posted
Have you tried setting an alarm for 7 or 8am? Because if you sleep from 3am until 11am, then you've just gotten a full nights sleep. You are not going to be tired again at 11pm, only 12 hours later. If you allow yourself to sleep until 10 or 11am regularly, that could certainly be part of the problem.
Posts: 195 | From Manchester, CT | Registered: Jun 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Hi and thank you Funk!
Actually, when this first started happening, I would make myself get up at 7:30-8:00 AM. Still, I would not fall asleep until 3:00-3:30am.
The last 3 days I have been so beat that I just let myself wake up naturally. prior to this I could also sleep for all but 8-10 hours of the day (I took naps).
No naps now.
feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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bettyg
Unregistered
posted
mine for the past 2-3 years of GOING to bed is 3-5 AM !! i just hate this.
now i'm in bed 10-12 hrs. and just as tired when i went to bed plus 1-2 naps during day of 1-3 hrs. as needed!
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posted
I just went 5 days without ANY sleep. This, after 500mgs of Trazadone, 15mgs of Valium, and 100mgs of Lyrica. Went to my PCP, who is a total schmuck, but nevertheless gave me a prescription for Lunesta (to be added to the arsenal).
First night on it (last night), I went to sleep within an hour of taking it... It's a welcome change.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
Lunesta worked well for my husband too. Our insurance wouldn't cover it but our PCP kept him supplied with samples.
Posts: 984 | From San Diego | Registered: Nov 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I normally go to bed at around 3am. I was always a night person...
I've been to many doctors who say you should go to bed early - like 10pm. I could never do that.
When my Lyme was very bad, I did have awful insomnia. I couldn't sleep & I was up until about 7 or 8 am quite often... It was really awful. Ambien helped but I didn't like to "have to" take it to get to sleep. It's expensive, too.
Eventually, I got into this 3am - noon pattern. It seems OK since I don't "have to" get up early. I think the LightWorks helped to get my hormones under control.
I think staying up late may be related to Lyme effecting the hormone balance. I don't really know, though.
I'm not sure which comes first since not getting proper sleep can also effect growth hormone levels...
Some people use melatonin. There are a number of herbal things you can take, too. None of them seemed to help me that much. I think using infrared light seemed to help me the most.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I've read it is due to the encephalopathy in late stage Lyme.
I'm with you, and I hate it. My sleep time is usually around 4 am, but I've gone through spurts where I could not fall asleep until 5 or 6 am.
I have to totally drug myself to fall asleep; I take 30 mg of Restoril and 150 mg of Seroquel. Even that doesn't always do it.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
When my daughter became ill years ago I also acquired a later bedtime with extreme daytime fatigue.
When she would actually fall asleep (which was rare) she would be able to hear everything going on around her, like my kids playing in the room next door, completely awake/aware...but paralyzed and unable to move for several moments.
Finally was diagnosed with Narcolepsy w/ Sleep paralysis...I've been on Xyrem. or it, and I'm now able to fall asleep at around 2 am and sleep until 7-8..a huge improvement.
Be sure to mention any weird sleep abnormalities to your LLMD, as you may be suffering from Narcolepsy, or another sleep disorder that is treatable with meds. as well.
*As proof that Lyme induced insomnia/narolepsy is worse than normal: Even on Xyrem (also known as "GHB), she often stay awake throughout the first dose!- It takes a second, more powerful dose, 4 hours later, to make me sleep for only one hour (You're supposed to get 4-8 hours from it!)
[ 31. October 2008, 04:35 AM: Message edited by: JKM03 ]
Posts: 43 | From NY | Registered: Oct 2008
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-Go to bed at the same time everyday, and wake the same time everyday...7 days a week.
-Your bedroom should be for sleep or sex only. No doing work/business, on the pc, or watching TV in the bedroom.
-Set your alarm at night, and then put a towel over the dials so you cant see the time at night. Dont get up till it goes off.
-Take a warm shower or bath 1-2 hrs before bedtime.
-Keep the bedroom a few degrees cooler at bedtime.
-If noises bother you, turn on a fan or soundmachine to drown out noises. Dont use the radio, use something that has the same cylical pattern of white noise.
-Don't eat any sugars (shouldnt anyway with lyme), peanuts, pastas, ice cream, chocolate, carbos before bed.
