Topic: correlation between POTS and a specific TBD?
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Like several here, I have POTS (postural orthostatic tachycardia). I don't take any meds for it, right now increasing liquids and salt intake seems to help.
Both LLMD and I have noticed that in my case, it seems to pop up more when my bartonella symptoms are flaring.
Does anyone else notice that their POTS is more of a problem when they are symptomatic, and is it associated with any particular TBD for you?
I am having a lot of problems with POTS right now, and it seems to have preceded a rise in bartonella symptoms again.
Just wondering if anyone else notices this correlation.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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bettyg
Unregistered
posted
up for answers from others w/pots!
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Hi!!!
If I had to choose one TBD to link it to, it would be Bartonella. Only because it's the one TBD I haven't really addressed in myself very adequately and I haven't seen the treatment for Lyme or Babesia help my POTS yet.
Also, someone told me once that dysautonomia can be associated with Bartonella, but that was purely through the grapevine that I heard that, so I can't state it as a medical fact....more like hearsay.
Hope that info helps a little at least!
Beta blockers in small doses do help my symptoms, can't remember if you said you take those or not, but you might have to take 1/2 or 1/4 what the doc recommends, because that's how it is for me! Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I had bart/babs and lyme and very bad POTS-I've been on bactrim for almost a year (After a year of other stuff) and my POTS has really diminished-most days I am feeling almost Normal!
I think it was from the bart.
Posts: 561 | From eastcoast | Registered: Aug 2006
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posted
Dolphinlady-Your mailbox is full, so I can't reply to your pm. I was on IV for 4 weeks, mepron for 4 weeks, Rifampin for 12 weeks and a whole mix of other stuff for year one. Year 2 I took bactrim (2 a day) with 300 mg zith every other day-I couldn't handle more. Last few months I've been alternating 1 week malarone/zith, then 1 week bactrim. My POTS was debilitating-now I rarely think about it.
Posts: 561 | From eastcoast | Registered: Aug 2006
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