Most of these articles are written because they are ignorant and need to be educated by people who are suffering.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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posted
HOLY CRAP that P***** me offffffffffffffffff!!!!!
I'm not one to be too emerged in some of this but that article totally made me sooooooooooo mad. I sent it to my mom.
Well, I got my 28 days of Rocephin. Don't feel better. So, I should be better and my symptoms are just from POST LYME SYNDROME. I need to do this it says:
"However, some patients may benefit from learning pain control and cognitive behavioral techniques to help them cope with and manage their symptoms."
Are you kidding me?
I should just "learn" to live like this? NO!!! There's no way that my mind could cope with this for the rest of my life without trying to get better. The only reason besides my son that makes me get out of bed in the morning is the HOPE that someday I will wake up from this GOD FORSAKEN NIGHTMARE. Someday I will be cured. If someone told me that I would feel like this forever and there were no cures for me....well, I'd probably say **** it.
Do you notice that they say (I'm saying this in my own words) that vitamins and supplements don't work, you shouldn't try experimental treatments, after a short round of antibiotics - you should be better - if you aren't - just LEARN to live with it, it's like I kept reading things that were saying "There's no hope"....
Antibiotics are dangerous, experimental treatments are dangerous, studies don't show that vitamins work, etc.
Shouldn't they be trying to help find a CURE for us instead of fighting some war AGAINST acknowledging the PAIN AND SUFFERING of this disease?
That's unbelievable. I'm ircked. Can you tell?
-------------------- ~*~Lyme POW~*~
I will escape. Posts: 100 | From n/a | Registered: Oct 2008
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posted
copying this here to read and break up for others like me!
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Health > Times Health Guide > l > Lyme Disease > In-Depth Report: Treatment Lyme DiseaseOverview
In-Depth Report Background Symptoms Risk Factors Complications Diseases With Similar Symptoms Diagnosis Treatment Prevention Human Granulocytic Anaplasmosis (HGA) Babesiosis References News & Features
View & Print In-Depth Report �Web Links National Institute of Allergy and Infectious Disease Centers for Disease Control Infectious Diseases Society of America American Lyme Disease Foundation American College of Rheumatology The Arthritis Foundation
Related Topics Tick Bite Lyme Disease - Primary Lyme Disease - Early Disseminated Lyme Disease - Chronic Persistent
Antibiotics are the drugs of choice for all phases of Lyme disease. In nearly all cases they can cure Lyme, even in later stages. *************************************
Preventive Antibiotics after a Tick Bite
According to the 2006 guidelines from the Infectious Diseases Society of America (IDSA), people bitten by deer ticks should NOT routinely receive antibiotics to prevent the disease.
A SINGLE dose of the antibiotic doxycycline may be given in situations that meet all of the following conditions:
The tick is still attached to the patient and is positively identified as an adult or nymphal I. scapularis (the tick that carries the Lyme disease B. burgdorferi spirochete).
Doxycycline treatment can be started within 72 hours of the tick bite.
There is proof that at least 20% of ticks in that geographic area are infected with B. burgdorferi.
It is safe for the patient to receive doxycycline (this drug should not be given to pregnant women or children younger than 8 years of age).
In general, the risk of developing Lyme disease after being bitten by a tick is only 1 - 3%. *********************************************
However, patients who have removed attached ticks from themselves should inform their doctors.
Patients who have been bitten by a tick should be monitored for up to 30 days to make sure they do not develop symptoms of Lyme disease, especially the tell-tale bull's-eye rash.
If you do develop a skin lesion or flu-like illness during this time, be sure to tell your doctor.
Treating Early Stage Lyme Disease
The early stages of Lyme disease usually involve classic bull's-eye rash (erythema migrans) and flu-like symptoms of chills and fever, fatigue, muscle pain, and headache.
In rare cases, patients develop an abnormal heartbeat (Lyme carditis).
All of these conditions are treated with 10 - 28 days of antibiotics.
The exact number of days depends on the drug used, and the patient's response to it.
Antibiotics for treating Lyme disease generally include:
Doxycycline.
This antibiotic is effective against both Lyme disease and human granulocytic anaplasmosis (HGA) and so is the standard antibiotic for any patient over 8 years old (except pregnant women).
Doxycycline cannot be used routinely in children under 8 years old.
It is a form of tetracycline and as such discolors teeth and inhibits bone growth.
It can also cause birth defects, so it should not be used during pregnancy.
Either amoxicillin (one of the penicillins) or cefuroxime (Ceftin) -- a drug known as a cephalosporin -- are the alternative treatments for young children and some adults.
Amoxicillin is the first choice and also probably the best antibiotic for pregnant women.
Unfortunately, many people are allergic to penicillin.
In addition, strains of bacteria are emerging that are resistant to penicillins.
Intravenous ceftriaxone -- another cephalosporin -- may be warranted if there are signs of infection in the central nervous system (the brain or spinal region) or heart problems.
Other types of antibiotics, such as macrolides, are not recommended for first-line therapy.
Side Effects of Antibiotics.
The most common side effects of nearly all antibiotics are
gastrointestinal problems, including cramps, nausea, vomiting, and diarrhea.
Allergic reactions can also occur with all antibiotics, but are most common with medications derived from penicillin or sulfa.
These reactions can range from mild skin rashes to rare but severe, even life-threatening, anaphylactic shock.
Some drugs, including certain over-the-counter medications, interact with antibiotics.
Patients should report to their doctors all medications they are taking.
Treating Late Stage Lyme Disease
Most cases of Lyme disease involve a rash and flu-like symptoms that resolve within 1 month of antibiotic treatment.
