sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
micul - You are wrong. There is scientific evidence that infrared light works on various conditions from curing blindness to healing wounds & brain tumors... just do a search on Google.
I have posted info here, repeatedly. I'm not going to post anything else. Just search this site or the internet. Scientific studies on infrared light in healing have been sponsored by NASA, DARPA, & other valid researchers. If that's not good enough proof, I don't know what is.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Lymielaurin I appologize to you, i guess it is possible I took the word militant as being inflamatory and maybe the inuendo of the guilty know who they are. I may have been on that list hard to say. Maybe I did take it too far.
IMO we should concentrate on helping each other get well. Share what we know, try and fail, pick each other up when someone falls down. I hope that is the direction we all take.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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Angelica
Unregistered
posted
Not to hijack your thread Mati because I think we can all agree it has been hijacked a million times over already but maybe just to change the tone of the board we can all do something positive today together.
Mati I truly hope you find a MD or healthcare provider you do feel really good about soon that you enjoy working with and that you do get well soon! I think everyone on this board would like you to get better.
I also think communicating on a board or forum can be difficult at times. I have the feeling that if all the posters on this thread were at a party together in a beautiful setting with good healthy delicious food and nice weather that we could all get along peacefully at least for the first 30 minutes.
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posted
A private doctor offers a service, just like any other business, and as such, is open to evaluation and if anyone has complaints about the service or product, it is ridiculous to say that nothing negative should be said, especially in a group of people who are considering spending their time and money on this service, unless the person/company is present to answer.
I only reported what happened, purely from the desire for others to be aware of exactly what was going on in Germany, so they could make a decision based on the full facts. I did not have the intention of blackening the doctors name and have given him praise where it was due, and I did say that I could not evaluate the BIONIC but I was driven to respond in order to defend myself, and carry this conversation on so much because of the heavy criticism from one person, saying that anything that went wrong was my own fault, and negating my evaluation that I had not received value for money and felt shortchanged. In short, denying me the right to report on my experience and have an opinion.
I did not know that it was not an ART I was tested with. I honestly believed it was and was one of the reasons I was so keen to see that doctor. I was wrong. I may not have done my research thoroughly enough, I was just so desperate to have the treatment advertised here and was worried about going over in the cold weather. My health has had such a downswing this last year and I have been practically at the stage of needing a wheelchair that I became desperate as I am alone and have no help. It seemed like my last chance especially due to my chemical sensitivity and the looming possibility of having to go the way of other sufferers who, when getting to the age of heart attacks and strokes or taken into the Accident and Emergency room, and refusing medications due to the inability to take anything chemical, are in danger of being sectioned and forced into treatment, due to the efforts of a British psychiatrist who has great influence here and has succeeded in turning the medical profession away from accepting this condition as physical. Living with this fear is not easy and it is not helping matters by being thrust into the whistle-blower role.
Posts: 148 | From europe | Registered: Apr 2008
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
.!
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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posted
To those that are interested: This thread was gutted by the moderator Jenifer. This is your proof Bob, and others that continually deny that this happens on a regular basis when actual facts, or history on the Bionic 880 fiasco is put in print on a thread that discredits it and it's originator here at Lymnenet.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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MartinJS
Unregistered
posted
Micul, could you pls elaborate on "this thread was gutted by Jenifer" for us folks with terrible brain fog? Thanks.
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Gutted means that the moderator went into each "questionable" post, edited the portions that were seen to be offensive, left what wasn't intact, and totally removed posts that were inflammatory. Except for one persons. Why, only the mods know.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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posted
I gutted out the parts where members were attacking EACH OTHER. I am allowing this topic to remain on the boards because members have a right to express his/her experiences.
For those that say I remove negative posts, this is one gigantic negative topic. mati had a bad experience and is trying to discuss it with others to get some support and insight.
If the statement you make about me removing negative posts were true, this would no longer be here.
With that note, please stop bashing each other and help mati, and others, learn from this experience.
Mati is not bashing the doctor, but is trying to get support for the painful situation that has just happened.
-------------------- Jenifer Stolow LymeNet.Org Webmaster Posts: 320 | From Upstate New York, USA | Registered: Feb 2001
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Mati - I'm sorry you are having a hard time. It's hard for all of us. I hope you will be able to find something that will work for you.
I'm glad you expressed your side of what happened when you went to Germany. It's not easy to go to a foreign country where you don't speak the language - just for a vacation - never mind medical treatment...
I hope people will feel that they have the right to post their side of an issue. It makes it more fair & balanced.
No treatment is 100% for everyone. We are all different. It helps to read all sides of each issue so we can decide for ourselves what we would like to do.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Jenifer, thank you for the time you take to keep the personal attacking under control, that kind of thing is of no benefit to anyone and I'm sorry to see others questioning your motives.
Mati, I'm so sorry you had such a rough trip but your experience will help others watch out for the pitfalls you encountered. I hope you can find some affordable treatment close to home. Please don't stop trying.
Take care, Looking
Posts: 590 | From Canada | Registered: Oct 2007
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Thank you for posting your experience. I'm dealing with this alone also, and I don't speak German, so I know I'd have a hard time getting around by myself over there. Being alone in a foreign country w/Lyme disease can be a little scary.
I was alone in Italy for a few days earlier this year, and I got really frightened when I "got lost" a couple of times.
Patti
Posts: 975 | From California | Registered: Apr 2007
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posted
Mati, I am also sorry to hear that your trip to Germany did not work out the way you had hoped. I am considering making the journey myself and it is good to hear all sides.
It seems to me that your main issues were with Dr. W. and your traveling companion rather than with the Bionic 880 treatment itself.
I hope that perhaps you will be able to find another practitioner in order to complete the treatment. Maybe you could try contacting the UK distributor in Nottingham http://www.tradeandinnovationltd.co.uk/index.html and see if a MD or ND closer to your home has one?
posted
Mati, there is a Dr. P. in Oxford UK who is using the Bionic 880 to treat Borreliosis. I am thinking about going to see him. I can PM you when I get more info, if you wish.
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