-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
quote:Originally posted by FreakShow: How do you feel KReynolds?
Like crap......Im on IV Tgacil and Flagyl for the Lyme and Bart..... I also had a positive Spinal and a Moderate-Severe SPECT scan..... Thanks for asking....
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
quote:Originally posted by Lymetoo: Lyme for sure. Band 39 alone says so.
Have you read Dr C of MO's WB explanation?
LYMETOO.... No I havent read the WB explanation but will do so..... What makes Band 39 different than they others?????Thanks again Lymetoo!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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posted
I don't know the answer to this, but is there a value in following WB testing over time?
Let's say, for example, a person has a clearly positive WB test with multiple IgG bands and undergoes treatment. Since the WB looks for antibodies (not the pathogen), what is the value of repeating the test multiple times?
At some point, wouldn't it make sense that the bacteria would be cleared, but the immune system would still have circulating antibodies (like people do for a lifetime after vaccination, exposure of EBV...etc).
I'm not trying to question the diagnosis. Based on your story LD is a near certainty. However, is there a value in repeating the test multiple times (especially since it is not covered by insurance) if it isn't reflective of anything?
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
quote:Originally posted by JesseSapp: I don't know the answer to this, but is there a value in following WB testing over time?
Let's say, for example, a person has a clearly positive WB test with multiple IgG bands and undergoes treatment. Since the WB looks for antibodies (not the pathogen), what is the value of repeating the test multiple times?
At some point, wouldn't it make sense that the bacteria would be cleared, but the immune system would still have circulating antibodies (like people do for a lifetime after vaccination, exposure of EBV...etc).
I'm not trying to question the diagnosis. Based on your story LD is a near certainty. However, is there a value in repeating the test multiple times (especially since it is not covered by insurance) if it isn't reflective of anything?
JESSESAPP:
Is there a value to repeat tests??? of course not... I know it will show positive I've had about three WB done and you know why???? Try WORKERS COMP!!!!!!!!!!!!!!! so when you get bit at work and have Chronic Lyme and Bart at the age of 23, yea they send you for multiple ones.... they are stupid...... and no kidding i have lyme ive been dealing with it for two years.... Im not a newbie on this disease, I do my research..... So whats value to me????? NOTHIN' I aint payin for it so they could send me a hundred times and its shows in black and white.... hey buddy check VALUE in the dictionary.......peace.
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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quote:Originally posted by JesseSapp: I don't know the answer to this, but is there a value in following WB testing over time?
Let's say, for example, a person has a clearly positive WB test with multiple IgG bands and undergoes treatment. Since the WB looks for antibodies (not the pathogen), what is the value of repeating the test multiple times?
At some point, wouldn't it make sense that the bacteria would be cleared, but the immune system would still have circulating antibodies (like people do for a lifetime after vaccination, exposure of EBV...etc).
I'm not trying to question the diagnosis. Based on your story LD is a near certainty. However, is there a value in repeating the test multiple times (especially since it is not covered by insurance) if it isn't reflective of anything?
JESSESAPP:
Is there a value to repeat tests??? of course not... I know it will show positive I've had about three WB done and you know why???? Try WORKERS COMP!!!!!!!!!!!!!!! so when you get bit at work and have Chronic Lyme and Bart at the age of 23, yea they send you for multiple ones.... they are stupid...... and no kidding i have lyme ive been dealing with it for two years.... Im not a newbie on this disease, I do my research..... So whats value to me????? NOTHIN' I aint payin for it so they could send me a hundred times and its shows in black and white.... hey buddy check VALUE in the dictionary.......peace.
I wasn't trying to insult you or be dismissive. Hopefully you didn't take it that way. Your answer makes complete sense. I guess that's the reality of medicine these days...
So, I guess if a single test ever comes back negative, they will declare you "cured" regardless of persisting symptoms, claim "post lyme syndrome" AGAIN, and ship you out? I hope that doesn't happen. I guess, in that respect, having continued positive results (until you feel better) is the best-case scenario.
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
quote:Originally posted by Lymetoo: From Dr C's explanation:
"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
Thanks Lymetoo.... i just printed the whole thing out.... very informative! thanks again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
quote:Originally posted by JesseSapp:
quote:Originally posted by Kreynolds:
quote:Originally posted by JesseSapp: I don't know the answer to this, but is there a value in following WB testing over time?
Let's say, for example, a person has a clearly positive WB test with multiple IgG bands and undergoes treatment. Since the WB looks for antibodies (not the pathogen), what is the value of repeating the test multiple times?
At some point, wouldn't it make sense that the bacteria would be cleared, but the immune system would still have circulating antibodies (like people do for a lifetime after vaccination, exposure of EBV...etc).
I'm not trying to question the diagnosis. Based on your story LD is a near certainty. However, is there a value in repeating the test multiple times (especially since it is not covered by insurance) if it isn't reflective of anything?
JESSESAPP:
Is there a value to repeat tests??? of course not... I know it will show positive I've had about three WB done and you know why???? Try WORKERS COMP!!!!!!!!!!!!!!! so when you get bit at work and have Chronic Lyme and Bart at the age of 23, yea they send you for multiple ones.... they are stupid...... and no kidding i have lyme ive been dealing with it for two years.... Im not a newbie on this disease, I do my research..... So whats value to me????? NOTHIN' I aint payin for it so they could send me a hundred times and its shows in black and white.... hey buddy check VALUE in the dictionary.......peace.
I wasn't trying to insult you or be dismissive. Hopefully you didn't take it that way. Your answer makes complete sense. I guess that's the reality of medicine these days...
So, I guess if a single test ever comes back negative, they will declare you "cured" regardless of persisting symptoms, claim "post lyme syndrome" AGAIN, and ship you out? I hope that doesn't happen. I guess, in that respect, having continued positive results (until you feel better) is the best-case scenario.
JesseSapp... no Its just annoying that they keep trying to get a negative out of me,but they wont research to see that it probably wont ever happen.... so they can keep spending the money, lol thanks again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
quote:Originally posted by Dawnee: Yep, you have Lyme.
Why didn't they test for band 31????
Dawnee...
I dont know thats the outer surface protein A right? Its all workers comp so the lab i guess is that advanced.... thanks again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
reynolds,
please go back to every post and REMOVE BOLD CODING marks when you chose to use "" ... read below please; thanks
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox ********************************
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Lyme & Bart
What's Tgacil?
I haven't heard of that one for Bart & Lyme?
I just looked up Tygacil - Tigecycline.
It sounds interesting. I wonder why I haven't really heard of it being used. Please let us know how you do with it.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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