posted
posted 29 September, 2008 09:50 AM -------------------------------------------------------------------------------- I am on doxycycline, zithromax, mepron, cef? and flagyl toward end of week.
dealing with lyme (Bb) and babesia, for now.
Even with nausea medication, i am not able to keep drugs down all the time. I am weak, tired, having lots of nerve pain, get very hot , then very cold....
I am at the point where just thinking about taking meds is making me nauseous. Any suggestions?
I have to get well! I can't stop taking these meds. I actually had a good day last week. But this is tough...
anybody else gone through this? Any suggestions.
Really sick, scared and pretty much alone in this...
Posts: 49 | From Florida | Registered: Dec 2003
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Are you taking your meds with food? I had to take them with a meal.
Also, taking Prilosec really helped me with the nausea. I took it every day with my dinner doses of meds.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Mepron HAS to be taken with something high in fat, or it will not work in your body. I used to eat a piece of cheese, or a scoop of ice cream or pudding when I took my mepron years ago...otherwise it has nothing to bind to , and all that money will be down the drain.
that is a ton of meds to be on. Ususlly with babs they will treat that first with Mepron and plaquenil, or chloraquinine..and THEN treat the lyme with doxy...I agree it might be too many meds, and not the right ones to get at the specific coinfection either
Lisa
Lisa
Posts: 14 | From Rhode Island | Registered: Sep 2008
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it helps so much to have fellow lymies to turn to. no one else really understands.
i will try the prilosec.
i am taking a spoonful of peanut butter with the mepron (might try icecream though --- sounds like more fun and i am starting to associate peanut butter with nausea).
I know my LLMD is a little agressive, but have had great results with him in the past. but treatment had to stop for reasons beyond our control.
after 18 months with no treatment, i was back in the hole again.
Now if "they" will just leave him alone, and let him keep treating patients, i might make it all the way through this lymie tunnel.
The agressive treatment doesn't bother me (psychologically, just physically) because even the conservative route makes me sick and i would rather just get it over with.
i actually had a pretty good day last week (on a day I was off meds) so i think i see a little light at the end of the tunnel.
maybe i am wrong (it won't be the first time) but i am so desperate to get my life back.
thanks again. any other advice will be greatly appreciated..
Posts: 49 | From Florida | Registered: Dec 2003
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posted
Be careful with the sweets... you don't want to add yeast to your list of woes.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I read on a slide show from Dr B that DOXYCYCLINE is not to be used with Mepron,
Are you aware of this? Doxy reduces Mepron by 40%, that is what I read on here somewhere. Check this out.
Others have said this too. Mepron is SO expensive and why take it if you are not getting the full benifit of it, run this by your LLMD, see
that he/she says.
I am on Mepron and Azithromycin and it is NOT as effective at all like the Clindamycin and Quinine was. I feel like I have not gotten better much at all, and it has been 5 months.
I herx, get very very sick on it but I am not getting better, so will see what the LLMD says about this.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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quote:Originally posted by Health: I am on Mepron and Azithromycin and it is NOT as effective at all like the Clindamycin and Quinine was. I feel like I have not gotten better much at all, and it has been 5 months.
I agree about the doxy... I forgot about that.
My LLMD says his own stats [with his own patients] on clindamycin/quinine vs mepron is that clindy/Q has a 5% better effectiveness rate.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Dump the doxy...skip the flagyl
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Two things can really help regarding getting food into you.
First, GINGER--ginger tea (especially with some grated fresh ginger put into it also), crystalized ginger, pickled ginger (like from a sushi bar) can really, really cut back on the nausea. This also works great for morning sickness, by the way. Sucking on some ginger, if you can't eat it, will also help.
Second, ZINC deficiency can lead to problems eating. Some of these bacteria LOOOOVVVE Zinc, so you can be deficient very easily. Most health food stores carry a liquid zinc test you can do on yourself. You take a bit of it, swish it around in your mouth. If it tastes like water, you're VERY DEFICIENT. If it tastes awful, you're not deficient.
Since I've had Lyme, the stuff has never tasted bad to me--even when I get 100 mg of zinc a day.
Zinc tablets are pretty cheap, so I wouldn't use the test stuff for a supplement (although you can, according to the label).
Please, also, get the meds worked out so they're not fighting each other, and they might fight you less as well.
Hope this helps.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
I've been away for a few days. Too sick to do much. Have been forcing myself to eat in the mornings. It does seem to help. But nausea is still barely controlled with phenegren suppositories (oh, yuck).
I am shocked about the doxy / mepron conflict. I am seeing a respected LLMD and am concerned about questioning his protocol. And, of course, he is out of state for me so i must depend on phone calls.
but i will try to get it together to call next week and ask nurse if i am taking right combination (less confrontational).
Once you find a good LLMD after so many years (at least 20 before diagnosis) i hate to tick him off.
No pun intended...
I have had one pretty good day. That was nice.
Have also discovered that if I really rest... just stay in bed and be really careful, I start feeling a little better.
But if I try to keep up with light housekeeping, phone calls, tending to my two horses, etc. --- no improvement, just more tired next day.
Thanks for all suggestions. Things are pretty stressful here.
I am feeling isolated, my spouse is at the point where he just can't deal with this illness anymore. He is working harder than ever and making lots of plans with friends so he isn't home except to sleep.
So, messages on this site are helpful.
Will check back soon.
Thanks again.
Posts: 49 | From Florida | Registered: Dec 2003
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posted
i find when i don't really want to eat an all fruit smoothie goes down really easy. Just keep some frozen berries in the freezer, add some water and stevia. I have one every morning to drink down my pills
feel better
also, there was a time when i was on too many meds and had to back off, maybe something you should consider
Posts: 368 | From freehold, nj | Registered: May 2007
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posted
Wow. Now I am totally confused about the doxy and Mepron. It is so hard to find a good LLMD, I am hesitant to ask him about the mixture of prescriptions he has me on...
I wonder if I could ask my pharmacist about this combination. It has been my experience in the past that pharmacists have been more knowlegeable about side effects and combinations of drugs than the MD's.
Thanks for the reminder about zinc. I have been neglecting my supplements. Taking so many pills and being so nauseous, I hate to swallow anything else. I will increase the zinc, a multivitamin, magnesium --- just the absolute essentials.
I have noticed that many things taste funny these days.
I normally do not like chocolate or berry flavored stuff. I try to stay wasy from sweets, but have been craving vanilla flavored yogurt of all things. (I eat little or no dairy.) And rec recently have been wanting stuff with berries in it.
Weird --- my body chemistry must be getting messed up.
I am weak, fatigued and feeling worse than usual nerve pain, bouts of feeling burning up when the A/C is on 68 degrees. I'm burning up and in pain and my husband is freezing. (Not hot flashes... I already figured that one out. I used to think I was having hot flashes until my first course of doxycycline and biacin "hot flashes" stopped. Then I learned hot flashes don't hurt).
Learn as we go, I guess.
Is this normal for dealing with Lyme and Babesia? Thanks.
Posts: 49 | From Florida | Registered: Dec 2003
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