rosner as a reputable scientific source. Take what you can from his information but fact check it all, rigorously.
I'm just offering what I found (and have not tried), a pure product, not MLM, and no extra fruit juice added. People can take whatever they want. I gave them another option.
[ 22. September 2008, 08:44 AM: Message edited by: oxygenbabe ]
Posts: 2276 | From united states | Registered: Jun 2004
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That's my opinion and I'm sticking to it and I gave the URL of a reputable company offering the powdered rind.
They'll come away thinking mangosteen "doesn't work."
Oh well....
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Why is that, Tutu? Have you taken this company's powdered rind and found it ineffective?
I wish you only the best but that is unfair, to say a product is ineffective if you haven't even tried it, and to suggest that the only effective product is the MLM one that helps you (and that you sell).
I am sure you are sincere but I have given good information.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
Just my opinion... and the opinion of customers who have tried powders, potions, and watered down drinks.
I don't care who buys what.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Was channel surfing one day and saw Dr. oz on Oprah.
he was mentioning what things people might take in general to help with health.
Xango or Mangosteen was one of those products.
Sorry, can't recall the others right now.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Just remember, for anyone trying mangosteen for the first time, be sure and drink a lot of water with it too, to help with the detoxing impact.
Posts: 13117 | From San Francisco | Registered: May 2006
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