posted
What does steriods due to lyme? How does it make you feel? The reason i asked i had an allergic reaction and they gave me steriods awhile back and it has been a world wind sense then?
I am a Dreamer, Believer, and Conquer; I will overcome this disease !!! Posts: 382 | From Alabama Via PA | Registered: Jun 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
My understanding is that steroids suppress your immune system, so the Lyme (or any other infection) can run wild.
I know of several people who significantly worsened after taking steroids (prior to their Lyme diagnosis), or who relapsed after taking steroids.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
Steroids can suppress the immune system and its inflammation. They make most lymies feel better initially (that was my experience) because they suppress the inflammation responsible for many of our symptoms.
But while the immune system is suppressed, infections like Bb are attacked less and therefore can gain more ground. This is why after the steroids are stopped, infected patients often feel even worse.
Posts: 727 | From USA | Registered: Mar 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Steroids can make lyme blossom and become MUCH harder to treat.
You say they gave them to you "a while back" - I assume you no longer take them?
If so, though, do not stop cold turkey. You would need advice from LLMD.
A note about steroid use in a life-threatening emergency. There are ways to do that but a LLMD's guidance is vital.
posted
Amen to what dguy said. The same thing happened to me. The first few days on steroids I thought I saw a light at the end of the tunnel. Then around day four it felt like my whole body was starting to break and the longer I took the steroids the worse it got.
Posts: 499 | From Indiana | Registered: Oct 2007
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posted
the same exact thing happend to me before I knew I had lyme they gave me a shot of steroids for what they thought was a allergic reaction, but I'm guessing my reaction was just a herx from the lyme being killed.
about 20 minutes after the shot all the muscles in my neck were extremly tight almost like my throat was closing but it was not.
Thats is when all my symtoms came in full effect and the vertigo drunk kinda feeling started.
-------------------- Christina Posts: 102 | From Lacey Washington | Registered: Jul 2008
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posted
I would really like to know the true effect of steriods. My daughter was initially dx'd with Lupus and put on Prednisone (steriod). Not only did the Rx make her sick and not help - it seems her immunity system is shot. Her LLMD feels this can be reversed in time and with proper treatment. But I would like to understand - just what the heck happened. -p
Posts: 641 | From So. CA | Registered: May 2008
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adamm
Unregistered
posted
One of the best LLMD's, Burrascano, actually employs the term "steroid disaster" in his discourse on Lyme.
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posted
I just saw Dr. B at the Lyme conferences here in San Francisco. I told him what steroids did to me.
A 10 day course of prednisone had me so sick I was being evaluated for ALS,at both ALS centers here in San Francisco.
I went immediately downhill for eight full months until I was finally diagnosed with lyme.
Dr. B was right, never give a suspected lyme patient any steroids.
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
What about when some lyme doctors will do it in low doses to help the adrenals for those with adrenal insufficiency? Does Dr. B think that's okay?
Posts: 4590 | From Midwest | Registered: Jun 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
It cripples the immune system allowing the infection to spread uncontrolled.
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