However, some patients go on to develop late-stage Lyme disease, which includes Lyme arthritis and neurologic Lyme disease.
Slightly more than half of patients infected with B. burgdorferi develop Lyme arthritis.
About 10 - 20 % of patients develop neurologic Lyme disease.
A very small percentage of patients may develop acrodermatitis chronica atrophicans, a serious type of skin inflammation.
These conditions are treated for up to 28 days with antibiotic therapy.
If arthritis symptoms persist for several months, a second 2 - 4 week course of antibiotics may be recommended.
Oral antibiotics (doxycycline, amoxicillin, or cefuroxime) are used for Lyme arthritis and acrodermatitis chronica atrophicans.
(In rare cases, patients with arthritis may need intravenous antibiotics.)
A 2 - 4 week course of intravenous penicillin, ceftriaxone, or cefotaxime is used for treating severe cases of neurological Lyme disease.
For milder cases, 2 - 4 weeks of oral doxycycline is an effective option.
Treating Post-Lyme Disease Syndrome
In about 5% of cases, symptoms persist after treatment, a condition referred to as post-Lyme disease syndrome.
The treatment of post-Lyme disease syndrome is a controversial issue.
Most experts do not recommend continuing antibiotic therapy beyond 30 days.
Scientific studies do not show any evidence that the benefits of long-term antibiotic treatment outweigh its risks.
Long-term antibiotic treatment can lead to a serious and difficult-to-treat infection called Clostridium difficile, and can also cause the patient to become resistant to all types of antibiotics.
Experimental and alternative remedies are also not recommended.
However, some patients may benefit from learning pain control and cognitive behavioral techniques to help them cope with and manage their symptoms.
Alternative Remedies
Some people use vitamin B complex, omega-3 and omega-6 fatty acids (found in primrose oil and fish oils), and magnesium supplements (magnesium L-lactate dihydrate) to help relieve symptoms.
No evidence suggests that they are beneficial.
Any such therapies should be discussed with a doctor.
Newsletters and Internet sites have cropped up in recent years advertising untested treatments to patients with symptoms of Lyme disease who are frustrated with traditional medical channels.
Some remedies are dangerous, and most are ineffective.
In 2006, the Food and Drug Administration (FDA) warned people not to use an alternative medicine product called bismacine (also known as chromacine).
This injectable product contains high amounts of bismuth, a heavy metal that can be poisonous.
People who have taken bismacine have experienced heart and kidney failure, and one death has been reported.
Although some people claim that bismacine can help treat Lyme disease, it is not approved for the treatment of any illness or condition.
Herbs and Supplements
Generally, manufacturers of herbal remedies and dietary supplements do not need FDA approval to sell their products.
Just like a drug, herbs and supplements can affect the body's chemistry, and therefore have the potential to produce side effects that may be harmful.
There have been a number of reported cases of serious and even lethal side effects from herbal products.
Always check with your doctor before using any herbal remedies or dietary supplements.
More Information on This Topic Background Symptoms Risk Factors Complications Diseases With Similar Symptoms Diagnosis Treatment Prevention Human Granulocytic Anaplasmosis (HGA) Babesiosis References News & Features View & Print In-Depth Report �
Review Date: 5/19/2008
Reviewed By: Jatin M. Vyas, MD, PhD, Instructor in Medicine, Harvard Medical School, Assistant in Medicine, Division of Infectious Disease, Massachusetts General Hospital.
Review provided by VeriMed Healthcare Network.
Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
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PURE HOG WASH!!! I HOPE MANY REPLY TO THE 75-85% INACCURACIES !!!
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jamescase20
Unregistered
posted
I wouldnt be suprised if doxy alone would cure us. It even to sounds insane.
I think its the biofilm problem is really whats the issue.
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
So very very sad. Early detection is key but look how many of us slipped through the cracks and went years with all these misdiagnosis's.
It's so sad to feel that someone with an ego that can't admit they may be wrong, decides to risk people's lives by putting out this total and complete rubbish.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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hmm. the interesting thing to me is they [the IDSA] haven't come up with anything new to say after all these years (except the one-dose-doxy remedy), and such top expertise! you'd think theyd've come up with more than the same.
yep, folks.. expert guidelines based on 5-10% of the research available .. and if you trace it back, that research is based on the same few IDSA docs references, making it more like 1% of medical research, total.
keep perseverating, boys..
when ag blumenthal finishes his investigation, he'll surely find these bozos drooling and mumbling incoherently in a corner somewhere.
mo Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
Not sure I'm understanding how this was published today?
Can someone post a link?
According to the article referenced above it was last reviewed by A.D.A.M., on 5/19/08.,(Which is a "generic" health site the NY Times happens to use to provide charts,illustrations,graphs,etc.)
(See bottom of page-reviewed by a Dr.Vyas)
Since that time,Jane Brody,one of their Health reporters, published this article, on 7/15/08, which I think did a good job of being "fair" (On Lyme disease)
Generally I find their Health articles accurate,at least as accurate as all of the other media outlets,with the exceptions being the ones written by Lawrence K.Altman...(In my opinion,he's hiding something) Joe
Posts: 249 | From Northern NJ | Registered: Jul 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Added my two cents worth
we are not lyme victims, but lyme survivors Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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This is a product of the insurance industry:
---------------------
Review Date: 5/19/2008
Reviewed By: Jatin M. Vyas, MD, PhD, Instructor in Medicine, Harvard Medical School, Assistant in Medicine, Division of Infectious Disease, Massachusetts General Hospital.
Review provided by VeriMed Healthcare Network.
Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
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