posted
Glad you made it, Tutu! Please check up on all the medical ramifications...
Posts: 13171 | From San Francisco | Registered: May 2006
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Could have been just the sedation too. I was worried about that when I had my colonoscopy. I don't feel sedation is a good thing in a compromised body. Like I said, I did my colonoscopy without meds and it was fine....
Good luck to ya Lymetoo....
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Have you ever been diagnosed with sleep apnea? My father has this and without his cpack he goes into atrial fibrillation.
Glad to hear you are feeling better.
Posts: 1603 | From ny | Registered: Aug 2006
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
HOLY COW!!!!!!!
Nie to hear all...came full circle...calling you tomorrow.
STOP SCARING ME!!!!
Kent
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
Droopy...I wondered where all my wine went... Not bad...4 bottles in 4 hours...did the Drs. and Nurses have any?
Seriously, if I may digress, I am so glad you are OK...I can't imagine Lymenet without you!
FISH MAN!!!! How are you? Still fighting the fight?
What does everyone make of the Bionic German Kill da Lyme in the Coconut thing?
Anyone know of someone who actually went and has documented proof of being cured?
Peace, Love, and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Oh dear! I missed this post. So sorry!
You had to be scared. That is so awful!!!
Do lettuce no how you are doing.. ok? I worry about you!
posted
Lymetoo, so glad your OK...that happeded to my best friend to...after the same test...she is fine and i'm sure you will be to...please take care we really need you around here...Madge
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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posted
sounds like electrolyte imbalnace set of the a-fib. a-fib and other rhythem disorders happen when and :electical" conduction problem happens- the heart is its own electrical system and electrolytes being off can throw things out of whack--big time!! please keep eye on any further symptoms and esp. pain between shoulder blades for women. most common heart pain is faced with immediate denial of " it CANT be me heart--its fine" if find yourself saying that then chances are....it is your ticker!! Most all females patients i have had would testify to pain between blades and "deniel" occurences. men present differently than women usually
-------------------- i am not a Dr. any info is only for education, suggestion or to think/research. please do not mis-intuprest as diagnostic or prescriptive, only trying to help. **
dx in 08:lyme, rmsf, bart, babs, and m.pneumonia. Posts: 422 | From TX | Registered: Oct 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
What exactly was your prep? Do you remember? There is colyte, and there is also a sodium phosphate prep that people prefer as they don't have to drink all that gunk, but it is known to damage the kidneys in a small percentage of the population. Some folks have even had to go on dialysis as a result and sometimes the damage can be somewhat delayed. Personally--after I read this I was disgusted that the medical profession would use something elective that could, even in a small percentage of patients, permanently damage their health.
Please monitor your kidneys closely for the next six months too. It seems to me the prep has set this off, upset your kidneys, electrolytes and thus your heart.
"Administration of other sodium phosphate-containing products, such as enemas or non-prescription liquid purgatives, has resulted in fatalities due to significant fluid shifts, severe electrolyte abnormalities, and cardiac arrhythmias. These have been observed in patients with renal insufficiency or bowel perforation, and with misuse or overdose of these products."
"Adverse Reactions
In clinical trials, the most commonly observed adverse reactions (incidence ≥ 1%, all treated patients) occurring with the use of Visicol� Tablets are related to the desired purgative effect. Nausea, vomiting, abdominal bloating, abdominal pain, dizziness, and headache occur, and are generally transient and self-limited, requiring no specific treatment. All of these adverse events also occurred in patients who took the PEG-salt solution comparator. Small superficial mucosal ulcerations, typical of those previously reported from the use of liquid preparations of sodium phosphate, and instances of mucosal bleeding have been observed on colonoscopy.
One patient, with no history of heart disease, developed an initial episode of atrial fibrillation after severe vomiting immediately after taking Visicol� Tablets. Another patient, with known arteriosclerotic heart disease, who took the PEG-salt solution comparator developed atrial fibrillation and also vomited. No patient in the clinical studies developed predefined postural changes in vital signs with concomitant symptoms of lightheadedness or syncope."
So it isn't out of the question that your prep led to atrial fib, and somehow it hasn't corrected itself yet.
Posts: 2276 | From united states | Registered: Jun 2004
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posted
It was the sodium phosphate. It was different prep than I've had before.
