posted
We who are suffering Lyme will get treated like we are crazy from neurologist. I have seen the best neurologists, even Dr. Brian Weinshenker at Mayo Clinic. He thought my dizziness, skin and face numbness, and back pain, muscle weakness were psychosomatic. After spending thousands of dollars to fly my mom and I to Mayo, he sent me for 6 hrs of neuro testings and an hour with a psychiatrist. If Mayo had diagnosed me I wouldn't be as sick as I am today.
I have been to the ER with the head-neck presure and at least 5 normal ct scans of the head and chest x-rays. That is one of my worst symptoms. The ER doesn't help. They may give you some extra strength pain meds and 10mg of valium, but it will not help your ear pressure, neck stiffness, eyeball pain.
I have found the neck stiffness and other problems you mention are starting to go away with doxycycline, but I TOTALLY understand. It is so scary. You feel like you are going to have a seizure you have so much pressure in your head.
Hang in there. You might try a liver detox vitamin. These have helped me alot. I use "Lipotropic detox" made by PURE. It has folic acid, b12, and some other components. It will help your liver unload the toxins.
Hang in there. Also try a Probiotic to off-set the damamge the abx will do to your gastro flora.
You will get better. Stick with your LLMD. Jenny =)
Posts: 63 | From Clarkston, MI | Registered: Sep 2008
| IP: Logged |
I am seeing a Neurologist. I know it's probably the wrong thing to do, but I am doing it anyway. I am sure that many people here have had horrible experiences with them, but since I am experiencing neurological symptoms now, I want to make sure it is nothing else.
If they try to tell me I'm crazy, I will remind them that I have been bitten an average of 5 times per year-for the past 4 years, by deer ticks. I have had 3 documented rashes, tested positive 2 times for lyme and also have all of the clinical symptoms of chronic lyme and have only been treated by my family dr. twice in the past 4 years.
It doesn't matter to me if they say it's all in my head. I know it's not, just like everyone else here knows it's not.
My neuro said that even if everything shows OK, they will use these tests as a "baseline", in case I get worse.
She also said that if it is lyme, then I will need to be put on IV antibiotics, so it seems like she may be willing to treat me for lyme.
Hope this helps, Teresa
-------------------- Powerful Women's Motto: Live your life in such a way that When your feet hit the floor In the morning, Satan shudders & says� 'Oh ****!...She's Awake!!
posted
I guess even if they tell me it is all in my head I might have some peace knowing that nothing showed up.
Right now my fears are of having menengitis, encephalitis or some kind of mass in my head. It is just really scarey right now not only for me but for my 2 children as well.
It was so bad yesterday that I started my own obituary.
PS - my LLMD mentioned a med called Diamoxx (sp?). Has anyone tried this medication? If so, with or without success?
Thanks all! Posts: 124 | From Indiana | Registered: Oct 2007
| IP: Logged |
troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
My question.......what abx are you on?
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
| IP: Logged |
bettyg
Unregistered
posted
check out this symptoms list ok
Symptom list from Dr. Burrascano from LDA site 9.05
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[Wink]](wink.gif)
Printer-friendly view of this topic