good for you for getting your friend's husband to make an appt w/an LLMD.
I sent the story on Rocco to the reporter who did the story on Eric Scoggins and hopefully he'll forward it on to him. I've emailed the reporter twice before, but he's never responded to my emails.
I hope it gets to him.
Patti
Posts: 975 | From California | Registered: Apr 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Keep pecking away, P! It took my Mom 3 1/2 years to get a friend to an LLMD; diagnosis was neurological Lyme with Bartonella and Babesia trimmings.
He calls her every day to thank her for her relentlessness!
Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
Okay, so I can't deny my sadness over the Sox's loss last night but there was a silver lining.
Rocco Bardelli got a hit and earned an RBI to put the Rays ahead. I felt truly happy for this man who has struggled so much.
Tincup: PLEASE, PLEASE keep us posted on his pursuing the Lyme path. I was cringing when they announcers were discussing his "mitchondrial disease" that makes him really fatigued.
He has those hollow Lyme/Babesia eyes. So tired. I just want to know that he doesn't get persuaded in another direction.
My brain needs some sort of closure for this sweet kid...so all updates appreciated!
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Felt the same way Clarissa, being a sox fan in all. Hopefully, they take the time to do the research. Reading "Cure Unknown" by someone close to Rocco or Rocco himself might give him a good picture of the politics in the lyme world and why it is sooo denied as a diagnosis.
Hoping with everyone for the best,
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I'm playing devils advocate here, but how do you all know this person does not have a mitochondrial disease. The symptoms fit the disease.
Yes, he had Lyme and it could be a flare-up. It could also be a new issue. I think it's great people are trying to help him and suggest ideas, but everyone seems sure Lyme is the culprit this time. How with such sureness?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
We're not absolutely sure! But we are sure most Doctors aren't looking for it, and one of the great problems with lyme is ATP dysfunction - A FACT. That is why all lymies have long recovery times.
So if you were a betting person, what do you think the chances of it being a lyme relapse. I think it is better then 9 to 1. The only way to know for sure is to have an IGENEX test done and an LLMD to interpret.
Personally, I'd prefer to use a nosode and energetically test for it by a practioner who is qualified to do so. But that's just me.
And thankfully, Clarissa and Tinny are working hard just to let him know it might be lyme. Bless both their wonderful hearts.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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quote:Originally posted by lymie_in_md: What a smash tinnie it cleared the fences.
Clarissa and Tinnie your both amazing, two gold stars to both of you and to all that posted.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Good point. I had no idea about the ATP production issues. Very interesting! Thanks for the infornation.
quote:Originally posted by lymie_in_md: We're not absolutely sure! But we are sure most Doctors aren't looking for it, and one of the great problems with lyme is ATP dysfunction - A FACT. That is why all lymies have long recovery times.
So if you were a betting person, what do you think the chances of it being a lyme relapse. I think it is better then 9 to 1. The only way to know for sure is to have an IGENEX test done and an LLMD to interpret.
Personally, I'd prefer to use a nosode and energetically test for it by a practioner who is qualified to do so. But that's just me.
And thankfully, Clarissa and Tinny are working hard just to let him know it might be lyme. Bless both their wonderful hearts.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Just wanted to let you guys know that I'm not gonna tolerate any positive thoughts or whatever going towards Baldelli for the next week or 2. It's tough enough already for a philly team to win a championship; the last thing the phils need is a bunch of lymies working against them.
I actually read about Baldelli's issues prior to this season and it crossed my mind that it could be lyme related but it could of course be a host of other things as well. Didn't know at that time that he had lyme previously, which naturally makes it substantially more likely that lyme is playing a role.
I'd guess that he's had lyme mentioned to him as a possibility over the last couple years, but I wouldn't be surprised if he basically dismissed it or briefly looked into it, maybe had an ELISA, and moved on as I did (of course lyme was intermingled with hundreds of other suggestions including the ever popular "it's all in your head").
Hopefully, he gets to the root cause(s) and is able to address these issues and have his symptoms resolve. Just not in the next 10 days, though I suppose I can't complain if he has a few bit hits but the rays still lose the series.
Posts: 43 | From NJ | Registered: May 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I heard the announcer's last night, during the last game of the World Series talking about this young man and this "muscle" illness.
I hope now that the b-ball season is over, he will be able to get to the real reason his health and his career is at risk.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Boo hoo... sorry Rays.
Congrats, Boston.
Map said ...
"I hope now that the b-ball season is over, he will be able to get to the real reason his health and his career is at risk."
Yes. I think this avenue will be pursued. The person I spoke with was VERY interested in actively going after any and all possibilities. Very caring.
He was very anxious to get the information... which WAS coming at a VERY busy time... and asked GOOD questions about Lyme at the time.
The reason I feel it will be taken seriously... other than my"feel" for it while hearing him speak is the actual comments made by the player in the news.
I can see he doesn't believe what the "experts" are telling him. He is frustrated like so many of us were when we were being told a bunch of hooey. You can "hear it" in his words in the quotes.
If it is Lyme, I hope he gets answers. If it isn't... I still wish the same for him.
You all are a great bunch of people. You know that don't you?
Each one, reach one.
Thanks for caring about those who are both large and small.
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Tinny, it's not congrats to Boston, dear. It was Phillies that won. lol You are allowed one mistake a year. That's it for you.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Tinny, if it comes up, given the fact money isn't option and time is prescious for his career. He might try the Doctor in Germany.
My reasons, we've already seen some success already and the treatment time is short for getting results. If he goes on long term ABX it might take years to resolve. His window for staying in baseball is short one. The treatment time is 3 weeks. And if it doesn't work, the money wasn't the issue anyways and the ABX will always be there.
I feel he is looking at this thanks to Clarissa and your help.
If I've angered anyone with my suggestion SOB, I'm just posting a thought nothing more.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
If I had a pro baseball player's money, I'd be on the first plane to Germany and buy my way to the front of the treatment line. Who wouldnt'? It's a no brainer when you make millions.
Maybe the treatment will cure him and he'll be thankful and send ten Lymenet members to Germany for free. Wouldn't that be nice?
Has this person had a muscle biopsy done? Just curious.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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