I'm also going to find out if the meds were different. Different doctor this time.
thanks, oxygen
Kent....sorry I missed your call
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Wow, Tutu I'm glad you are feeling better. But gee whiz, when are we going to get a break. It seems like it goes from attacking one part of the body to another.
I too am having suspicious attacks in my chest. I finally went to my doc last week after about 4 weeks of these first time feeling in chest.
I had an EKG and am having a stress test next week. I've always felt blessed that at least the lyme wasn't attacking my heart (as it's known to do).
Doc asked me why I had waited a month before coming in. Like I told him, if I came into see him everytime some weird symptom came on....I'd be there every week.
Coming and going, waxing and waning has been life for 8yrs. Maybe you PCP can order the stress test before you see the specialist.
Take care, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
NO MORE COLONOSCOPIES!!!! Hope this all gets resolved soon.
Blessings. Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10169 | From Illinois | Registered: Aug 2004
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Tutu, I'd bet my money this is not your lyme.
This is a reaction to the sodium phosphate prep which in my opinion should be fricken outlawed. It causes kidney damage, atrial fib in people with no prior risk.
Next time you must get a low sodium prep.
Meanwhile, monitor your kidney function and try to go easy on your body. After I wrecked myself with 4 days of high dose salt/c, I spent the next 9 months on a very bland diet. No extra salt. I did have cravings for avocadoes and milk (potassium and calcium). I would recommend a very bland diet, and kidney support. I think the heart issue is coming from electrolyte imbalances that are related to the kidneys. Flush the kidneys with water, don't stress them with excess minerals, and look into some kidney support.
Maybe even homeopathic cell salts would be helpful. I know after my salt/c debacle I had this urgent feeling I should take nat. mur tissue cell salt. I didn't even realize it was homeopathic salt!
Posts: 2276 | From united states | Registered: Jun 2004
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hiker.... NOT going won't happen since my dad had colon cancer at age 39 and I've had two pre-cancerous polyps.
I won't have to have another for at least 2 yrs now since this one was OK. I will carefully choose the right prep this time. New dr and new prep this time....not good.
map...I had a stress test this Saturday after going in the hospital with chest pains Friday. It was all OK.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
They're homeopathic. You could just get a bottle (cheap) at Vitamin Shoppe--of all twelve salts. Hyland's makes them.
Let your gastro know that you believe it was the prep, and he should preferentially prescribe colyte, or a low sodium prep, unless he has a patient that refuses them.
This prep should be a last resort. It is somewhat dangerous.
Posts: 2276 | From united states | Registered: Jun 2004
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Sorry this happened to you and glad you got through it OK, in the end.
Based on my experience, studying and knowledge gained due to my cardiac problems I'm making an educated guess the the low potassium caused the a-fib, as low potassium is a common cause of heart beat irregularities.
Another educated guess is the pre-colonoscopy flush out combined with no food intake for probably 12+ hours caused the low potassium.
In order to keep up you potassium levels, especially if certain potassium rich foods bother you, I suggest you simply use OTC potassium supplements ... relatively inexpensive.
Oh, BTW, your doctor should monitor your potassium level during routine check-up's and lab work.
Be well, my friend,
-------------------- Lou B Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
I am so sorry, so sorry to hear about your double whammy's. . . we have learned from your experience, even though you had to go through it ahead of us. . . but we have learned.
I didn't know about the different preps for the colonscopy's. Now I do. and now I know what both my husband and I will avoid.
But, it came at your risk, your heart. I'm so sorry!
Makes me embarrassed to be a part of the medical profession, to hear of an elective DANGEROUS medical situation such as this. Especially since there are alternative preps!!!! We're all here for you, out in internet support land . . . Julie
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Lymetoo: .
Tree....Your posting caused me to pick up the phone and call my deceased mother's former doctor. I wanted to know if she had A-fib.
YEP
Get a few b12 shots! Also the low Potassium caused by the flush at hospital. Take that to tutu and magnesium.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Thanks....I took one last week... but need to do one everyday for a few days. Thanks for reminding me!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Your welcome sweety just glad your still here on earth!!!
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
whoops doublebubble
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
This just occurred to me..... You should have the Dr Rx tests for your electrolytes to see exactly how much you should be supplementing.
Hope you're feeling better today!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
So sorry you had to go through that!! Glad to hear that your feeling better!!
Both my parents are in A-fib all the time. They both have pace makers too. I wonder what my odds are??
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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