posted
What is up with this? its a new symptom, like pins and needles in my arm or leg and then it dissipates. Of course it has to be on the left side so its sends me straight into a panic attack, anyone have this?
Thanks.
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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Shosty
Unregistered
posted
Not sure why the left side makes you panic. Are you thnking about your heart?
This is a common symptom, I have had it for 8 years, especially on the left side. Face, arms, hands, sometimes legs and feet.
Treatment for 6 years helped a little, but not a lot. I have learned to live with it.
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Geez, I don't know how you live with it but I may have to get used to it. So sorry you have this. Yes I freak because of my heart I'm afraid its related to my heart.
Sometimes I get rapid beats in my heart or a weird extra beat or something.
Thanks for your reply
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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the heart buzzing-like feeling, palps, and the like is very common in lyme and also babesia.
lots of people have those symptoms here on this board, so you are not alone...and i doubt if it is a sign of impending heart attack or anything like that. as a matter of fact, i had the heart issues as my main scariest symptom...started swimming, and i noticed them less! so maybe exercise helps with the heart buzzing??
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
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posted
The heart palp.'s and extra beats are also common. I did have a 24 hour holter monitor that showed some tachycardia and some PVC's (extra beats), but was told that they were not at all threatening to my health. I also had a heart echocardiogram that showed some mild regurgitation,and slight mitral valve prolapse. Again, this is not of much concern.
I went once to the ER when I had one of my attacks of intense pain on my entire left side, (a problem I have that I thought was separate from the more constant tingling and burning), which made me think of my heart. I was not panicky or anything, but just decided after years of it, to go and make sure. I was fine.
If you get scared, there is no reason why you can't go to your doctor and get some of these tests. For the numbness, you can also have an EMG and nerve conduction (I just had these again, after having them in 2001, and they showed nothing, so I was told the problem is in my brain or "systemic, as in lupus.")
Treatment appeared to help my heart symptoms the most, actually. Either that, or my hormones settled down. Many, many women in their 40's seem to have these, from hormonal changes in peri-menopause. Once you are in menopause, they stop. My daughter had them in adolescence, another time of change.
My MD wanted me on beta blockers, for my heart, but I reacted badly to them, esp. since I already have low blood pressure. He emphasized that the beta-blockers were only for comfort, not for safety, and that I would be fine if I did not take them. We agreed to use xanax because the heart palp.'s and tachycardia cause a secondary anxiety (he never thought they were primarily caused by anxiety, thank God). Taking 1/8 of the lowest dose, once or twice a month, did it for me for years. Now that I am past menopause, I never take it!
The numbness and tingling can be very separate from the heart stuff. But I have found that a wide range of things will cause the tingling to be worse, and heart palp.'s, as I remember, were one of them.
You can do some testing to make sure, but I feel pretty comfortable, since you are on Lymenet, and have Lyme, telling you not to worry about your safety at all with the tingling or the heart palp.'s. Health and comfort are different from safety though! Treating the Lyme should help.
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You all make me feel better. I had an EKG and n electrocaridogram, and a 24 hr holter done prior to my diganoses of LD and they were fine.
I guess being that I have all these new symptoms I'm just get a little scared that maybe its all effecting my heart. It helps to know I'm not alone in this.
Shosty, your right if I feel its bad why can't I go get checked out. Maybe I will just for piece of mind.
Thanks again!
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I've had this for years. It has been much better since I started treatment.
It can be caused by several things. These are common symptoms of neuropathy. Can be caused by poor circulation or nerves that are being compressed by trigger points. I'm sure there can be other causes as well.
Please talk to your doctor about it and get an opinion. Best doctor to discuss it with would be your LLMD if you have one.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Shosty
Unregistered
posted
I didn't know you had those tests. It sounds like you are fine though. I don't meant that the heart stuff isn't happening, or that it isn't scary, but it sounds like it isn't the "dangerous kind."
