posted
I am seeing my LLMD on Friday and I can't wait! I am getting back my igenex, SPECT scan, coinfections and other blood work.
By the time I finally got to see an LLMD I was in BAD shape. But since he didn't have this bloodwork yet, he was going on my clinical diagnosis and the fact that I had a CDC positive result from Quest.
He started me on Omnicef and Zithromax. I herxed in the beginning and then it leveled off.
For a litte while I felt like maybe my symptoms were better but now they are worse again.
How do you know if you are responding to antibiotics? I have some okay days and some horrible days--although this was also the case before antibiotics.
I have a feeling my doctor will ask if they helped me at all (it's only been 6 weeks...I know not long seeing as I've been very sick for a year)
I don't know what to tell him--at first I felt slightly better but now worse. I'm wondering if my inital "better" was just mental (i.e. I was feeling better because I FINALLY found someone who understood me).
Or did I build a resistance to the drugs?
I guess I am thinking about this too much. I'm just SO TIRED of feeling miserable!!!
Posts: 71 | From New York, NY | Registered: Aug 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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I don't think you need to beat yourself up for "thinking about this too much" as it is understandable if you feel crummy each waking moment.
It is rough to have to discard the idea that medicine will make us feel better right away. And, in terms of lyme treatment, six weeks is right away. This is a very complex situation.
And the meds themselves can really do a number on the stomach.
I suggest asking your doctor about what can help alleviate some of the discomfort.
You might find switching meds around of some help, with the doctor's suggestions, of course.
How is your liver support working ?
Are you taking magnesium and enough of it?
B-complex, etc.?
Getting enough sleep?
Can you get weekly massage?
Beyond those suggestions, be sure to let your doctor know what you would like to see better and there may be a way for some of that with supplements.
For the parts of this where you just have to hang on for the ride, I hope you can find some enjoyment to balance out the worst parts.
posted
Just tell him what you told us. If you herxed then that is a sign you are on the right track. He probably started you off with a fairly low dose to see how you would respond to antibiotics and plans to make changes.
It is helpful to make a list of symptoms and then use some sort of rating system 1 -5 or 1 -10 to track progress. You may find that the top symptoms change from month to month or that some improve and others get worse.
By writing it down and evaluating it either weekly or monthly (daily is probably overkill) you should start seeing patterns developing over time. Also keep a list of meds and note when you change doses so you can see if a change in meds is affecting your symptoms.
Good luck.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Ask him to increase the dose of Ceftin if possible and to add 200mg x 2 per day of Plaquenil to the routine.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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