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» LymeNet Flash » Questions and Discussion » Medical Questions » UNDER OUR SKIN - free showing at CentraState last night - Thanks to mtree & her DH!

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Author Topic: UNDER OUR SKIN - free showing at CentraState last night - Thanks to mtree & her DH!
AliG
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Central NJ - UNDER OUR SKIN - free showing at hospital 10/6

Please help get the word out & get people to register.

This is one of my local hospitals and we NEED to make a good showing.

I want them to take our disease seriously and to see just how many lives are affected!!!!!!

If you are in Central NJ, PLEASE tell your family, friends, doctors, clubs/groups, schools, libraries, other hospitals, and anyone else that you can think of.

A good turn-out will benefit us ALL!!!!! [Wink]


http://www.centrastate.com/body.cfm?xyzpdqabc=0&id=34&action=detail&ref=2222

Upcoming Events & Activities at CentraState

Lecture Series

Under Our Skin - The Untold Story of Lyme Disease

CentraState's Health Awareness Center

Date: October 06, 2008 (Monday)

Time: 7:30 pm - 9:00 pm

Location: Conference Center at the NEW Ambulatory Campus

Call: (732) 308-0570 to register (registration requested)

Cost/Fee: FREE

Description: This award winning, new documentary film is a powerful and often terrifying look not only at the science and politics of the disease, but also the personal stories of those whose lives have been affected and nearly destroyed.

A special screening will be presented and hosted by CentraState's Health Awareness Center.


Thanks in advance for any help anyone can give to get the word out! [Big Grin]


Ali [hi]

[ 07. October 2008, 02:08 PM: Message edited by: AliG ]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
mtree
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[Big Grin] thanks Alig...


yes this showing will benefit all Lymies...!!
this is for all of us and our families. [Frown] [Smile]

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
AliG
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Hey mtree!! [hi]

I've gotta try to help our cause anyway I can.

I really hope it gets a good turnout.

I KNOW I'm not alone in being sick & tired of all the misunderstanding surrounding these darn TBDs!!!

I just thought of something.....

I believe whoever did the E.Brunswick Library screening had a waiting list. Maybe they could tell those people about this one.

???

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
AliG
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This is what I sent out, if anyone wants to use it, they're welcome to :

--------------------------------------------------------


Please help spread the word. Lyme Disease is not always hard to catch, easy to diagnose and easily cured, as some people may believe.

CentraState Medical Center is hosting a free, special-screening of the award winning, new documentary film "Under Our Skin - The Untold Story of Lyme Disease". This is an important opportunity and shouldn't be missed.

If you are in Central NJ, PLEASE tell your family, friends, doctors, clubs/groups, schools, libraries, other hospitals, and anyone else who may be able to attend.

Please do not assume that you would recognize someone who suffers from this disease, many are able to hide their suffering for many, many years before their suffering and disability become apparent.

Please make a difference in someone's life today and pass this information on.


http://www.centrastate.com/body.cfm?xyzpdqabc=0&id=34&action=detail&ref=2222

Upcoming Events & Activities at CentraState


Under Our Skin - The Untold Story of Lyme Disease

CentraState's Health Awareness Center

Date: October 06, 2008 (Monday)

Time: 7:30 pm - 9:00 pm

Location: Conference Center at the NEW Ambulatory Campus

Call: (732) 308-0570 to register (registration requested)

Cost/Fee: FREE

Description: This award winning, new documentary film is a powerful and often terrifying look not only at the science and politics of the disease, but also the personal stories of those whose lives have been affected and nearly destroyed.

A special screening will be presented and hosted by CentraState's Health Awareness Center.


Thanks in advance for any help anyone can give to get the word out!


More resources for information on Lyme Disease and other Tick-Borne Diseases:

www.lymediseaseassociation.org

www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

www.ilads.org/files/ILADS_Guidelines.pdf

www.ilads.org

www.thehumansideoflyme.net

www.lymeinfo.net/index.html

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
mtree
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I've seen this film 3 times... [Big Grin]

on October 6th there will be a screening at this Medical Center.... [bow] [woohoo]

do I need to see this film again???does my family need to see it again..? Dose my family that is traveling from out of state to come that night...that has already seen it need to come see it again....?

...the answer...nope...

BUT we all think it is really important to fill up those seats....
will we get a good turn out with the medical community..not sure yet...

but they will know about the turn out....they will hear if it was a success...they will be interested in....hhhmmm why so many people came to see this??

Are ya getting what I'm saying fellow Lymies...?