-If you dont fall asleep in the first 20 minutes, get up, get a drink of water, and read a book for 15-30 minutes (or till sleepy). Then go back to bed.
-Dont watch TV right before going to bed. If you do, make sure its something relaxing, like a comedy, and not something intense or loud.
-If you wake up in the middle of the night, dont get up (unless you have to go to the bathroom).
-If you have anxiety while in bed, sit up, do a toe to head massage of your body, while deep breathing.
Hope some of these ideas help...
Posts: 514 | From . | Registered: Apr 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Thank you everyone for the support stories and suggestions.
My sleep patterns are just really wacko and change from month to month.
Wiminin, I do all of the things that you suggested...doesn't matter.
Tracy, your answer, enceph. is probably the most accurate. This coupled with perhaps peri-menopause?
Sparkle, my worry is that the bodies organs are *supposed* to heal themselves at certain times in the night. If sleep comes in early morning patterns, is this healing disrupted?
By the way, I can take my sleep meds at 11:30-12:00 am and nothing! But at 3 or 3:30 I am magically tired. It is like my sleep clock has re-set itself.
Weird!
thanks guys for all of your responses!
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Im curious.. during the winter do you use artificial light at all? It almost sounds like your carcadian cycle is off, which could be thyroid related.
Quite often with sleep disorders its related to stress, anxiety, diet, meds, or physical problems...aha...encephalitis/meningitis wherein the brain is healing, and doesnt care what time of day it is..
I guess the real question is...are you getting enough sleep. If youre getting at least 8-10 hrs daily, but its just at an odd time, then maybe you can slowly try to change it back. Many people have to adapt to a sleep cycle change because of jobs... so maybe some of those same hints can help you too.
btw: I did read somewhere that between 3-4am is usually when your kidneys are cleansing? Not sure if thats related or not, but you can google sleep disorders, or, waking at 3 or 4 am and theres different ideas out there.
Posts: 514 | From . | Registered: Apr 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Wiminen,
thank you for your brain storming. I am on Doxy and while I had been a sun bunny....sunshine makes me feel so much better,
I have not been in the sunshine since early August....maybe it is catching up?
Even though I fell asleep after 3 am again last night I got up at 8:00 am . Trying to get that clock re-set.
I am hoping to head to Florida for the winter in November.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Man... I thought I was *nuts* or that I was starting to have manic episodes --- I have started to stay up until 3-4 several nights a week... This week is my week off of meds and I seem to have re-adjusted to normal (for me) sleep times of midnight-8/9AM.
Thanks for posting this!
-------------------- Mal "Ready?"
Zoe "Always." Posts: 36 | From Pittsburgh | Registered: Oct 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Turning your clock back Sunday may help your heart -- By STEPHANIE NANO Associated Press Writer
NEW YORK (AP) --
Turning your clock back on Sunday may be good for your heart. Swedish researchers looked at 20 years of records and discovered that the number of heart attacks dipped on the Monday after clocks were set back an hour, possibly because people got an extra hour of sleep.
But moving clocks forward in the spring appeared to have the opposite effect. There were more heart attacks during the week after the start of daylight saving time, particularly on the first three days of the week.
"Sleep - through a variety of mechanisms - affects our cardiovascular health," said Dr. Lori Mosca, director of preventive cardiology at New York-Presbyterian Hospital, who was not involved in the research. The findings show that "sleep not only impacts how we feel, but it may also affect whether we develop heart disease or not."
. . .
Sleep can affect the heart through changes in blood pressure, inflammation, blood clotting, blood sugar, cholesterol and blood vessels, Mosca said. She suggested that anxiety from changes in routine may also be a factor, in addition to loss of sleep.
Dr. Ronald Chervin, director of the University of Michigan's Sleep Disorders Center, said this is a "sleep-deprived society," and he advises taking advantage of Sunday's time change and getting an extra hour of sleep.
. . . .
- Full article at the link or at the AP home site.
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I know what you mean about falling alseep. I take Lyrica and Xanax and it still takes me 2 hours to fall asleep. Without the Lyrica no matter what, I can't fall alseep before midnight and then I wake up at 3:00 am. I have to take this combo to get at least 5 or more hours of straight sleep without waking.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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This week is my week off of meds and I seem to have re-adjusted to normal (for me) sleep times of midnight-8/9AM. 
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