posted
Muscle and joint aches have been real bad for me too. Lessening stress has helped me. Backing off on the abx dose helps too, but I dislike that since it seems likely to delay progress.
About 100 mg of turmeric daily can help with joint pain. Careful though as too much turmeric may reduce your immune response, and let more bugs survive. Some capsules are sized at 600 mg, which is too much IMO.
Posts: 727 | From USA | Registered: Mar 2006
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please find a gym with a sauna....it will give you relief. it is making my herxes managable...
been on treatment for almost 6 weeks and just started suana last week and it makes a difference. certianly i sleep better. hot baths help but not as much as the sauna.
Hang in there.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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posted
ps....don't sit around no matter what ...walk every other day if you if you can.
in 6 weeks i went from a slow shuttle to a brisk 1 mile....maybe longer by next week....and yes i ache but it goes away during the wak...bizarre i know
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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I am feeling a bit better today, as far as pain goes- it seems to really hit me at night after my anti's....
BETTYG-thank you for your kind words- yeah I haven't been around too much lately....was feeling so good off anti's I was out and about.... ...thanks for the HUGS! I LOVE HUGS!!!
hugs~ Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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posted
CD57- yea seems like bart because it's both legs! both thighs or both knees and the CALVES! my brain is defiantly in a twist also... lots of ANGER!!!
a lot is liver anger I feel-- I was beating my bead with my pillow last night-never done that before- but I had to release- and that's how it came out- grrr.... I am combative and argumentative--anxious too..
Mycobutin is related to Rifampin- my insurance somehow is covering it!!!! supposed to hit bart...
I looked at my symptom log and this is about 4 weeks into starting the mycobutin and about 3 for zith....so maybe it's hitting their cycle...??
thanks for your reply!
smiles and hugs!
how are you doing?
fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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the time before last I took a TOO hot of a bath and it gave me the HEADACHE from HELL!!!! it sucked so I've been reluctant to get in my nightly baths...
I absolutely agree with you about the exercise! my pain feels better if I MOVE!! this morning I jumped on my rebounder- and boy did I feel great!
TO get that oxygen flowing through our bodies is oh so important even if we FEEL like we can't move! it's a mind over matter thing!
thanks for your input!
hugs! Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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Alv
Unregistered
posted
YOUR treatment sound like hitting bart.
I would not stop the treatment.Is better to hit this bugs fast and with highload of killers for a while.
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
mycobutin, will have to ask about it. is it orange like rifampin? SOMETHING is going on. keep on keepin' on!
Posts: 3528 | From US | Registered: Apr 2007
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bettyg
Unregistered
posted
dawne, here's some more!! maxed them out!
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Yes Fawne,
What you have suggested is very likely to have ocurred. As in some studies with AIDS and
utilization of a start stop approach in treatment regimens...
When what you are treating may have hit a plateu, (cessation) of the regimen for a two week
period, may indeed keep the ketes from mutating and whenever you returned two weeks later a
larger killoff may have indeed caused your pains or level of herx (synominous).
Begining at this time may also be a way your llmd is testing your cycle of regeneration....
durring particular, successive days in the month.
I don't think the artemisinin is required at this point howeverbecause
that is generally used for babesia as it is more in tune at fighting and killing parasites....
babesial parasites...
While it has been said that this parasite should be erradicated prior to trying to treat Bb or other co-infections.
The regimen you seem to be on(with the exception of the zith and artemisinin)could be the wrong approach.
Doxy is rarely, if ever used, to erradicate parasites...I beieve...
The weather down here in "Sunny Florida" may have had something to do with your pain as
well. As cold fronts are moving in all over the globe and lower pressure may have the chetes
laughing and dancing in the streets that are your tendons, muscles...etc....
and then being WHAKED immediately by the meds you're on at present,
in turn releaseing neuro-toxins and making you ache.
Perhaps the same jetstream(coldfront and downsweep of Canadiean air may well be the ONLY reason for your pains...
Depending on how long you've been infected and have employed this llmd. He/she may be finding
a "Basis" or schedule with which to have the best possible shot at killing thus bringing down
your particular species and load of harmful pathogens.
I'm a bit tired and disalusioned this evening so I may have skipped something VERY OBVIOUS,
LIKE a possible contraindicated combination of meds you're now employing....
I think I would stop right now check with the llmd or at least the pharmacist in the morning.
There are of course some statins can cause these symptoms as well....
Gonna go for now....I'll check with you tomorrow.
You may try a icebath for calming down the nerves being affected tonight just so you can sleep....I know how distressing those "DEEP NERVE" pains can become......!!!
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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I'm sorry you are Herx'g so bad. "do you think cause I stopped anti's and then started I caught these buggers off guard?" Yes - I think so! I hope so! Have you read the book "Cure Unknown"? Here's some ideas: Buy the book - skip to chapter 44 "How I Cured My Own Lyme Disease" and read this one first. This will help the twisted mind. Start taking Sam-e. This will help the Rage. A little Ambien and counting pink cows. This will help you sleep. May you feel better soon. TC Peedie
Posts: 641 | From So. CA | Registered: May 2008
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CD57-yea the pills are red/orange like Rifampin....
BETTYG-thanks for the HUGS!!!!
LYME tony z-
thanks for your detailed reply! you lost me though...why would doxy, mycobutin and zith be wrong to treat BART and some lyme too... ???
The Humaworm (parasite cleanse)I have found brings out my bart....it really responds well to their combo of herbs.... even though it's called a parasite cleanse- a lot of the herbs in it are anti-bacterial etc...never the less- I think that's what you were talking about the Art? there is wormwood in it...but I am not taking art alone at this time.....
my LLMD is currently trying to get the bart....
were you suggesting that it might be babs? confused....??
I got bit in June of 2004...got sick in end of 2005...and began treating in June of 2007....
the weather note is very true...we've had rain and stormy weather for about a week now...it's been nice- but also, true, it's when I got WORSE!!
thanks again!
lots of hugS! Fawne
-------------------- Energy flows where attention goes~ Posts: 302 | From Kauai | Registered: May 2007
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posted
Yes - the book is very good. It does deal with the very serious reality of Lyme disease for people who went undiagnosed for many years and the severly effected. On a scale of one to ten, she talks a good deal about the tens. The bottom rung of the ladder. She wants to, and has exposed Lyme for all it's intensity and complications that make all our lives HELL. If you would like a really good book to uplift your spirits - the one "Marley and Me" is truly wonderful. Very well writen. For some reason the whole time I read the book I heard the warm story telling voice that was always the narration of Walt Disney on Sunday nights as a kid growing up. Cure Unknown documents many years of Lyme history and follows the politicsw and life stories of people - like you and I and the others here - the struggle to get diagnosed, treated and get well. It is more education...not entertaining. So you choose - which book is best for you now. Or buy the book and read chapter 44 for now - the rest later. TC and Best Wishes, Peedie
Posts: 641 | From So. CA | Registered: May 2008
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