posted
My main symptoms are muscle twitching (all over the body), muscles crawling (like a butterfly underneath my skin), sore calf muscles (feels like i lifted some leg weights for too long),numbness in hand and feet, and fatigue.
These are mostly the only symptoms I have except for the major brain fog and add.
Do these sound like my lyme has struck again after 6 years?????
Anyone else have these symptoms?
Posts: 45 | From western kentucky | Registered: Oct 2008
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posted
Maybe. I think you should see an LLMD. You have enough symptoms to warrant concern. Weights on the leggs is a good way to describe the weakness I feel in the legs. Get well soon. -p
Posts: 641 | From So. CA | Registered: May 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I have all of these symptoms, and some more too. Sounds very suspicious to me.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
I too had body wide muscle twitching all over my entire body. I did find that it went away about six months into antibiotics and magnesium supplements.
I take Natural Calm by Peter Gilham. It is a magnesium drink at night with hot water. It seems to have helped do the trick with getting rid of body wide twitching. That and the antibiotics I"m sure did it.
Sounds like it could be lyme with the twitching and brain fog. I would get tested asap and see a LLMD who will rule it in/out.
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
I am told this is related to Bartonella
Posts: 1172 | From UK | Registered: Jan 2007
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
So........what abx or other steps are you taking to actually combat your obviously still active infection?
Folks......if you have symptoms...you need treatment.
Period.
Sometimes I just have to say it....point blank.
Sorry.
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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Told by who? Which symptoms or group of them specifically?
quote:My main symptoms are muscle twitching (all over the body), muscles crawling (like a butterfly underneath my skin), sore calf muscles (feels like i lifted some leg weights for too long),numbness in hand and feet, and fatigue.
These are mostly the only symptoms I have except for the major brain fog and add.
Do these sound like my lyme has struck again after 6 years?????
I have all of those symptoms and am positive for Lyme according to the Igenex western blot. I have improved substantially on antibiotics. So yes, it does sound like your Lyme has struck again.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
quote:Originally posted by FunkOdyssey: [QB] [QUOTE]I am told this is related to Bartonella
Told by who? ____________________________________________
Told by my LLMD, twitches, CNS problems, burning skin sensation, any twitching or pain in the soles of the feet or shins
and the butterfly feeling under your feet thats exactly as I explained it to my LLMD and he said straight away bartonella
posted
That sure sounds like lyme to me! Do you live in a region where lyme is prevalent? It could be a relapse, but you might have got bitten again and not noticed? Sounds like you better get to the lyme doc pronto! And maybe cop some abx somewhere for the interim). I hope you nail it quicker this time, if that's what it is! Lyme SUCKS! DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Many of your symptoms sound like neuropathy which can be caused by lyme or bartonella. The crawling under the skin, numbness, tingling. Diabetes is also a major cause of neuropathy.
The muscle twitches can be caused by an electrolyte imbalance which can be caused by TBI's.
The brain fog can be caused by lots of things. All your symptoms combined, coupled with previous lyme make it seem likely that TBI's could be causing your problems but other things can cause your symptoms too.
Have you been evaluated by any doctor for your symptoms? Best to be evaluated by an LLMD (lyme literate MD) since you've already had lyme. This would be especially important if you've been evalutated for your symptoms and have no answers. Please go to the seeking doctors section and find an LLMD.
Terry I'm not a doctor
Posts: 6286 | From Oregon | Registered: Jan 2006
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Shosty
Unregistered
posted
See if you can get an ANA test done by your primary or LLMD, too. This measures autoimmune activity. The autoimmune activity could be from current Lyme, or past Lyme, and might mean your Lyme is active, or might mean you have autoimmune issues leftover now that the infection is gone, or might mean you have autoimmune issues independently. Try food allergy diet too.
I am in the same boat and am considering trying antibiotics again, even though my ANA is sky high. I take antibiotics very seriously, because they have also caused me a lot of problems, so personally, I am looking at every other possible cause besides Lyme.
Even if it is Lyme, I am also considering other measures, even massage, PT and hypnosis, to live with the sensations. I already have done 6 years of antibiotics, stopped 2 years ago, and my whole body cries "no!" when I pick up the antibiotic bottle that still sits on the table here.
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
An elevated ANA can mean active lyme. Apparently borrelia inserts it's DNA into ours, causing our body to attack itself.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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