Just to make you feel better, a physician I know had heart palpitations and, in sympathy, told me that it was the most frightening thing he had ever experienced!
Lyme treatment can help, but also watch for hormonal patterns (which can also be affected by Lyme and vice versa).
When I took my holter back to the hospital, all the women in the cardio dept. said they had PVC's too when they were approaching menopause!
As for the neuropathy, the intensity will improve with treatment. As I said, for me, it is still there and, actually, worse in heat or sun.
posted
Thank you guys, I appreciate your responses. I feel like my heart is racing more not less with treatment which is a little scary.
SHosty,
I had the heart tests done in March or so do you think I should get them re done or am I just being completely crazy?
I've been having such a hard time just knowing that its lyme and I'm not dying and I freak and have panic attacks or just major anxiety all of the time. gaaaa this is so frustrating I hope the treatment kicks in soon and I feel better.
Thanks for the support and the patience with my rants I Hope you all feel better!!!!
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Geet, what drugs are you taking right now?
My heart has recently been pounding hard and fast with treatment, and I especially notice it in the mornings when I first wake up.
This got worse for me with artemisinin, but it may have just been a side effect. However, i'm not really sure what it was from. Could have been the medicines reaching something new.
PS---just read your original post and it didn't mention heart symptoms, so I'm not sure how we got on this!
But also I did have a severe episode of a pins and needles pricking sensation when I was using Zithromax with Plaquenil.
Posts: 4590 | From Midwest | Registered: Jun 2008
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I actually not sure how I got on the heart palps either I guessb because the numbness tingling made me think of a heart related problems.
I mentioned I also get heart palps so that is more of the reason I sometimes freak and think the numbness and tingling are heart related.
I'm currently taking 200mg of Doxy 2x day Biaxin 500mg 2x daily 200mg Planquenil 2x daily 2 shots of Bicillin one in each cheek once a week (dose 2.4 million a week) Armour Thyroid 15 mg and a bunch of supplements.
When I wake up its crazy like I just ran or something I'm with you on that.
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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posted
I started out like you. My EKG was normal too. They did spread and got more intense, from the top of my head to my toes. The pain was more than I could tolerate and couldn't get out of bed. My dr. put me on Lyrica. The dosage had to be increased. The side effects are the same as your symptoms too, except for edema and weight gain. Once it is in your system, they taper off.I haven't started antibiotic treatment yet, I'm a newbie for later stage of Lyme Disease (most likely chronic). Ask your doctor if it is compatible with your other meds. I couldn't function physically without it. Best wishes to you
-------------------- tiggerangie Posts: 14 | From Central Valley, California | Registered: Nov 2008
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posted
I started out like you. My EKG was normal too. They did spread and got more intense, from the top of my head to my toes. The pain was more than I could tolerate and couldn't get out of bed. My dr. put me on Lyrica. The dosage had to be increased. The side effects are the same as your symptoms too, except for edema and weight gain. Once it is in your system, they taper off.I haven't started antibiotic treatment yet, I'm a newbie for later stage of Lyme Disease (most likely chronic). Ask your doctor if it is compatible with your other meds. I couldn't function physically without it. Best wishes to you
-------------------- tiggerangie Posts: 14 | From Central Valley, California | Registered: Nov 2008
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posted
I started out like you. My EKG was normal too. They did spread and got more intense, from the top of my head to my toes. The pain was more than I could tolerate and couldn't get out of bed. My dr. put me on Lyrica. The dosage had to be increased. The side effects are the same as your symptoms too, except for edema and weight gain. Once it is in your system, they taper off.I haven't started antibiotic treatment yet, I'm a newbie for later stage of Lyme Disease (most likely chronic). Ask your doctor if it is compatible with your other meds. I couldn't function physically without it. Best wishes to you
-------------------- tiggerangie Posts: 14 | From Central Valley, California | Registered: Nov 2008
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