posted
I've been on 2 rounds of antibiotics for about a year each time and I'm not getting any better. When do you just throw in the towel (not being melodramatic as in losing hope) and just live with it? I'm watching it tear up my stomach while getting very frustrated that I'm spending all this money on meds and airfare and not feeling better. I've done Buchner's protocol as well- I'll see my doc in Nov who I adore and have lots of faith in.......
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
You don't. You try different options and explore further. Therapies like Rife, Zhang, Light Therapy, Photon, Cowden.
You must investigate hormonal, heavy metals, co-infections including viral, nutritional deficiencies, detoxification, Combination Antibiotic therapies (Not just one antibiotic or one IV med for a straight period). Combinations, cell wall inhibitors, ribosomal protein inhibitors, cyst eradicating antibiotics. Many factors must be investigated. It is also crucial to make sure your LLMD treats all these things and takes them seriously. If they don't consider all these options, then you need to consider whether a second opinion from another LLMD is necessary.
Also, testing is important inspite of what physicians say. Igenex, Fry, MDL, etc -- investigate if you haven't already. For our own peace of mind, the money is often worth knowing the truth, even if the testing may come back showing nothing.
Think for yourself, and do your homework. Read books on the subject, and ask the right questions.
When to stop isn't the right question. The right question is "Ok this isn't working I don't think, so what are my options?"
You exhaust every single possible option if you want to recover.
Here is a quote from my mission statement:
Never give up. There is no such thing as failure, there are only results. Always finish what you start, and do exactly what you tell yourself or anyone else you will do. If you set a goal, work to achieve it, exhaust all avenues; take it as far as it can possibly go. If you make a promise, keep it.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Wonderful advice Mike. I agree wholeheartedly. I think integrating standard AGGRESSIVE and alternative treatment is the only way to beat this disease. There are very few, if any, LLMDs in some geographical areas who do this efficiently for a price one can afford.
Furthermore, you could have all the money in the world and no physicians willing or that know how to do this.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I took meds for 4 yrs straight. Now I've been off abx for 4 yrs ... pay off time!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Have you treated for parasites and worms yet? Check out info on Humaworm site and also do a search here.
Dr. K believes everyone with Lyme is infected with parasites. Do a search here on this also. Good Luck
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I say try everything. I'm gonna do everything I can till I go broke, die, or run out of options.
Posts: 158 | From Santa Monica | Registered: May 2007
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posted
When you're ready to give up, treat for yeast. The symptoms of yeast and lyme overlap.... and after a long time on abx, you're bound to have both.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I agree with Mike. In addition, I'd add that you will want to investigate some of the genetic issues that seem to keep some of us from getting well. Methylation cycle mutations and HLA/biotoxin issues.
I think many chronic lyme patients have some of these issues and that is why they can't get rid of the infections or detox properly. There are things you can do to ameliorate their effect if you have them.
Also, make sure you are not exposed to mold. Check your home. If you are, this could be why you are not getting better.
Mike - you wrote: Never give up. There is no such thing as failure, there are only results. Always finish what you start, and do exactly what you tell yourself or anyone else you will do. If you set a goal, work to achieve it, exhaust all avenues; take it as far as it can possibly go. If you make a promise, keep it.
I could have written that myself. Captures my philosophy perfectly, from raising my daughter to fighting this illness. My husband calls me a terrior. You really have to be with this illness.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Good advice, but it is difficult - at least for me. How can I continue to justify spending the insane amount of money that I spend, for years on end, knowing how helpful that money would be to my family if I'm not getting better? How can I justify endless supplies of herbs, antibiotics, doctors visits...etc unless I show SOME improvement? At what point do we throw in the towel and give up? At least, in that case, I'd have a lot more money to share with the family. Don't get me wrong, I would give every cent I have to feel normal again, but doing that without feeling better (at all) is horrible.
Posts: 99 | From Bucks County, PA | Registered: Aug 2008
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posted
I couldn't have said it better myself!
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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WildCondor
Unregistered
posted
I hate quitters!
listen to the wise words of wisdom here! You may need higher doses, a different combination and so on! Giving up is not an option!
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
quote:Terry... terrier or terror??? Just wondering!
Got a laugh out of that. Probably both.
J03 and Jesse - If you have lyme and/or co-infections and you don't treat them, you WILL get sicker. Maybe not right away - it varies from person to person.
Do you think your loved ones would rather have money or you? They will not want to watch you suffer with this horrific disease.
The symptoms can get REALLY bad as time goes on. So bad that it's almost not worth living. Unfortunately a fairly high percentage of lyme patients commit suicide.
Keep looking for answers.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
quote: Good advice, but it is difficult - at least for me. How can I continue to justify spending the insane amount of money that I spend, for years on end, knowing how helpful that money would be to my family if I'm not getting better?
When you lose your money, you've lost nothing. When you lose your health, you've lost something. When you lose your character, all is lost.
No amount of reasoning can justify a mother or wife terminating treatment knowing those that love her would never accept such reasoning. Don't lose your character out of guilt. Lose your shame out of love and fight on.
quote: How can I justify endless supplies of herbs, antibiotics, doctors visits...etc unless I show SOME improvement? At what point do we throw in the towel and give up? At least, in that case, I'd have a lot more money to share with the family.
Faith & Possibility: The ability to persevere in the face of great adversity and uncertainty, knowing the probability of a successful outcome is more likely with faith and willingness to go forward in spite of all current evidence to the contrary. If you believe it's possible to improve, even though you haven't so far, you'll be willing to do whatever it takes.
A child is more likely to be resentful and to feel guilt at an older age if they were to come to know the truth that their mother put dollars in their college fund rather than continue to battle a horrible illness.
quote: Don't get me wrong, I would give every cent I have to feel normal again, but doing that without feeling better (at all) is horrible.
It is horrible. It's also a sign that patience is required --.... more patience, and even more than that. It's a sign to look more deeply into the case. What else could be going on? It's time to ask questions, to do some individual investigating and thinking.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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