posted
Does anyone else have this problem? I am wondering what it specifically relates to.
I noticed it first starting over a decade ago, long before I was diagnosed or disabled. Friends had a hot tub, but whenever I got in it I would become overwhelmed with air hunger where I had get out or sit on the edge facing the breeze after less than 5 minutes.
Now, just getting in my own shower does the same thing to me. I have noticed it being worse since I started Red Root Extract. When I take a bath I can't have the water too hot or I can't breathe. It feels like I am suffocating or trying to breathe through a hot wet washcloth. Very wierd. Any ideas about causes of this?? Thanks for any help:)
I can only imagine that those in hot humid climates must really suffer.
I was diagnosed with Lyme and Babesia Duncani within the last month, but have had symptoms for years (diagnosed FM/CFS 15 yrs).
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Interesting; I've always had this problem but never related it to Lyme. I have the exact same symptoms/feelings you describe.
I can't even stand getting a facial; the part where they blow steam in your face makes me feel like I'm suffocating.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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adamm
Unregistered
posted
Sometimes when I get really overheated--neither of the LLMD's
the hot water dilates our blood vessels, which rapidly leads to the orthostatic intolerance you're experiencing. It's like standing up with blood rushing downward even faster than it usually does.
-joey
Posts: 713 | From Los Angeles | Registered: Oct 2007
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posted
hi Joey, nice to hear from you again! Thanks for explaining this strange phenomenom. I plan to bring it up to our LLMD at my next visit. I'll email you on what he says:)
Joey are you still taking the Biotech Cell Guard supplements with the elements mentioned by Dr. Cheney as being important precursor elements? I completely forgot about following through on that until today. My brain went into overload after first learning I have Lyme and Babesia Duncani so I lost perspective on those discussions we were having on the other board.
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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I've been meening to reply to this for a while; sorry for the delay! I don't know if I can be of any help, but I'll share my experience with you in hopes that it will help.
Just like you, which is kind of ironic, I too have lyme and Babesia WA 1 which I'm pretty sure is Duncai.
I was infected 18 yrs. ago; the original typical sx of flu, joint pain, fever, rash etc...lasted about 2 months. They dx me with Lupus. However after feeling somewhat better with small sx here and there.
I started to notice the same thing!! I remember going into a suana and I couldn't breath and was so weak, I could barley walk. Then I went in a hot tub, same reaction!!! Friends had to help me out as I didn't have the strength to get out. Then the hot/warm baths---same thing.
So silly now that this went on for years and I never thought anything of it; over a decade like you. I finally mentioned it to my Dr. and then the dx of M.S. was made.
After finally being dx 2 and 1/2 years ago, they did a 24hr urine hormone and endocrine test. As it turned out, this was the cause!!!
As far as me, my Adrenal gland, pitutary, hypo-thalumas, everything was not working. All of these gland produce hormones to regulate your heart rate, B.P.; well just about everything! So as a result, your body is unable to adjust to the tempature change.
I have to take warm showers with a box fan in the bathroom. NO HOT TUBS, BATHS, OR SAUNAS! And your right, living in a humid very hot enviroment is difficult. On a good day if I can make it to the river, I have to keep my legs in the water or I'm done!
Please talk to LLMD and have a 24hr urine like what I had. It can't hurt and it may help you a great deal.
Sorry this is so long! It was interesting to see someone with the exact same sx's! I wanted you to know that you're not alone and you need to discuss it with your Dr.
Take care!
Posts: 351 | From Georgia | Registered: Feb 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I use too I noticed if I turned the hot water down so the water was just warm I did better.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Hot water feels beter at first, but then I get sicker afterwards.
I was also thinking of the toxins in the water being absorbed in larger quantities by the skin because of the heat.
Posts: 2905 | From New England | Registered: Sep 2004
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
Jam,
Just like you and scared, I also have Lyme and Babesia Duncani.
Especially before Babesia treatment, I got the "can't breathe well" feeling while taking a warm shower, like I was suffocating.
It should improve with treatment. Hope this helps.
In the meantime, lecithin may help the air hunger symptoms. You can get it in any health food store.
- J
Posts: 1197 | From New Jersey | Registered: Jul 2005
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posted
Scared and Johnny, interesting that we share such similar and odd symptoms....but, maybe it is not as odd as we have thought since at least 3 of us seem to share very similar symptoms with it! I'll try adding some lecithin in and see if that helps, thanks Johnny for that suggestion!
Posts: 495 | From SF Bay area, CA | Registered: Dec 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I have POTs and NMH and a hot shower or bath can lead to increased air hunger
Or shortness of breath along with flushing of my neck and top of my chest.
I guess I should add more cold water to the mix,
But I am usually so cold (hands and feet) when I get there,
I just can't wait to get warmed up.
I am treating for babesia/Lyme and bartonella.
I may have to live with this though chronically,
Even when I get to remission with Lyme and Co.
Good news while debilitating, it is not fatal.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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