seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
3 months ago my first CD-57 showed a score of 54. Over 2.5 months of treatment, it shows...well 54. It's very discouraging. It makes me feel treatment is doing little. I hoped for better. I just don't have time for this "snail pace."
Chris
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I'm feeling just as depressed about all of it.
P.S. Have you checked you PM's lately?
-------------------- ~*~Lyme POW~*~
I will escape. Posts: 100 | From n/a | Registered: Oct 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Seek,
If it is any consolation, many LLMD's are not paying much attention to CD-57's anymore. They are not convinced that the numbers mean very much one way or the other.
So, chin up!
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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ByronSBell 2007
Unregistered
posted
What is your treatment?
Are you on heparin?
Classic Lyme is the cause of a low CD57
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
No, the majority of time I have just been on Azithromycin 500 mg per day along with Malarone at some quantity. I just added Omnicef 300 mg 2x day last weekend. No other drugs except for anti-fungals (Nystatin and DiFlucan).
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I guess that's good news. I just always grasp at some form of verifiable proof of improvement because it sure isn't in my stamina. I nearly collapsed of exhaustion trying to walk through Target today. I was so lightheaded and heavy legged.
quote:Originally posted by feelfit: Seek,
If it is any consolation, many LLMD's are not paying much attention to CD-57's anymore. They are not convinced that the numbers mean very much one way or the other.
So, chin up!
Feelfit
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Alv
Unregistered
posted
no wonder you cd 57 is still not up...YOU HAVE a long way to go and KILL more...YOU are taking really little comparing to some of US that are taking TONS of everything to KILL it !!!
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Does IV kill better?
I was at a PT faciity today that does Frequency Specific Microcurrent with a certain frequency targeted at Lyme. The owner says it's 10x more potent than antibiotics or rifing. I did it for 10 minutes today and felt like I had a bad flu ALL day long. Scary.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Reminds me I want to get mine tested again soon!
My CD57 is horrible as well.
It started out as being 18 when I was first starting treatment. Then after three months of treatment it was down to 9!!!!!!! I was so confused and worried why it would decrease... Then had it tested later on about five or so months later, and it was still at 9.
I'm curious as to what it would be now (five or so months since I had the last).
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Just passing this info on.
My LLMD said that in order to raise the CD57 you need to boost the immune system, otherwise you body cannot fight the lyme on its own and until we reach about 120 we have to continue on abx.
I am not a pill taker, but with that info, I decided to pay attention.
Soo... I take AG Immune (what she sold me) but I am sure there are others.
I also started taking the supplements she recommend which are nothing more than Vitamins, which include, Multi, b complex, magnesium, etc.
I said to myself, how hard is it to take good supplements.. what do I have to lose even if she isnt right?
PS. My CD57 was 45 in June and she said it would take awhile to go up
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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