Even if you have seen this film come....come support us....
if you haven't seen it....why??

It is a voice for us...a good one.....no a great one!!!

please consider coming....lets fill up those seats... [bow]

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
mtree
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just a bump [Big Grin]

--------------------
worrying about tomorrow takes its strength away from today

Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
mtree
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[group hug]

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worrying about tomorrow takes its strength away from today

Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
tickitout
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Just to let you know, I called to register and apparently there is a large crowd registered.

I personally have not seen it yet but looks very interesting.

I hope all of those able to attend do so. It would be great if there is a full house.

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AliG
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HOW WONDERFUL!!!!!!


If we have MORE than can fill the room, I would gladly step outside, as I'm not travelling all that far & I have seen it already, so that someone who hasn't seen it can. [Smile]

That would be an even BIGGER statement! [Big Grin]

If we could get that kind of turn out, maybe we could get press coverage. ????


mtree dearest,

I've made my list, checked it twice & I'm hitting the road............

LOOK OUT DUCKS, HERE I COME!!!!!!

I, of course, will be very pleasant and encouraging because I'M SURE that most unLymeEducated doctors are victims of the propaganda they've been fed and really didn't realize that they could actually be harming their patients. [Wink]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
AliG
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BTW- I've just heard that there's PLENTY of room! [Big Grin]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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mtree
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[group hug]

--------------------
worrying about tomorrow takes its strength away from today

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madge
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Hi all, i just call and will be driving up from so. jer. hope to see you guys there...Madge

--------------------
madgen

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AliG
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YAY MADGE!!!! [group hug] [woohoo] [group hug]

We'll look forward to seeing you!!!! [kiss]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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mtree
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we gave resident doctor DVD to watch...she was very surprised at what she saw...
she will be there on Monday night... [Big Grin]

[group hug] ....mtree

safe trip madge...sorry you have to drive 70 minutes... [Frown]

--------------------
worrying about tomorrow takes its strength away from today

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mtree
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[group hug]

--------------------
worrying about tomorrow takes its strength away from today

Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
AliG
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mtree! [kiss]

quote:
we gave resident doctor DVD to watch...she was very surprised at what she saw...
she will be there on Monday night... [Big Grin]

[woohoo] [woohoo] [woohoo]

[group hug]

Ali

[hi]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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Cockapoo1996
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Mtree,

I think it is great that you are involved with this showing of Under Our Skin. I have seen it and it is a great film!

It makes you cry but also have hope that finally if we keep telling people, they will listen!

So thank you for all your efforts... [bow]

I am looking forward to coming! [Smile]

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mtree
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Cockapoo!!!. [woohoo]

I am so glad you are coming!!!!!
....Dh thanks for driving!!! [Big Grin]

looking forward to seeing you.....

lets hope all of us Lymies feel good tomorrow!!!

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

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mtree
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my last bump....hope to see ya there.... [hi]

[group hug] mtree

--------------------
worrying about tomorrow takes its strength away from today

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AliG
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I'll SEE your bump & raise you one last one. [Wink]

Up for a reminder.

It's TONIGHT!!!!! [woohoo]

See you all there I hope! [Big Grin]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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bettyg
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tonight IS THE NIGHT~!

for you last minute procrastinators !!!!

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AliG
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Hey Betty, Thanks for the boost last night!
You're such a sweetie! [kiss]


Thanks to all who attended & those who spread the word! [kiss]

We filled all the seats & they had to bring in extra chairs!!! [Big Grin]

Thanks to mtree & hubby for making it happen!!! [kiss]

I believe that you did a very good thing for our community by getting the doctor to watch that film.

In reflecting, I realized what I think she took away from it. I believe that she will no longer rely on the bulls-eye rash or test results to diagnose patients.

I also noted that she picked up on stabilization or resolution of symptoms, as being necessary before even getting to the point of "re-treatment" and then considering "chronic lyme".

If she tries to treat patients to resolution of symptoms, she will surely realize that "28 days" is not as effective as IDSA would have her believe.

CONGRATULATIONS!!!! I believe you will be able to take credit for "educating a duck"! [group hug] I hope it's contagious! [Big Grin]

I also hope it will generate some talk in the hospital. [Wink]

mtree & hubby,
I applaud you!

[group hug]
Ali

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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bettyg
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glad it went well, and you had a dr. come to LEARN how to treat the correct way!!! way to go!!! [group hug] [Wink]
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lymephobic
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I'm so upset that I did not make this! I'm glad it went well. I still would like to see it though.
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